{"id":92403,"date":"2024-01-18T11:59:36","date_gmt":"2024-01-18T01:59:36","guid":{"rendered":"https:\/\/lungfoundation.com.au\/?post_type=article&#038;p=92403"},"modified":"2024-01-23T16:10:36","modified_gmt":"2024-01-23T06:10:36","slug":"common-questions-about-a-lung-transplant","status":"publish","type":"article","link":"https:\/\/lungfoundation.com.au\/blog\/common-questions-about-a-lung-transplant\/","title":{"rendered":"Common questions about having a lung transplant\u00a0"},"content":{"rendered":"\n<p>Lung transplants are complex procedures. Understanding more about what is essential to help you feel prepared. Here, we explore the common questions you may have about a lung transplant.\u00a0\u00a0\u00a0\u00a0<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Who needs a lung transplant?&nbsp;&nbsp;<\/h4>\n\n\n\n<p>Since lung transplantation is a very complex surgery involving the use of scarce resources, only people who have a significantly impaired quality of life are considered suitable candidates. This may include someone with a severe lung condition whose life is at risk. These can include lung diseases such as cystic fibrosis, emphysema, pulmonary fibrosis and <a href=\"https:\/\/lungfoundation.com.au\/health-professionals\/conditions\/ild\/\" target=\"_blank\" rel=\"noreferrer noopener\">interstitial lung disease<\/a>. Additionally, certain forms of congenital heart disease and pulmonary arterial hypertension may require a lung transplant.\u00a0\u00a0\u00a0<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">What are the eligibility criteria?&nbsp;<\/h4>\n\n\n\n<p>If you and your doctor think a lung transplant is suitable treatment, you will need to be referred to a highly skilled team of health professionals. Following the referral, a lung transplant team will perform a lung transplant assessment, to determine if you meet the eligibility criteria.&nbsp;&nbsp;&nbsp;&nbsp;<\/p>\n\n\n\n<p>There are several factors that will need to be considered before you may be determined as a successful candidate. These include:&nbsp;&nbsp;<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Your age and general conditioning&nbsp;&nbsp;<\/li>\n\n\n\n<li>The severity of your condition&nbsp;&nbsp;<\/li>\n\n\n\n<li>Untreatable issues with major organs other than your lungs&nbsp;&nbsp;<\/li>\n\n\n\n<li>Lifestyle factors such as malnutrition, alcohol consumption and tobacco use, or vaping will be considered&nbsp;&nbsp;<\/li>\n\n\n\n<li>Significant cerebrovascular disease&nbsp;&nbsp;<\/li>\n\n\n\n<li>Presence of chronic infections&nbsp;&nbsp;<\/li>\n\n\n\n<li>Other health factors \u2013 a transplant may not be an option if you have a recent malignancy, a chronic resistant infection, organ dysfunction or other surgical factors.&nbsp;<\/li>\n<\/ul>\n\n\n\n<p>Furthermore you will meet with a range of different health professionals to complete a range of assessments and discuss the commitment involved. Moving forward requires a dedication to a healthy and active lifestyle post-transplant. Afterwards, you will have to wait for the result.\u00a0<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Who will conduct the lung transplant assessment?&nbsp;<\/h4>\n\n\n\n<p>The healthcare professionals involved in the assessment may include: &nbsp;<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Respiratory physician&nbsp;&nbsp;&nbsp;<\/li>\n\n\n\n<li>Transplant surgeon&nbsp;&nbsp;&nbsp;<\/li>\n\n\n\n<li>Dietician&nbsp;&nbsp;<\/li>\n\n\n\n<li>Physiotherapist&nbsp;&nbsp;<\/li>\n\n\n\n<li>Social worker&nbsp;&nbsp;<\/li>\n\n\n\n<li>Cardiothoracic surgeon&nbsp;&nbsp;<\/li>\n\n\n\n<li>Pharmacist&nbsp;&nbsp;&nbsp;<\/li>\n\n\n\n<li>Transplant co-ordinator&nbsp;&nbsp;<\/li>\n\n\n\n<li>Anaesthetist&nbsp;&nbsp;&nbsp;<\/li>\n\n\n\n<li>Occupational therapist&nbsp;&nbsp;&nbsp;<\/li>\n\n\n\n<li>Pulmonary rehabilitation specialist&nbsp;&nbsp;&nbsp;<\/li>\n\n\n\n<li>Surgical nurses.&nbsp;<\/li>\n<\/ul>\n\n\n\n<p>In addition, there may be other appointments and experts involved specific to your unique situation.&nbsp;<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">What if I am not eligible for a lung transplant?&nbsp;<\/h4>\n\n\n\n<p>A lung transplant may not be the answer for everyone who is assessed. It is important to understand that going through the assessment process does not guarantee you will go on to the transplant registry. Sometimes the lung transplant assessment may reveal you are not suitable for a range of reasons.&nbsp;&nbsp;&nbsp;&nbsp;<\/p>\n\n\n\n<p>If this occurs, your team of health professionals will work with you to evaluate and come up with a new solution. Subsequently, they will plan to assist you with your lung health journey.&nbsp;&nbsp;&nbsp;&nbsp;<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Why is support so important?&nbsp;<\/h4>\n\n\n\n<p>A lung transplant brings about many challenges, for both you and your support network. It can be very difficult to cope with both the physical and emotional challenges presented during each process. Be it waiting to be accepted on to the transplant list, waiting for a transplant, and during the recovery process. Additionally, support is also essential when a lung transplant is deemed not the most suitable medical treatment option.