{"id":7260,"date":"2020-01-24T12:13:44","date_gmt":"2020-01-24T02:13:44","guid":{"rendered":"https:\/\/lungfoundation.com.au\/?page_id=7260"},"modified":"2023-01-12T14:22:03","modified_gmt":"2023-01-12T04:22:03","slug":"resources","status":"publish","type":"page","link":"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pah\/resources\/","title":{"rendered":"Resources"},"content":{"rendered":"","protected":false},"excerpt":{"rendered":"","protected":false},"author":85,"featured_media":88885,"parent":1376,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-7260","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v24.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Resources - Lung Foundation Australia<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pah\/resources\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Resources - Lung Foundation Australia\" \/>\n<meta property=\"og:url\" content=\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pah\/resources\/\" \/>\n<meta property=\"og:site_name\" content=\"Lung Foundation Australia\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/lungfoundation\/\" \/>\n<meta property=\"article:modified_time\" content=\"2023-01-12T04:22:03+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2022\/08\/PAH-Connect-to-Care_inner-banners.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1920\" \/>\n\t<meta property=\"og:image:height\" content=\"450\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:site\" content=\"@Lungfoundation\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pah\/resources\/\",\"url\":\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pah\/resources\/\",\"name\":\"Resources - Lung Foundation Australia\",\"isPartOf\":{\"@id\":\"https:\/\/lungfoundation.com.au\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pah\/resources\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pah\/resources\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2022\/08\/PAH-Connect-to-Care_inner-banners.jpg\",\"datePublished\":\"2020-01-24T02:13:44+00:00\",\"dateModified\":\"2023-01-12T04:22:03+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pah\/resources\/#breadcrumb\"},\"inLanguage\":\"en-AU\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pah\/resources\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-AU\",\"@id\":\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pah\/resources\/#primaryimage\",\"url\":\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2022\/08\/PAH-Connect-to-Care_inner-banners.jpg\",\"contentUrl\":\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2022\/08\/PAH-Connect-to-Care_inner-banners.jpg\",\"width\":1920,\"height\":450},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pah\/resources\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/lungfoundation.com.au\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Patients &amp; 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Medical information can be complex and difficult to understand. Our evidence-based resources will help you better understand your condition and the important steps you can take to improve your outcomes and wellbeing. Download a free resource pack or browse our resources below.","link":""},{"acf_fc_layout":"form","heading":"Resource pack","text":"Connect to care today. Complete the form below to access your FREE resource pack.","form":26},{"acf_fc_layout":"featured_posts_static","heading":"Blogs","view_more_link":"https:\/\/lungfoundation.com.au\/blog\/?condition=21","posts":[{"ID":89312,"post_author":"482","post_date":"2022-10-28 09:32:20","post_date_gmt":"2022-10-27 23:32:20","post_content":"<!-- wp:heading {\"level\":3} -->\n<h3><strong>Treatment options for Pulmonary Arterial Hypertension (PAH) can help slow the progression of the disease and improve symptoms. It is important to work with your specialist to create a treatment plan that is right for you.&nbsp;<\/strong>&nbsp;<\/h3>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>We spoke with Tracy Tse the respiratory pharmacy team leader at the Prince Charles Hospital about the different types of medications for PAH. Watch the <a href=\"https:\/\/lungfoundation.com.au\/resources\/webinar-medications-for-pulmonary-arterial-hypertension\/\" target=\"_blank\" rel=\"noreferrer noopener\">webinar video<\/a> or read more below.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading -->\n<h2><strong>Treatment goals for PAH&nbsp;<\/strong><\/h2>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p><a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pah\/overview\/\" target=\"_blank\" rel=\"noreferrer noopener\">Pulmonary Arterial Hypertension (PAH)<\/a> is caused by narrowing or blockage of the blood vessels (arteries) that carry blood from the heart to the lungs. This reduces the flow of blood and oxygen through the lungs which increases the pressure in these blood vessels. The heart needs to pump against the higher pressure to keep blood flowing through the lungs, making it harder for the heart to work. The goal of PAH medications is to prevent further damage to your pulmonary arteries and to improve <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pah\/symptoms\/\" target=\"_blank\" rel=\"noreferrer noopener\">symptoms<\/a>. In many people the medications also dilate the lung blood vessels to improve blood flow.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4><strong>Treatment options<\/strong>&nbsp;<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Everyone\u2019s disease is different, and treatment options will depend on the cause of PAH and the stage at which it is diagnosed. The treatment options for PAH have changed dramatically over the last ten years with the introduction of several new medications and treatments. Although there is currently no cure for this disease, it can often be well managed for many years with medications.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Ongoing monitoring of your condition is required, such as regular blood tests to monitor haemoglobin, liver function, heart stress (measured with BNP) and iron levels. As a progressive disease, PAH will generally worsen over time without treatment and so early diagnosis and treatment is important. Taking your treatment as prescribed can help slow disease progression and improve symptoms. Different treatments have different side effects.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>There are several different medicines that PAH patients can take to open up the blood vessels to the lungs and reduce the work for the heart. These are usually taken as tablets but can also be given by <a href=\"https:\/\/lungfoundation.com.au\/blog\/how-intravenous-medication-for-pah-works\/\" target=\"_blank\" rel=\"noreferrer noopener\">intravenous infusion<\/a> (into the vein) or breathed in as a mist (via an inhaler). Most people will be prescribed more than one medicine because combination therapy is more effective.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><strong>Prostacyclins<\/strong>&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Prostacyclins help the blood vessels relax by mimicking prostaglandin, a substance in the blood that is often low in PAH patients. Treatments in this group include epoprostenol and iloprost.&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><li><strong>Epoprostenol: <\/strong>given as a continuous drip into the vein.&nbsp;&nbsp;<\/li><li><strong>Iloprost<\/strong>: taken through a nebuliser and breathed in five or six times a day.