&nbsp;&nbsp;&nbsp;&nbsp;<\/p>\n\n\n\n<p>Connecting with others who understand what you&#8217;re going through can make all the difference. Lung Foundation Australia is proud to support the <a href=\"https:\/\/www.lungitude.com.au\/\" target=\"_blank\" rel=\"noreferrer noopener\">Lungitude Foundation<\/a> to facilitate an online support network that connects people with shared experiences in lung transplantation. The Lungitude Online Peer Support Network enables the sharing of ideas and tips for managing the practical and emotional challenges of a lung disease. It&#8217;s important to remember you are not alone.&nbsp;<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">I&#8217;m on the registry, now what?&nbsp;<\/h4>\n\n\n\n<p>After you have been deemed a successful candidate, you will be placed on the lung transplant waitlist (registry). It is essential to maintain the best health while you are waiting for your procedure. This will help maximise your current condition and furthermore, allow your transplant to have the greatest chance of success.&nbsp;&nbsp;&nbsp;<\/p>\n\n\n\n<p>It can sometimes take up to two years waiting unless you receive <em>that<\/em> call. Sometimes it can be longer for a double transplant. Waiting for the procedure can be an extremely stressful time. Therefore, it is important to communicate with your health professionals how you and your family are coping, as well as talking with your loved ones.&nbsp;&nbsp;&nbsp;&nbsp;<\/p>\n\n\n\n<p><a href=\"https:\/\/lungfoundation.com.au\/blog\/social-worker-or-psychologist\/\" target=\"_blank\" rel=\"noreferrer noopener\">Social workers or psychologists<\/a> can provide expert education and support throughout the process. Likewise, this support is available for both the family, carer and the individual receiving the lung transplant.&nbsp;<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Can I get a lung transplant for Pulmonary Fibrosis (PF)?&nbsp;<\/h4>\n\n\n\n<p>A <a href=\"https:\/\/lungfoundation.com.au\/blog\/can-i-get-a-lung-transplant-for-pulmonary-fibrosis\/\" target=\"_blank\" rel=\"noreferrer noopener\">lung transplant for pulmonary fibrosis<\/a> can help improve survival chances and quality of life. Whether this is the best option to treat PF is determined by your team of medical professionals you are working with.&nbsp;&nbsp;&nbsp;<\/p>\n\n\n\n<p>However, as PF causes scarring of the lungs, your physician may suggest this treatment option. As a result, it is important to remember this is a major operation with significant risks.&nbsp;<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">What are the major risks or complications of a lung transplant?&nbsp;<\/h4>\n\n\n\n<p>Key risks include:&nbsp;<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Though rare, there is a chance of the lung transplant being unsuccessful&nbsp;&nbsp;<\/li>\n\n\n\n<li>With any major operation, surgical risks are present&nbsp;&nbsp;<\/li>\n\n\n\n<li>Transplant rejection can occur&nbsp;&nbsp;<\/li>\n\n\n\n<li>Further surgery may be needed for complications&nbsp;&nbsp;<\/li>\n\n\n\n<li>Strong medications are required to suppress the immune system.&nbsp;<\/li>\n<\/ul>\n\n\n\n<h4 class=\"wp-block-heading\">What are the advantages of a lung transplant?&nbsp;<\/h4>\n\n\n\n<p>For patients with lung failure who are fit enough for the operation, the major benefits include:&nbsp;<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Can lead to a longer and better quality of life&nbsp;&nbsp;&nbsp;<\/li>\n\n\n\n<li>Improved energy levels&nbsp;&nbsp;&nbsp;&nbsp;<\/li>\n\n\n\n<li>Increased ability to breathe, and thus return to normal daily activities.\u00a0\u00a0\u00a0\u00a0<\/li>\n<\/ul>\n\n\n\n<p>The Lungitude Foundation is continuously striving for excellence for lung transplant patients and their supporters in Australia. Reach out to find out more about the peer support groups, run in conjunction with Lung Foundation Australia.\u00a0<\/p>\n\n\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-background wp-element-button\" href=\"https:\/\/lungfoundation.com.au\/services\/lungitude-online-peer-support-network\/\" style=\"background-color:#165a30\">Expression of interest<\/a><\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>Lung transplants are complex procedures. Understanding more about what is essential to help you feel prepared. Here, we explore the common questions you may have&hellip;<\/p>\n","protected":false},"author":651,"featured_media":92739,"comment_status":"closed","ping_status":"closed","template":"","condition":[11,469,124,21,23,185],"user_category":[31],"article_category":[191,195],"class_list":["post-92403","article","type-article","status-publish","has-post-thumbnail","hentry","condition-idiopathic-pulmonary-fibrosis","condition-occupational-lung-disease","condition-other-lung-conditions","condition-pulmonary-arterial-hypertension","condition-pulmonary-fibrosis","condition-pulmonary-hypertension","user_category-patient","article_category-blog","article_category-medications-treatment"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v24.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Common questions about having a lung transplant\u00a0 - Lung Foundation Australia<\/title>\n<meta name=\"description\" content=\"Lung Foundation Australia explores the common questions people may have when faced with the prospect of having a lung transplant.\u00a0\u00a0\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lungfoundation.com.au\/blog\/common-questions-about-a-lung-transplant\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Common questions about having a lung transplant\u00a0 - 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In this webinar you will hear from both a clinical and patient perspective of the process and journey to lung transplantation.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>For further information about Pulmonary Fibrosis treatment and management visit our website <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pf\/overview\/\">here <\/a>or contact our<a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\"> Information and Support Centre<\/a> on <a href=\"tel:1800654301\">1800 654 301<\/a>.<br>This webinar was produced in collaboration with the Centre of Research Excellence in Pulmonary Fibrosis<\/p>\n<!-- \/wp:paragraph -->","post_title":"Lung Transplantation in Pulmonary Fibrosis","post_excerpt":"Join Dr. Jeremy Wrobel (Respiratory Physician) and Karen (Pulmonary Fibrosis) as they discuss lung transplants in Pulmonary Fibrosis. ","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"lung-transplantation-in-pulmonary-fibrosis","to_ping":"","pinged":"","post_modified":"2022-06-07 12:10:48","post_modified_gmt":"2022-06-07 02:10:48","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=19281","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":92382,"post_author":"651","post_date":"2023-11-22 08:34:00","post_date_gmt":"2023-11-21 22:34:00","post_content":"<!-- wp:paragraph -->\n<p>What to expect from a lung transplant? A lung transplant is a complex, and often life-saving surgery for people experiencing lung failure. They are reserved for people who have tried other medications and procedures which have been ineffective. There are many unknowns in the lead up to the procedure so it's natural to have questions.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>If you and your doctor think a lung transplant may be a suitable treatment option, you will need to be reviewed. A lung transplant team will undergo a lung transplant assessment for you. To be considered eligible, a comprehensive range of investigations and tests will be carried out. The eligibility assessment will look at various aspects including the stage of your disease, other health conditions, lifestyle and different factors that could put you at higher risk.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Lung Foundation Australia spoke with Craig Wood, about his road to his lung transplant. Craig was diagnosed with <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/other-lung-conditions\/alpha1-antitrypsin-deficiency\/\">Alpha-1 antitrypsin deficiency (AATD)<\/a>, a condition where the liver makes too little Alpha-1 antitrypsin. Craig shares what to expect from a lung transplant, and the importance of talking to others throughout the process.\u00a0<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 class=\"wp-block-heading\">How did you find out you needed a lung transplant?&nbsp;<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:image {\"align\":\"left\",\"id\":92387,\"width\":\"352px\",\"height\":\"auto\",\"aspectRatio\":\"0.9326171875\",\"sizeSlug\":\"large\",\"linkDestination\":\"none\"} -->\n<figure class=\"wp-block-image alignleft size-large is-resized\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2023\/11\/Craig-Wood-lung-transplant-1-955x1024.png\" alt=\"\" class=\"wp-image-92387\" style=\"aspect-ratio:0.9326171875;width:352px;height:auto\" \/><\/figure>\n<!-- \/wp:image -->\n\n<!-- wp:paragraph -->\n<p>I had a double lung transplant when I was 57.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\"My specialist had always said I would not be referred for a transplant until 'it effected my quality of life.' So, for many years I put up with the puffing and not being able to do any physical activity. This included walking upstairs, putting the bins out etc. During the years, my lung function dropped from 38% to 20%, this is when my quality of life was impacted.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 class=\"wp-block-heading\">How did you qualify for the transplant registry? &nbsp;<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>I was originally referred to The Alfred Hospital by my specialist in October 2017. After spending three days in The Alfred Hospital in Melbourne for a Lung Transplant Assessment I was given the approval for transplant in early March 2018.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>During the assessment you have many appointments to see many professionals: pharmacists, occupational therapists, transplant co-ordinator, anaesthetics review, dental clinic, dietician, physiotherapist, social worker and finally the CTHR surgeon.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>You will also be required to have the following tests: carotid duplex, Dexa scan, VQ scan, CT Thorax, spot urine test, fasting, lung function, BIA assessment, echocardiogram and provide many, many vials of blood.