&nbsp;<\/li><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:paragraph -->\n<p><strong>Endothelin receptor antagonists (ERAs)<\/strong>&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>People with PAH have too much endothelin in their blood. ERAs block endothelin, a substance that helps the blood vessels constrict. Medications in this group are: macitentan, bosentan and ambrisentan. These tablets are taken every day.&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><strong>Phosphodiesterase type five (PDE-5) inhibitors<\/strong>&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>PDE-5 inhibitors allow the lungs to make more of their own natural vasodilators, which relax the blood vessels and allow more blood to flow. These treatments include sildenafil and tadalafil which are taken every day.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><strong>Soluble guanylate cyclase stimulators (sGC stimulators)<\/strong>&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>sGC stimulators help in chemical reactions that improve blood flow in the lungs. This type of treatment includes a tablet called riociguat.&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><strong>Supportive therapy:<\/strong>&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Other medications can be used as supportive medications, and may include fluid tablets, blood thinners and medications to help relieve symptoms.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><strong>Diuretics<\/strong>&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>If the patient has fluid retention, diuretics remove excessive fluid. It is important to continue adhering to the food and salt restriction to make sure that it works effectively. Some of the examples include frusemide, bumetanide, or spironolactone.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><strong>Iron Supplements<\/strong>&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>A lot of people living with PAH have an iron deficiency which can reduce exercise capacity. Iron study is recommended every six months.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><strong>Calcium channel blocker&nbsp;<\/strong>&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Only a small amount of people with PAH will need calcium channel blockers. These drugs help encourage more blood flow by relaxing blood vessel walls. Options can include Amlodipine and nifedipine.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><em>If you would like information and support on PAH <\/em><a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pah\/overview\/\" target=\"_blank\" rel=\"noreferrer noopener\"><em>click here<\/em><\/a><em> or phone freecall 1800 654 301.<\/em>&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><strong>Please note: the information in this blog is of general nature only. Speak to your treating healthcare team for specific advice on your health and wellbeing.<\/strong>&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:gravityforms\/form {\"formId\":\"14\",\"formPreview\":false} \/-->","post_title":"Medications for PAH","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"medications-for-pah","to_ping":"","pinged":"","post_modified":"2022-10-28 10:14:14","post_modified_gmt":"2022-10-28 00:14:14","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=article&#038;p=89312","menu_order":0,"post_type":"article","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":86829,"post_author":"12","post_date":"2022-06-21 11:31:37","post_date_gmt":"2022-06-21 01:31:37","post_content":"<!-- wp:paragraph -->\n<p>It\u2019s a term you may have heard, but what does \u2018holistic care\u2019 for <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pah\/overview\/\">Pulmonary Arterial Hypertension<\/a> (PAH) really mean? The <a href=\"https:\/\/lungfoundation.com.au\/resources\/pah-patient-charter\/\">PAH Patient Charter<\/a> \u2013 a document that outlines the standards of care the you should expect to receive for PAH \u2013 says your healthcare team should direct you to information and support services that will help you and your family live well PAH. So, other than your PAH specific <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pah\/treatment\/\">treatment<\/a> and care, what support do you need to live your best life?<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>We spoke with Professor Susanna Proudman to understand more about what holistic care is, what you should expect from your ongoing care and what steps you can take if you feel you're not getting the most out of your treatment and care. Watch the video or read on below.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:embed {\"url\":\"https:\/\/www.youtube.com\/watch?v=IP56mC9VbA0\\u0026amp;t=85s\",\"type\":\"video\",\"providerNameSlug\":\"youtube\",\"responsive\":true,\"className\":\"wp-embed-aspect-16-9 wp-has-aspect-ratio\"} -->\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\nhttps:\/\/www.youtube.com\/watch?v=IP56mC9VbA0&amp;t=85s\n<\/div><\/figure>\n<!-- \/wp:embed -->\n\n<!-- wp:heading {\"level\":3} -->\n<h3>What is holistic care for PAH?<\/h3>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Prof Proudman says PAH care is delivered by a <a href=\"https:\/\/lungfoundation.com.au\/blog\/pah-and-your-healthcare-team-2\/\">team of people<\/a> who have a range of skills and roles to play to ensure that you receive the best available care and have the best possible outcome. Holistic care is a term that describes care that takes into account every aspect of your disease and you and your needs in total, so that you are right at the centre of the management plan. It also means including you in the team so that your healthcare professionals listen to your preferences, and for decisions about your therapy to be shared between you and your health professionals. They will also direct you towards the right information and the support services that you need for you and your family and carers, need to live well.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":3} -->\n<h3>Who should be involved in my treatment and care?<\/h3>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>There is a whole range of different healthcare professionals involved in your care to ensure you're getting holistic care for PAH. You'd expect them to all cooperate and to communicate effectively with you and with each other, and that they will then check in with you from time to time to see how you're feeling about your PAH and your treatment.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Prof Proudman says the first thing that is really one of the important steps in the management of PAH, that underpins the chances of getting the best outcome, is timely diagnosis. You\u2019ll likely meet a range of health professionals and undergo a range of tests on this part of your journey. Sometimes these tests aren't conducted in a specialist PAH treatment centre.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:media-text {\"mediaId\":85760,\"mediaLink\":\"https:\/\/lungfoundation.com.au\/get-involved\/campaigns\/2022-federal-election-priorities\/indian-businesswoman-speaking-consulting-client-at-business-office-meeting\/\",\"mediaType\":\"image\"} -->\n<div class=\"wp-block-media-text alignwide is-stacked-on-mobile\"><figure class=\"wp-block-media-text__media\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2022\/02\/iStock-1139873768-1024x683.jpg\" alt=\"\" class=\"wp-image-85760 size-full\" \/><\/figure><div class=\"wp-block-media-text__content\"><!-- wp:paragraph -->\n<p>If a diagnosis of PAH is suspected and confirmed, you should expect that you would be referred to one. You would then meet a whole multidisciplinary team that includes:<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><li>Cardiologists<\/li><li>Respiratory physicians<\/li><li>Rheumatologists if you have one of the rheumatic diseases associated with Pulmonary Hypertension.