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Following the three-day assessment and prior to the next step you will be required to undergo an angiogram. Once the \u2018approval\u2019 has been given by the team, your blood is analysed in great detail by Lifeblood (Australian Red Cross Lifeblood) and results provided nationally for a compatible donor.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>From there it is the waiting game.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 class=\"wp-block-heading\">What happened once you were listed for a lung transplant?&nbsp;<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Once we were advised we were on the waiting list, my wife had a bag packed with the essentials. It was difficult not actually knowing when the call would come. I advised work and set up plans for my job share with others, the family and close friends were advised and then we waited...luckily not too long!<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 class=\"wp-block-heading\">&nbsp;How long did you wait until your lung transplant after you were on the registry?&nbsp;<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>In March 2018, my wife and I met with the family (we have three boys and a girl) and very close friends to advise them I was approved. Little did we know one week later we received the call and had the lung transplant.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Normally this quick lead is not the norm. I was told I could wait up to two years.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 class=\"wp-block-heading\">When you received the call to go in for your transplant, what was the process?&nbsp;<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>We received the call approx. 6:00am. My wife and I drove to hospital, went to the Alfred Hospital 5th floor ward and literally waited until 5:00pm. The confirmation from the lead doctor Professor Greg Snell advised the donor lungs were assessed and acceptable. The operation was to proceed. My children were also with us.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 class=\"wp-block-heading\">What are some things a caregiver should consider or be aware of during this process?&nbsp;<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>The nominated <a href=\"https:\/\/lungfoundation.com.au\/resources\/becoming-a-caregiver-for-a-loved-one\/\">caregiver<\/a> is really the lifeline for the patient not only for the recovery but the ongoing hospital trips. There is physio, blood tests and more hospital visits than you can imagine. For me my caregiver was my wife, so she not only said goodbye to me on the way to the operation but also, she was there when I woke up. And literally went through the whole process with me from the operation to the recovery. The caregiver's role is very much underestimated.\u00a0\u00a0<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 class=\"wp-block-heading\">Waking up after your lung transplant, how did you feel?&nbsp;<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>When I woke up, the first thing I noticed was the ventilator. I was quite scared. Once the ICU nurses removed the ventilator, I was amazed of the long breathe I could take in and exhale, more than I been able to do for years. There was no pain at this time due to the medication. I do remember being hooked up to many machines to monitor my vitals, heart, saturation levels etc. I spent 3 1\/2 days in the ICU. The care from the doctors and nurses was wonderful.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>From ICU to the ward. Followed by 12 weeks of rehab. I was very lucky; I was in hospital for just 12 days for my double lung transplant.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>I completed my gym attendance in eight weeks (instead of the normal 12 weeks). There were clinic visits every Monday. These involved seeing the doctors, lung function, blood pressure, oxygen stats, general recovery. Education sessions every Wednesday with my wife. These involved medications, food safety, occupational therapy, physio, social workers, carers meetings. These are compulsory meetings.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Medications are the most important of the recovery, there are a heap to get used to and the nurses provide education on what the meds are, what they provide the purpose of each and when to take them.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>You are provided with a Medication list which assists in identifying and providing notes on what they are for. You needed to know all of this to make up a daily and weekly supply prior to leaving the hospital \u2013 this is very important to understand and know.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 class=\"wp-block-heading\">What's life like after your lung transplant?&nbsp;<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:image {\"align\":\"right\",\"id\":92388,\"width\":\"308px\",\"height\":\"auto\",\"aspectRatio\":\"0.709483793517407\",\"sizeSlug\":\"full\",\"linkDestination\":\"none\"} -->\n<figure class=\"wp-block-image alignright size-full is-resized\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2023\/11\/Craig-Wood.1-3.png\" alt=\"\" class=\"wp-image-92388\" style=\"aspect-ratio:0.709483793517407;width:308px;height:auto\" \/><\/figure>\n<!-- \/wp:image -->\n\n<!-- wp:paragraph -->\n<p>I returned to full-time work three months after. To date besides one rejection in January 2020 which was treated quickly, I have had no setbacks.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>I did not realise the sacrifices my family had made. Now I can play with my grandchildren, travel more. I have now retired at 62 while my health is so good. Life is wonderful.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>It does take dedication after the lung transplant operation to ensure the success and the continued success in everything you do. From eating, getting out, exercise and work and you need to remember. This is a second chance of life\u2026. this is my story.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><strong>If you have had a lung transplant or caring for someone who has, join our online peer support group, established in collaboration with the <a href=\"https:\/\/www.lungitude.com.au\/\" target=\"_blank\" rel=\"noreferrer noopener\">Lungitude Foundation<\/a>. It is a place to share experiences and tips for managing the practical and emotional challenges of the lung transplant journey.&nbsp;<\/strong>&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:buttons -->\n<div class=\"wp-block-buttons\"><!-- wp:button {\"style\":{\"color\":{\"background\":\"#15873e\"}}} -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-background wp-element-button\" href=\"https:\/\/lungfoundation.com.au\/services\/lungitude-online-peer-support-network\/\" style=\"background-color:#15873e\">Expression of interest<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->","post_title":"What to expect from a lung transplant?\u00a0\u00a0","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"what-to-expect-from-a-lung-transplant","to_ping":"","pinged":"","post_modified":"2023-11-22 08:34:02","post_modified_gmt":"2023-11-21 22:34:02","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=article&#038;p=92382","menu_order":0,"post_type":"article","post_mime_type":"","comment_count":"0","filter":"raw"}]}],"full_width_components":{"full_width_page_components":[{"acf_fc_layout":"featured_posts_static","heading":"","view_more_link":null,"posts":[{"ID":19281,"post_author":"278","post_date":"2021-06-17 13:29:47","post_date_gmt":"2021-06-17 03:29:47","post_content":"<!-- wp:paragraph -->\n<p>Join Lung Foundation Australia, Dr. Jeremy Wrobel (Respiratory Physician) and Karen (Pulmonary Fibrosis patient) to learn more about lung transplantation in Pulmonary Fibrosis and its place in current treatment. In this webinar you will hear from both a clinical and patient perspective of the process and journey to lung transplantation.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>For further information about Pulmonary Fibrosis treatment and management visit our website <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pf\/overview\/\">here <\/a>or contact our<a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\"> Information and Support Centre<\/a> on <a href=\"tel:1800654301\">1800 654 301<\/a>.<br>This webinar was produced in collaboration with the Centre of Research Excellence in Pulmonary Fibrosis<\/p>\n<!-- \/wp:paragraph -->","post_title":"Lung Transplantation in Pulmonary Fibrosis","post_excerpt":"Join Dr. Jeremy Wrobel (Respiratory Physician) and Karen (Pulmonary Fibrosis) as they discuss lung transplants in Pulmonary Fibrosis. ","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"lung-transplantation-in-pulmonary-fibrosis","to_ping":"","pinged":"","post_modified":"2022-06-07 12:10:48","post_modified_gmt":"2022-06-07 02:10:48","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=19281","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":92382,"post_author":"651","post_date":"2023-11-22 08:34:00","post_date_gmt":"2023-11-21 22:34:00","post_content":"<!-- wp:paragraph -->\n<p>What to expect from a lung transplant? A lung transplant is a complex, and often life-saving surgery for people experiencing lung failure. They are reserved for people who have tried other medications and procedures which have been ineffective. There are many unknowns in the lead up to the procedure so it's natural to have questions.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>If you and your doctor think a lung transplant may be a suitable treatment option, you will need to be reviewed. A lung transplant team will undergo a lung transplant assessment for you. To be considered eligible, a comprehensive range of investigations and tests will be carried out. The eligibility assessment will look at various aspects including the stage of your disease, other health conditions, lifestyle and different factors that could put you at higher risk.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Lung Foundation Australia spoke with Craig Wood, about his road to his lung transplant. Craig was diagnosed with <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/other-lung-conditions\/alpha1-antitrypsin-deficiency\/\">Alpha-1 antitrypsin deficiency (AATD)<\/a>, a condition where the liver makes too little Alpha-1 antitrypsin. Craig shares what to expect from a lung transplant, and the importance of talking to others throughout the process.