<\/li><li>Nurses<\/li><li>Physiotherapists<\/li><li>Psychologists.<\/li><\/ul>\n<!-- \/wp:list --><\/div><\/div>\n<!-- \/wp:media-text -->\n\n<!-- wp:heading {\"level\":3} -->\n<h3>What will my ongoing care for PAH look like?<\/h3>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Prof Proudman says there are things in life that you might need some specific and expert advice about, or maybe some further investigations to enable you to do things safely. This will be different for every individual but holistic care for PAH could include things like:<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><li><a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/after-your-diagnosis-title\/eating-well\/\">Nutrition<\/a><\/li><li><a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/lung-disease-and-exercise\/\">Exercise<\/a><\/li><li>Some people may wish to conceive and have a family<\/li><li>Contraception and avoidance of pregnancy may be an important topic to discuss with your doctors.<\/li><li>Career<\/li><li>Financial planning<\/li><li>Travel<\/li><li>Social benefits you might be eligible to receive such as disability support pensions, or even the NDIS<\/li><li><a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support-and-palliative-care\/\">Palliative care<\/a>.<\/li><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:heading {\"level\":3} -->\n<h3>What if I feel I'm not getting what I need out of my care?<\/h3>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>If you have questions that you don't think are being answered, write them down and take them in to your doctor or nurse when you have your next appointment. It can be helpful to take somebody with you so that they can remind you of things that have been troubling you and help you remember the answers to your questions.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:media-text {\"mediaPosition\":\"right\",\"mediaId\":15105,\"mediaLink\":\"https:\/\/lungfoundation.com.au\/lung-foundation-australia\/istock-627779994-scaled\/\",\"mediaType\":\"image\"} -->\n<div class=\"wp-block-media-text alignwide has-media-on-the-right is-stacked-on-mobile\"><figure class=\"wp-block-media-text__media\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/04\/iStock-627779994-scaled-1-1024x683.jpg\" alt=\"\" class=\"wp-image-15105 size-full\" \/><\/figure><div class=\"wp-block-media-text__content\"><!-- wp:paragraph -->\n<p>There are also patient associations or patient organisations, like <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Lung Foundation Australia<\/a>, that can provide you with guidance on the type of care that you should be receiving, as well as some of the more practical issues, such as what social benefits might be available too. They can also provide you with the opportunity to speak to other people living with PAH through <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/peer-support\/peer-connect\/\">support group<\/a> programs.<\/p>\n<!-- \/wp:paragraph --><\/div><\/div>\n<!-- \/wp:media-text -->","post_title":"What is holistic care for PAH?","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"what-is-holistic-care-for-pah","to_ping":"","pinged":"","post_modified":"2022-07-27 11:46:16","post_modified_gmt":"2022-07-27 01:46:16","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=article&#038;p=86829","menu_order":0,"post_type":"article","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":84984,"post_author":"12","post_date":"2021-11-12 16:51:27","post_date_gmt":"2021-11-12 06:51:27","post_content":"<!-- wp:paragraph -->\n<p>Developed by&nbsp;healthcare professionals, patient advocacy groups and patients&nbsp;themselves,&nbsp;the&nbsp;<a href=\"https:\/\/lungfoundation.com.au\/resources\/pah-patient-charter\/\" target=\"_blank\" rel=\"noreferrer noopener\">Pulmonary Arterial Hypertension (PAH)&nbsp;Patient Charter<\/a>&nbsp;is&nbsp;a useful&nbsp;guideline that&nbsp;helps&nbsp;you&nbsp;understand what to expect from your diagnosis, treatment and care, including:&nbsp;&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><li>a timely and accurate diagnosis;&nbsp;<\/li><li>healthcare professionals to listen to your preferences and involve you in decisions about care and treatment;&nbsp;<\/li><li>regular checkups&nbsp;and&nbsp;an&nbsp;understanding about the&nbsp;full range of available evidence-based treatment options;&nbsp;<\/li><li>access to holistic care and social support.&nbsp;&nbsp;<\/li><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:paragraph -->\n<p>You can download a copy of the PAH Patient Charter in our free PAH resource pack. Developed with clinical experts, this pack contains a range of resources and information on self-management, exercise, peer support and mental health.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:buttons {\"contentJustification\":\"center\"} -->\n<div class=\"wp-block-buttons is-content-justification-center\"><!-- wp:button {\"className\":\"is-style-fill\"} -->\n<div class=\"wp-block-button is-style-fill\"><a class=\"wp-block-button__link\" href=\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pah\/resources\/\" target=\"_blank\" rel=\"noreferrer noopener\">Download your free PAH resource pack<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:quote -->\n<blockquote class=\"wp-block-quote\"><p>PAH is a&nbsp;progressive&nbsp;condition driven by a type of high blood pressure that impacts the arteries in the lungs and heart.&nbsp;As&nbsp;a&nbsp;relatively rare condition,&nbsp;only select health professionals&nbsp;have a complex understanding&nbsp;or&nbsp;awareness of&nbsp;PAH,&nbsp;particularly as symptoms mirror&nbsp;more&nbsp;common conditions like asthma or Chronic&nbsp;Obstructive Pulmonary Disease.&nbsp;Due to the rarity,&nbsp;even in countries with developed healthcare systems,&nbsp;it can take an average of two years&nbsp;for patients with PAH to&nbsp;receive&nbsp;a formal diagnosis.&nbsp;<\/p><\/blockquote>\n<!-- \/wp:quote -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:heading -->\n<h2>Timely and accurate diagnosis&nbsp;&nbsp;<\/h2>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Whilst PAH has relatively low awareness among health professionals and the public, and <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pah\/diagnosis\/\" target=\"_blank\" rel=\"noreferrer noopener\">diagnosis<\/a> may not be imminent upon symptom onset,&nbsp;patients should expect to receive a timely diagnosis within less than the two-year average.&nbsp;If you are suspected to have PAH, it is the expectation that you&nbsp;should be offered tests in line with the PAH diagnostic guidelines. These tests include an echocardiogram, a ventilation\/perfusion scan, computed&nbsp;tomography pulmonary angiography&nbsp;and a right heart catheterization.&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading -->\n<h2>Involvement in treatment decisions&nbsp;<\/h2>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>If you are diagnosed with PAH, it is expected that your healthcare professional informs you of the types of <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pah\/treatment\/\" target=\"_blank\" rel=\"noreferrer noopener\">treatment<\/a> available so that you can make an educated&nbsp;and informed&nbsp;decision about your care plan.&nbsp;The PAH Patient Charter helps you understand&nbsp;how to have these&nbsp;conversations&nbsp;throughout this phase of diagnosis to aid multidisciplinary symptom management&nbsp;and&nbsp;holistic or <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support-and-palliative-care\/\" target=\"_blank\" rel=\"noreferrer noopener\">palliative care<\/a>&nbsp;to&nbsp;help support you and your loved ones.