\u00a0<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 class=\"wp-block-heading\">How did you find out you needed a lung transplant?&nbsp;<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:image {\"align\":\"left\",\"id\":92387,\"width\":\"352px\",\"height\":\"auto\",\"aspectRatio\":\"0.9326171875\",\"sizeSlug\":\"large\",\"linkDestination\":\"none\"} -->\n<figure class=\"wp-block-image alignleft size-large is-resized\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2023\/11\/Craig-Wood-lung-transplant-1-955x1024.png\" alt=\"\" class=\"wp-image-92387\" style=\"aspect-ratio:0.9326171875;width:352px;height:auto\" \/><\/figure>\n<!-- \/wp:image -->\n\n<!-- wp:paragraph -->\n<p>I had a double lung transplant when I was 57.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\"My specialist had always said I would not be referred for a transplant until 'it effected my quality of life.' So, for many years I put up with the puffing and not being able to do any physical activity. This included walking upstairs, putting the bins out etc. During the years, my lung function dropped from 38% to 20%, this is when my quality of life was impacted.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 class=\"wp-block-heading\">How did you qualify for the transplant registry? &nbsp;<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>I was originally referred to The Alfred Hospital by my specialist in October 2017. After spending three days in The Alfred Hospital in Melbourne for a Lung Transplant Assessment I was given the approval for transplant in early March 2018.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>During the assessment you have many appointments to see many professionals: pharmacists, occupational therapists, transplant co-ordinator, anaesthetics review, dental clinic, dietician, physiotherapist, social worker and finally the CTHR surgeon.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>You will also be required to have the following tests: carotid duplex, Dexa scan, VQ scan, CT Thorax, spot urine test, fasting, lung function, BIA assessment, echocardiogram and provide many, many vials of blood.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Following the three-day assessment and prior to the next step you will be required to undergo an angiogram. Once the \u2018approval\u2019 has been given by the team, your blood is analysed in great detail by Lifeblood (Australian Red Cross Lifeblood) and results provided nationally for a compatible donor.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>From there it is the waiting game.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 class=\"wp-block-heading\">What happened once you were listed for a lung transplant?&nbsp;<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Once we were advised we were on the waiting list, my wife had a bag packed with the essentials. It was difficult not actually knowing when the call would come. I advised work and set up plans for my job share with others, the family and close friends were advised and then we waited...luckily not too long!<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 class=\"wp-block-heading\">&nbsp;How long did you wait until your lung transplant after you were on the registry?&nbsp;<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>In March 2018, my wife and I met with the family (we have three boys and a girl) and very close friends to advise them I was approved. Little did we know one week later we received the call and had the lung transplant.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Normally this quick lead is not the norm. I was told I could wait up to two years.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 class=\"wp-block-heading\">When you received the call to go in for your transplant, what was the process?&nbsp;<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>We received the call approx. 6:00am. My wife and I drove to hospital, went to the Alfred Hospital 5th floor ward and literally waited until 5:00pm. The confirmation from the lead doctor Professor Greg Snell advised the donor lungs were assessed and acceptable. The operation was to proceed. My children were also with us.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 class=\"wp-block-heading\">What are some things a caregiver should consider or be aware of during this process?&nbsp;<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>The nominated <a href=\"https:\/\/lungfoundation.com.au\/resources\/becoming-a-caregiver-for-a-loved-one\/\">caregiver<\/a> is really the lifeline for the patient not only for the recovery but the ongoing hospital trips. There is physio, blood tests and more hospital visits than you can imagine. For me my caregiver was my wife, so she not only said goodbye to me on the way to the operation but also, she was there when I woke up. And literally went through the whole process with me from the operation to the recovery. The caregiver's role is very much underestimated.\u00a0\u00a0<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 class=\"wp-block-heading\">Waking up after your lung transplant, how did you feel?&nbsp;<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>When I woke up, the first thing I noticed was the ventilator. I was quite scared. Once the ICU nurses removed the ventilator, I was amazed of the long breathe I could take in and exhale, more than I been able to do for years. There was no pain at this time due to the medication. I do remember being hooked up to many machines to monitor my vitals, heart, saturation levels etc. I spent 3 1\/2 days in the ICU. The care from the doctors and nurses was wonderful.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>From ICU to the ward. Followed by 12 weeks of rehab. I was very lucky; I was in hospital for just 12 days for my double lung transplant.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>I completed my gym attendance in eight weeks (instead of the normal 12 weeks). There were clinic visits every Monday. These involved seeing the doctors, lung function, blood pressure, oxygen stats, general recovery. Education sessions every Wednesday with my wife. These involved medications, food safety, occupational therapy, physio, social workers, carers meetings. These are compulsory meetings.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Medications are the most important of the recovery, there are a heap to get used to and the nurses provide education on what the meds are, what they provide the purpose of each and when to take them.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>You are provided with a Medication list which assists in identifying and providing notes on what they are for. You needed to know all of this to make up a daily and weekly supply prior to leaving the hospital \u2013 this is very important to understand and know.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 class=\"wp-block-heading\">What's life like after your lung transplant?&nbsp;<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:image {\"align\":\"right\",\"id\":92388,\"width\":\"308px\",\"height\":\"auto\",\"aspectRatio\":\"0.709483793517407\",\"sizeSlug\":\"full\",\"linkDestination\":\"none\"} -->\n<figure class=\"wp-block-image alignright size-full is-resized\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2023\/11\/Craig-Wood.1-3.png\" alt=\"\" class=\"wp-image-92388\" style=\"aspect-ratio:0.709483793517407;width:308px;height:auto\" \/><\/figure>\n<!-- \/wp:image -->\n\n<!-- wp:paragraph -->\n<p>I returned to full-time work three months after. To date besides one rejection in January 2020 which was treated quickly, I have had no setbacks.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>I did not realise the sacrifices my family had made. Now I can play with my grandchildren, travel more. I have now retired at 62 while my health is so good. Life is wonderful.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>It does take dedication after the lung transplant operation to ensure the success and the continued success in everything you do. From eating, getting out, exercise and work and you need to remember. This is a second chance of life\u2026. this is my story.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><strong>If you have had a lung transplant or caring for someone who has, join our online peer support group, established in collaboration with the <a href=\"https:\/\/www.lungitude.com.au\/\" target=\"_blank\" rel=\"noreferrer noopener\">Lungitude Foundation<\/a>. It is a place to share experiences and tips for managing the practical and emotional challenges of the lung transplant journey.&nbsp;<\/strong>&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:buttons -->\n<div class=\"wp-block-buttons\"><!-- wp:button {\"style\":{\"color\":{\"background\":\"#15873e\"}}} -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-background wp-element-button\" href=\"https:\/\/lungfoundation.com.au\/services\/lungitude-online-peer-support-network\/\" style=\"background-color:#15873e\">Expression of interest<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->","post_title":"What to expect from a lung transplant?\u00a0\u00a0","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"what-to-expect-from-a-lung-transplant","to_ping":"","pinged":"","post_modified":"2023-11-22 08:34:02","post_modified_gmt":"2023-11-21 22:34:02","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=article&#038;p=92382","menu_order":0,"post_type":"article","post_mime_type":"","comment_count":"0","filter":"raw"}]}]}},"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/article\/92403","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/article"}],"about":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/types\/article"}],"author":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/users\/651"}],"replies":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/comments?post=92403"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/media\/92739"}],"wp:attachment":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/media?parent=92403"}],"wp:term":[{"taxonomy":"condition","embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/condition?post=92403"},{"taxonomy":"user_category","embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/user_category?post=92403"},{"taxonomy":"article_category","embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/article_category?post=92403"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}