&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading -->\n<h2>Regular health assessment and understanding of&nbsp;treatment options&nbsp;<\/h2>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>As PAH is a progressive condition, it is important to understand that a regular health assessment should be completed by your healthcare team to ensure symptom management. When discussing the treatment options available&nbsp;to you, your healthcare professional should&nbsp;explain why they are recommending a particular medicine,&nbsp;including&nbsp;the benefits risks,&nbsp;and&nbsp;any side-effects.&nbsp;&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading -->\n<h2>Care and social support&nbsp;&nbsp;<\/h2>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>A holistic approach to a PAH diagnosis is important to ensure you live well. When discussing your PAH care plan with your healthcare professional,&nbsp;you should expect your doctor to direct you towards support services to&nbsp;also care for your <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/after-your-diagnosis-title\/mental-health\/\" target=\"_blank\" rel=\"noreferrer noopener\">mental health<\/a> and emotional wellbeing, as well&nbsp;guidance on physical activity, nutrition, family planning and more.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:columns {\"verticalAlignment\":\"top\"} -->\n<div class=\"wp-block-columns are-vertically-aligned-top\"><!-- wp:column {\"verticalAlignment\":\"top\",\"width\":\"100%\"} -->\n<div class=\"wp-block-column is-vertically-aligned-top\" style=\"flex-basis:100%\"><!-- wp:cover {\"customOverlayColor\":\"#ffffff\",\"contentPosition\":\"center center\",\"align\":\"full\"} -->\n<div class=\"wp-block-cover alignfull has-background-dim\" style=\"background-color:#ffffff\"><div class=\"wp-block-cover__inner-container\"><!-- wp:media-text {\"mediaId\":84435,\"mediaLink\":\"https:\/\/lungfoundation.com.au\/health-professionals\/clinical-information\/pulmonary-rehabilitation\/pr-toolkit\/assessment-icon-2\/\",\"mediaType\":\"image\",\"mediaWidth\":56,\"verticalAlignment\":\"center\",\"imageFill\":true} -->\n<div class=\"wp-block-media-text alignwide is-stacked-on-mobile is-vertically-aligned-center is-image-fill\" style=\"grid-template-columns:56% auto\"><figure class=\"wp-block-media-text__media\" style=\"background-image:url(https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/09\/Assessment-icon-2.png);background-position:50% 50%\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/09\/Assessment-icon-2.png\" alt=\"\" class=\"wp-image-84435 size-full\" \/><\/figure><div class=\"wp-block-media-text__content\"><!-- wp:heading {\"style\":{\"typography\":{\"fontSize\":\"32px\"},\"color\":{\"text\":\"#000000\"}}} -->\n<h2 class=\"has-text-color\" style=\"color:#000000;font-size:32px\"><strong>Download a free PAH resource pack<\/strong><\/h2>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph {\"style\":{\"typography\":{\"fontSize\":\"17px\"},\"color\":{\"text\":\"#000000\"}}} -->\n<p class=\"has-text-color\" style=\"color:#000000;font-size:17px\">Being diagnosed with a rare lung disease like PAH can be overwhelming and isolating. In collaboration with clinical experts, we've developed a resource pack to help you better understand your condition and the important steps you can take to live well - from self-management strategies and exercise maintenance programs to peer support and looking after your mental wellbeing.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:buttons -->\n<div class=\"wp-block-buttons\"><!-- wp:button {\"className\":\"is-style-fill\"} -->\n<div class=\"wp-block-button is-style-fill\"><a class=\"wp-block-button__link\" href=\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pah\/resources\/\" target=\"_blank\" rel=\"noreferrer noopener\">Download resources here<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons --><\/div><\/div>\n<!-- \/wp:media-text --><\/div><\/div>\n<!-- \/wp:cover --><\/div>\n<!-- \/wp:column --><\/div>\n<!-- \/wp:columns -->","post_title":"What is the PAH Patient Charter?","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"what-is-the-pah-patient-charter","to_ping":"","pinged":"","post_modified":"2022-02-11 10:36:53","post_modified_gmt":"2022-02-11 00:36:53","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=article&#038;p=84984","menu_order":0,"post_type":"article","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"Management resources","view_more_link":"","posts":[{"ID":175,"post_author":"3","post_date":"2018-09-04 15:00:50","post_date_gmt":"2018-09-04 05:00:50","post_content":"<!-- wp:paragraph -->\n<p>Living well with Pulmonary Arterial Hypertension is designed for people living with Pulmonary Arterial Hypertension (PAH). The booklet provides an overview of PAH, diagnosis and treatments well as self-management strategies to help you stay well. Topics discussed in the Living well with PAH book include:<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul class=\"wp-block-list\"><!-- wp:list-item -->\n<li>Symptoms<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Diagnosis<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Treatment<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Quitting smoking<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Diet<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Exercise<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Pulmonary Rehabilitation<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Vaccinations<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Mental health<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Contraception.<\/li>\n<!-- \/wp:list-item --><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:paragraph -->\n<p>If you would like to learn more about these topics watch our Live Well, Breathe Better series <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/webinars\/\">here <\/a>or contact Lung Foundation Australia's <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information and Support Centre<\/a> on <a href=\"tel:1800 654 301\">1800 654 301<\/a>.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><\/p>\n<!-- \/wp:paragraph -->","post_title":"Living With Pulmonary Arterial Hypertension","post_excerpt":"Living well with Pulmonary Arterial Hypertension booklet provides a detailed overview of the condition and how to best manage it in accordance with the latest evidence.","post_status":"publish","comment_status":"open","ping_status":"closed","post_password":"","post_name":"better-living-with-pah-booklet","to_ping":"","pinged":"","post_modified":"2025-03-18 14:54:18","post_modified_gmt":"2025-03-18 04:54:18","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=175","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":16323,"post_author":"85","post_date":"2021-04-28 12:17:26","post_date_gmt":"2021-04-28 02:17:26","post_content":"<!-- wp:paragraph -->\n<p>The Pulmonary Arterial Hypertension (PAH) Patient Charter outlines the standards of holistic care that everyone with PAH should expect to receive. It is based on international guidelines for the diagnosis and treatment of PAH and has been developed by patients, patient advocacy group representatives and healthcare professionals. It is hoped the Charter will help people with PAH, their carers and their healthcare team to:<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><li>Communicate effectively with each other<\/li><li>Make decisions together<\/li><li>Agree on a care plan that is appropriate for you. <\/li><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:paragraph -->\n<p>To learn more about these topics contact Lung Foundation Australia\u2019s&nbsp;<a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information and Support Centre<\/a>&nbsp;<a href=\"tel:1800 654 301\">1800 654 301<\/a>.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Pulmonary Arterial Hypertension Patient Charter","post_excerpt":"The PAH Patient Charter outlines the standards of holistic care that everyone with PAH should expect to receive.","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"pah-patient-charter","to_ping":"","pinged":"","post_modified":"2021-05-06 11:06:33","post_modified_gmt":"2021-05-06 01:06:33","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=16323","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"Webinar ","view_more_link":"https:\/\/lungfoundation.com.au\/resources\/?condition=21&amp;user_category=31&amp;resource_type=239","posts":[{"ID":89118,"post_author":"482","post_date":"2022-10-05 15:54:45","post_date_gmt":"2022-10-05 05:54:45","post_content":"<!-- wp:paragraph -->\n<p>In this video, Zuzana Doneley (Clinical Nurse Pulmonary Hypertension, RBWH) shares her expert knowledge on transitioning to oxygen therapy. She answers commonly asked questions about what oxygen therapy is, the different types of oxygen devices, the application process, the benefits and disadvantages of oxygen therapy, and more.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><br>For further information contact our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\" target=\"_blank\" rel=\"noreferrer noopener\">Information and Support Centre<\/a> on <a href=\"tel:1800654301\" target=\"_blank\" rel=\"noreferrer noopener\">1800 654 301<\/a>.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><a href=\"https:\/\/www.youtube.com\/user\/thelungfoundation\"><\/a><\/p>\n<!-- \/wp:paragraph -->","post_title":"Pulmonary Arterial Hypertension: Transitioning to Oxygen","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"pulmonary-arterial-hypertension-transitioning-to-oxygen","to_ping":"","pinged":"","post_modified":"2022-10-27 13:42:19","post_modified_gmt":"2022-10-27 03:42:19","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=89118","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":89283,"post_author":"482","post_date":"2022-10-27 13:31:00","post_date_gmt":"2022-10-27 03:31:00","post_content":"<!-- wp:paragraph -->\n<p>In this video, Dr Hayley Barnes (Respiratory Physician, Alfred Health) answers commonly asked questions about PH, PAH &amp; CTEPH.\u00a0<\/p>\n<!-- \/wp:paragraph -->","post_title":"PH, PAH &amp; CTEPH: Diagnoses &amp; Differences","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"ph-pah-cteph-diagnoses-differences","to_ping":"","pinged":"","post_modified":"2022-10-27 13:43:06","post_modified_gmt":"2022-10-27 03:43:06","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=89283","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":3860,"post_author":"85","post_date":"2018-10-11 13:48:36","post_date_gmt":"2018-10-11 03:48:36","post_content":"<!-- wp:paragraph -->\n<p>Join Lung Foundation Australia, Helen Seale (Clinical Consultant Physiotherapist) and Shauna Watt (patient) for our Exercise and Pulmonary Arterial Hypertension (PAH) webinar. The webinar explains PAH and the evidence for the benefits of exercise for people living with PAH. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>For further information about PAH you can access our Living with PAH booklet <a href=\"https:\/\/lungfoundation.com.au\/resources\/?user_category=31&amp;search=living%20with%20PAH\">here <\/a>or contact our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information and Support Centre<\/a> on <a href=\"Tel: 1800 654 301\">1800 654 301.<\/a><\/p>\n<!-- \/wp:paragraph -->","post_title":"Exercise and PAH","post_excerpt":"In this webinar, Helen Seale (Physiotherapist) and Shauna Watt (patient) discuss the importance of exercise for people living with Pulmonary Arterial Hypertension (PAH).  ","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"webinar-exercise-and-pah","to_ping":"","pinged":"","post_modified":"2021-03-16 14:45:39","post_modified_gmt":"2021-03-16 04:45:39","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=3860","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"Exercise resources ","view_more_link":"https:\/\/lungfoundation.com.au\/resources\/?condition=21&amp;user_category=31&amp;search=Exercise","posts":[{"ID":641,"post_author":"3","post_date":"2018-09-11 11:27:03","post_date_gmt":"2018-09-11 01:27:03","post_content":"<!-- wp:paragraph -->\n<p>The Pulmonary Rehabilitation fact sheet provides an overview of what pulmonary rehabilitation is, and also covers topics including:<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><!-- wp:list-item -->\n<li>Who can attend<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>What the benefits are<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>What is involved in the program<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>What topics are discussed<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Safety in pulmonary rehabilitation<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>How pulmonary rehabilitation will help<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>What comes after pulmonary rehabilitation<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>How to access a program.<\/li>\n<!-- \/wp:list-item --><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:paragraph -->\n<p>You can find your local pulmonary rehabilitation program on our website <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/lung-disease-and-exercise\/pulmonary-rehabilitation\/\">here<\/a>. For other exercise resources you can visit our website <a href=\"https:\/\/lungfoundation.com.au\/resources\/?search=exercise\">here<\/a>.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Pulmonary Rehabilitation","post_excerpt":"The Pulmonary Rehabilitation fact sheet provides an overview explaining pulmonary rehabilitation and its benefits.","post_status":"publish","comment_status":"open","ping_status":"closed","post_password":"","post_name":"pulmonary-rehabilitation-fact-sheet","to_ping":"","pinged":"","post_modified":"2023-08-30 15:23:09","post_modified_gmt":"2023-08-30 05:23:09","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=641","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":271,"post_author":"3","post_date":"2018-09-05 11:45:40","post_date_gmt":"2018-09-05 01:45:40","post_content":"<!-- wp:paragraph -->\n<p>Ian has Chronic Obstructive Pulmonary Disease (COPD). In this video he provides insight on his experience with pulmonary rehabilitation. Pulmonary Rehabilitation is a six to eight week exercise and education program that teaches you the skills you need to exercise safely and manage breathlessness. <br><br>To learn more about these programs and find one near you visit our website <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/lung-disease-and-exercise\/pulmonary-rehabilitation\/\">here<\/a>, alternatively you can contact our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information and Support Centre<\/a> on <a href=\"tel:1800 654 301\">1800 654 301<\/a>.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Pulmonary Rehabilitation: A patient's point of view","post_excerpt":"Meet Ian who has Chronic Obstructive Pulmonary Disease (COPD). Hear Ian's experience with Pulmonary Rehabilitation   and how much it helped him. ","post_status":"publish","comment_status":"open","ping_status":"closed","post_password":"","post_name":"pulmonary-rehabilitation-a-patients-point-of-view","to_ping":"","pinged":"","post_modified":"2021-03-17 14:10:14","post_modified_gmt":"2021-03-17 04:10:14","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=271","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":9830,"post_author":"85","post_date":"2020-08-11 09:57:50","post_date_gmt":"2020-08-10 23:57:50","post_content":"<!-- wp:paragraph -->\n<p>Exercise Physiologist, Emma is hosting an at-home exercise series to help you maintain movement. <br><br>The series will take you step-by-step through simple exercises that can be completed at home with objects found around the house. Emma will take you through exercise routines in multiple settings including: the home, park, kitchen and desk. <br><br>Before commencing any of these exercises it is recommended to read our Exercise Safety Guidelines found <a href=\"https:\/\/lungfoundation.com.au\/resources\/?user_category=31&amp;search=exercise%20safety%20guidelines\">here <\/a>and discuss exercise with your treating healthcare professional or accredited exercise professional.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Maintaining Movement (Playlist)","post_excerpt":"We are hosting an at-home exercise series to help you maintain movement. The series will take you step-by step through exercises using minimal or no equipment.","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"maintaining-movement","to_ping":"","pinged":"","post_modified":"2021-03-16 13:52:31","post_modified_gmt":"2021-03-16 03:52:31","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=9830","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"Videos","view_more_link":"https:\/\/lungfoundation.com.au\/resources\/?condition=21&amp;user_category=31&amp;resource_type=236","posts":[{"ID":85046,"post_author":"12","post_date":"2021-11-19 13:58:55","post_date_gmt":"2021-11-19 03:58:55","post_content":"<!-- wp:paragraph -->\n<p>In this video Cardiologist A\/Prof Rachael Cordina discuss the treatment options currently available for Pulmonary Arterial Hypertension (PAH) and the difference between monotherapy versus combination therapy. The PAH Patient Charter outlines the standards of holistic care that you should expect to receive. This includes your healthcare team listening to your preferences and involving you in decision-making, and being informed of the full range of evidence-based treatment options available to you.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Lung Foundation Australia offers resources, information, support services and programs for people living with PAH and Pulmonary Hypertension. You can download a free resource and information pack via the website <a href=\"\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pah\/resources\/\" target=\"_blank\" rel=\"noreferrer noopener\">here<\/a>.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Treatment options for Pulmonary Arterial Hypertension","post_excerpt":"In this video Cardiologist A\/Prof Rachael Cordina discuss the treatment options currently available for Pulmonary Arterial Hypertension (PAH) and the difference between monotherapy versus combination therapy.","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"treatment-options-for-pulmonary-arterial-hypertension","to_ping":"","pinged":"","post_modified":"2021-11-19 14:05:05","post_modified_gmt":"2021-11-19 04:05:05","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=85046","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":85045,"post_author":"12","post_date":"2021-11-19 13:54:27","post_date_gmt":"2021-11-19 03:54:27","post_content":"<!-- wp:paragraph -->\n<p>In this video Cardiologist A\/Prof Rachael Cordina discuss the importance of being involved in making decisions about your Pulmonary Arterial Hypertension (PAH) treatment and how to advocate for yourself to ensure your preferences and needs are heard. The PAH Patient Charter outlines the standards of holistic care that you should expect to receive. This includes your healthcare team listening to your preferences and involving you in decision-making, and being informed of the full range of evidence-based treatment options available to you. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Lung Foundation Australia offers resources, information, support services and programs for people living with PAH and Pulmonary Hypertension. You can download a free resource and information pack, which includes the PAH Patient Charter, via the website <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pah\/resources\/\" target=\"_blank\" rel=\"noreferrer noopener\">here<\/a>.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Making decisions about your Pulmonary Arterial Hypertension treatment","post_excerpt":"In this video Cardiologist A\/Prof Rachael Cordina discuss the importance of being involved in the making decisions about your Pulmonary Arterial Hypertension (PAH) treatment and how to advocate for yourself to ensure your preferences and needs are heard. ","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"making-decisions-about-your-pulmonary-arterial-hypertension-treatment","to_ping":"","pinged":"","post_modified":"2022-02-10 14:41:41","post_modified_gmt":"2022-02-10 04:41:41","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=85045","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":85059,"post_author":"112","post_date":"2021-11-24 14:06:28","post_date_gmt":"2021-11-24 04:06:28","post_content":"<!-- wp:paragraph -->\n<p>In this interactive session, our Lived Experience Panel answer questions from the community and share their strategies for living their best life with Pulmonary Arterial Hypertension (PAH). <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Our panelists discuss: <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><li>Managing with co-mordities and other health concerns<\/li><li>How to talk about their PAH with family and loved ones<\/li><li>How they cope with treatment side effects<\/li><\/ul>\n<!-- \/wp:list -->","post_title":"Life with Pulmonary Arterial Hypertension treatment","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"life-with-pulmonary-arterial-hypertension-treatment-webinar","to_ping":"","pinged":"","post_modified":"2021-11-29 11:41:30","post_modified_gmt":"2021-11-29 01:41:30","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=85059","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"Community stories ","view_more_link":"","posts":[{"ID":12110,"post_author":"85","post_date":"2021-01-12 11:12:39","post_date_gmt":"2021-01-12 01:12:39","post_content":"<!-- wp:heading {\"textAlign\":\"center\",\"level\":3} -->\n<h3 class=\"has-text-align-center\">For Tegan, research means&nbsp;longer life expectancy,&nbsp;more effective treatments and to one day find a cure.&nbsp;<\/h3>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Aged&nbsp;just five,&nbsp;Tegan&nbsp;was diagnosed with Pulmonary Arterial Hypertension.&nbsp;Her heart was roughly the size of an adult male athlete.&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Her&nbsp;mum was told her daughter&nbsp;had five years to live.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Tegan&nbsp;had been&nbsp;suffering seizures, losing&nbsp;consciousness.&nbsp;Shortly after, she developed a persistent cough that would not go away.&nbsp;\u201cWith my doctor finally deciding to send me for an X-ray, it became apparent all too quickly that something major was wrong,\u201d she says.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Five years later,&nbsp;aligning&nbsp;with&nbsp;her doctor\u2019s&nbsp;timeline, Tegan\u2019s symptoms began to worsen.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:quote -->\n<blockquote class=\"wp-block-quote\"><p><strong><em>I deteriorated so much that I was placed on the heart\/lung transplant waiting list. My seizure activity increased dramatically&nbsp;\u2026&nbsp;I was placed on oxygen and used a wheelchair for all activities outside the house.<\/em><\/strong><em>&nbsp;<\/em><\/p><\/blockquote>\n<!-- \/wp:quote -->\n\n<!-- wp:paragraph -->\n<p>Pulmonary Arterial Hypertension (PAH) is a progressive disease caused by narrowing or tightening of the pulmonary arteries that connect to the right side of the heart to the lungs.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>When&nbsp;a new medication became available,&nbsp;it was&nbsp;effectively&nbsp;Tegan\u2019s&nbsp;last option while&nbsp;she&nbsp;waited for a transplant.&nbsp;It&nbsp;meant&nbsp;inserting&nbsp;a permanent line into&nbsp;her&nbsp;heart to deliver medication&nbsp;frequently;&nbsp;she\u202fwould have to carry around a pump and\u202fher\u202fmum and\u202fher\u202ffriends\u202fwould\u202fhave to\u202fhelp\u202fher take the\u202fcomplicated medication\u202fevery day.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>But within a month, she saw dramatic&nbsp;changes. The right side of&nbsp;her&nbsp;heart returned to normal,&nbsp;Tegan could&nbsp;walk more&nbsp;unhindered&nbsp;and&nbsp;she&nbsp;eventually&nbsp;came off oxygen, no longer&nbsp;needing&nbsp;a \u201ctruckload\u201d of medications.&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Now 31 and working as a full-time nurse, Tegan exercises&nbsp;regularly and&nbsp;can&nbsp;enjoy her hobby \u2026 travel.&nbsp;She has travelled solo for three months across Europe and Scandinavia during winter, taking with her three&nbsp;months\u2019 supply of medications and supplies weighing&nbsp;60kgs.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><strong>For&nbsp;Tegan, research means&nbsp;more effective treatments and&nbsp;hope of a cure&nbsp;one day.&nbsp;<\/strong>&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cMy life requires planning and preparation more so than most, but I make it work.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cWhen I was a child, my prognosis was poor, no longer than five years. Technology and medicine keep advancing, improving my chance of long-term survival \u2026 it\u2019s now been (almost) 25 years since my diagnosis.\u201d&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Tegan&nbsp;is thankful&nbsp;for what research&nbsp;has been able to do for her&nbsp;condition but&nbsp;hopes that more research can provide more stability and certainty for the future.&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"textAlign\":\"center\",\"style\":{\"color\":{\"text\":\"#45b749\"}}} -->\n<h2 class=\"has-text-align-center has-text-color\" id=\"block-978d7c46-dc0b-4961-84e4-6811968526df\" style=\"color:#45b749\">Research saves lives and gives hope for a cure.<br><strong>Give hope. Give to research today<\/strong>.<\/h2>\n<!-- \/wp:heading -->\n\n<!-- wp:buttons {\"align\":\"center\"} -->\n<div class=\"wp-block-buttons aligncenter\"><!-- wp:button {\"style\":{\"color\":{\"background\":\"#45b749\"}}} -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-background\" href=\"https:\/\/lungfoundation.com.au\/donate\/\" style=\"background-color:#45b749\">Donate today<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:media-text {\"mediaId\":12521,\"mediaLink\":\"https:\\\/\\\/lungfoundation.com.au\\\/stories\\\/ethans-story\\\/oyo200924_30-reasons_afaf-and-elizabeth_outro-thumbnail-small\\\/\",\"mediaType\":\"image\"} -->\n<div class=\"wp-block-media-text alignwide is-stacked-on-mobile\"><figure class=\"wp-block-media-text__media\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2020\/10\/OYO200924_30-Reasons_Afaf-and-Elizabeth_Outro-Thumbnail-small-1024x576.jpg\" alt=\"\" class=\"wp-image-12521 size-full\" \/><\/figure><div class=\"wp-block-media-text__content\"><!-- wp:heading {\"level\":4} -->\n<h4>30 Reasons for Research<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>In celebration of our 30th anniversary,&nbsp;we are highlighting 30 Reasons to donate to life-changing lung disease and lung cancer research.&nbsp;For the millions of Australians impacted by lung disease and lung cancer, research means more precious moments with loved ones, a chance to experience their&nbsp;next life milestone, and independence to do&nbsp;the&nbsp;day-to-day activities that many of us take for granted.&nbsp;<\/p>\n<!-- \/wp:paragraph --><\/div><\/div>\n<!-- \/wp:media-text -->\n\n<!-- wp:heading {\"textAlign\":\"center\",\"level\":5} -->\n<h5 class=\"has-text-align-center\"><strong><span style=\"text-decoration: underline\">Click&nbsp;<a href=\"https:\/\/lungfoundation.com.au\/get-involved\/campaigns\/30-reasons-for-research\/\" target=\"_blank\" rel=\"noreferrer noopener\">here<\/a><\/span>&nbsp;<\/strong>to find out more&nbsp;about the research being done courtesy of generous donations.&nbsp;&nbsp;<\/h5>\n<!-- \/wp:heading -->","post_title":"Tegan\u2019s story","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"tegans-story","to_ping":"","pinged":"","post_modified":"2021-03-05 15:45:11","post_modified_gmt":"2021-03-05 05:45:11","post_content_filtered":"","post_parent":0,"guid":"http:\/\/lungfoundation.com.au\/?post_type=story&#038;p=12110","menu_order":0,"post_type":"story","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":11220,"post_author":"85","post_date":"2020-10-30 11:22:58","post_date_gmt":"2020-10-30 01:22:58","post_content":"<!-- wp:paragraph {\"align\":\"center\"} -->\n<p class=\"has-text-align-center\"><strong>\u201cI am so proud of how\u202fmy condition\u202fhas made me realize how precious life is and that I'm not alone on this journey I travel.\u201d\u00a0\u00a0<\/strong><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>The day-to-day\u202fstruggles\u202fof living with a rare lung disease like Pulmonary Arterial Hypertension\u202f(PAH) can be very\u202fchallenging.\u202fFor mother of two, Kylie,\u202fmornings look a little different to most families.\u202fThe 40-year-old\u202fbegins\u202fher day by\u202forganising\u202fher medication\u202fthat\u202ffeeds\u202finto a pump connected\u202fto her chest which she must wear 24\/7.\u202f&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>For\u202f14 years,\u202fKylie has been going about\u202fthis\u202fintricate\u202fmorning ritual, yet it\u202fstill comes with high risk due to the\u202fdanger\u202fof\u202fequipment becoming contaminated\u202fand causing infection.\u202fIf the pump stops working\u202fat any point,\u202fKylie has\u202fjust\u202f15-30 minutes to\u202ffix it\u202fbefore she goes into respiratory distress.\u202f&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Once\u202fher\u202fmorning\u202froutine\u202fis completed, the mother of two goes about her day caring for her teenage children, however the impact of her condition doesn\u2019t stop there. Since her diagnosis,\u202flife has changed immensely.\u202fShortness of breath and fatigue\u202fcan make even the simplest of tasks a\u202fchallenge and\u202fhave taken a large toll on Kylie\u2019s social life.\u202f\u202f&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cI can't do things that I once\u202floved\u202flike swimming, playing sport\u202fand taking long\u202fwalks.\u202fI\u202fbeen\u202fexcluded from social events as now I am unable to drink, and\u202fsome\u202fpeople have just given up\u202finviting\u202fme to things.\u201d\u202f&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Living with a rare lung condition can be isolating and lonely. While family\u202fand friends are very supportive, it\u2019s hard for\u202fpeople\u202fto understand the real toll of living with a terminal condition.\u202f\u202f&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cWhen I was first diagnosed\u202fno one could understand\u202fhow this could happen to me;\u202fI had never smoked, looked after myself and was genuinely a good person.\u202fAlso, as it\u2019s such a rare condition\u202fpeople always say, \u2018well you\u202fdon't have cancer\u2019.\u202fIt can be so frustrating and hurtful when people are dismissive of\u202fyour\u202fcondition.\u201d\u202f\u202f&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>For many Australians\u202flike Kylie\u202fdiagnosed with\u202fa rare\u202flung disease,\u202fLung Foundation Australia\u202fsupport services\u202fand programs\u202fprovide a lifeline \u2013 a steady hand in a very rough sea.\u202f&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cThere are people out there going through this same path.&nbsp;Listening and meeting people with this&nbsp;diagnosis is absolutely&nbsp;life-changing.&nbsp;It allows you the\u202fopportunity to hear first-hand accounts how life changes but also how it can still be amazing!&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cOnce I\u202fjoined\u202fa support group,\u202fI made a group of friends\u202fwho understand\u202fmy condition and we all\u202fhelp each other out.\u202fWhether it\u2019s just to chat or listen, to help someone fight to get help or just to share our journey with each other, this 100% helps get you through each day knowing you\u2019re not alone. Through these support services, I have met some absolutely amazing people who I now call family.\u201d&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Kylie says&nbsp;when living with&nbsp;a&nbsp;rare condition,&nbsp;it\u2019s vital to have access to resources and information that cover the specifics of the disease.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cWhen you are given so much information from\u202fyour doctors it's hard to take it all in.&nbsp;Having resources and information to refer to makes processing this condition much easier, as you have it at hand when you need it\u202for are ready to learn more. There are always questions that you think of and having access to these is very helpful.\u201d&nbsp;<\/p>\n<!-- \/wp:paragraph -->","post_title":"Kylie\u2019s story","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"kylies-story","to_ping":"","pinged":"","post_modified":"2020-10-30 11:23:00","post_modified_gmt":"2020-10-30 01:23:00","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=story&#038;p=11220","menu_order":0,"post_type":"story","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":10855,"post_author":"85","post_date":"2020-09-30 17:24:04","post_date_gmt":"2020-09-30 07:24:04","post_content":"<!-- wp:heading {\"textAlign\":\"center\",\"level\":4} -->\n<h4 class=\"has-text-align-center\"><strong>For Cobey, research means the&nbsp;chance to grow old with her husband and hope for a cure.&nbsp;&nbsp;<\/strong><\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:media-text {\"mediaId\":5903,\"mediaType\":\"image\",\"className\":\"alignwide\"} -->\n<div class=\"wp-block-media-text alignwide is-stacked-on-mobile\"><figure class=\"wp-block-media-text__media\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2019\/06\/Cobey-Grant-story-card.jpg\" alt=\"\" class=\"wp-image-5903 size-full\" \/><\/figure><div class=\"wp-block-media-text__content\"><!-- wp:paragraph -->\n<p>In 2018, aged just 21,&nbsp;the newlywed, pharmacist and self-confessed dog lover&nbsp;was diagnosed with a rare and incurable lung disease&nbsp;-&nbsp;Idiopathic Pulmonary Arterial Hypertension&nbsp;(PAH).&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Cobey\u2019s condition has forced her to reconsider her&nbsp;future plans, like starting a family.&nbsp;While&nbsp;advancements in treatment&nbsp;currently&nbsp;allow&nbsp;her&nbsp;to live a relatively normal life,&nbsp;Cobey knows&nbsp;that at some point the&nbsp;medication may stop working and without research to uncover more options, a lung transplant will be a likely necessity.&nbsp;<\/p>\n<!-- \/wp:paragraph --><\/div><\/div>\n<!-- \/wp:media-text -->\n\n<!-- wp:paragraph -->\n<p>\u201cI was totally devastated when I was diagnosed. It turned my life upside down. At 21, you don\u2019t expect to be told you have a&nbsp;life-threatening disease with no cure. Not when you think you have the rest of your life ahead of you. Every day is a mental and physical battle, but I refuse to let it beat me.\u201d&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cI was told that at this stage having children would be very dangerous and that the medication I was put on to help my disease could cause birth defects. My husband and I had talked about having children in the future, but my diagnosis has made us re-evaluate these plans.&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cSince I\u2019ve been diagnosed and put on medication, my life has improved. Medical advances have come a long way and I\u2019m hopeful of what the future holds with more research.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:pullquote {\"customTextColor\":\"#491b62\"} -->\n<figure class=\"wp-block-pullquote\"><blockquote class=\"has-text-color\" style=\"color:#491b62\"><p>\u201cPAH is considered an incurable disease, if research could find out exactly how it develops than maybe they could find a way of curing it without patients having to undergo a lung transplant.&nbsp;<\/p><\/blockquote><\/figure>\n<!-- \/wp:pullquote -->\n\n<!-- wp:media-text {\"mediaPosition\":\"right\",\"mediaId\":10700,\"mediaType\":\"image\",\"className\":\"alignwide\"} -->\n<div class=\"wp-block-media-text alignwide has-media-on-the-right is-stacked-on-mobile\"><figure class=\"wp-block-media-text__media\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2020\/09\/Cobey-13-scaled-e1601274350821-1024x965.jpg\" alt=\"\" class=\"wp-image-10700 size-full\" \/><\/figure><div class=\"wp-block-media-text__content\"><!-- wp:paragraph -->\n<p>\u201cIf I do have to undergo a lung transplant, research may help find a way to develop lungs made from my own cells which would reduce the likelihood of organ rejection and the need to be on lots of medications that prevent rejection or those that treat the side effects of anti-rejection medications. This would mean that I could live&nbsp;my life to the fullest, free of organ rejection worry, side effects of medications and lungs that are failing me.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cThere is no doubt that research changes lives \u2013 it has helped get combination therapy listed on the PBS so that more people with my disease have access to it and can afford it. It has helped develop medicines that don\u2019t require a continuous intravenous infusion which means patients like me can live a more normal and better quality of life without being attached to a pump 24\/7.&nbsp;<\/p>\n<!-- \/wp:paragraph --><\/div><\/div>\n<!-- \/wp:media-text -->\n\n<!-- wp:paragraph -->\n<p>\u201cSupport for research into PAH shows me that other people do care about improving the lives of those suffering from PAH and that whilst I may have an invisible disease, I am not invisible to researchers.&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Please consider&nbsp;donating to&nbsp;support&nbsp;lung health research,&nbsp;you have no idea how many people you can help.&nbsp;You will help not just patients suffering from lung disease but&nbsp;all their loved ones too as lung disease does not just impact the patient, but&nbsp;their families&nbsp;and&nbsp;&nbsp;loved&nbsp;ones. Your support could improve a patient\u2019s quality of life, help&nbsp;find a new medication or develop a cure for a disease.&nbsp;Every dollar has the potential to improve&nbsp;or save&nbsp;a life.\"<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:heading {\"textAlign\":\"center\"} -->\n<h2 class=\"has-text-align-center\">Research saves lives and gives hope for a cure.<br><strong>Give hope. Give to research today<\/strong>.<\/h2>\n<!-- \/wp:heading -->\n\n<!-- wp:buttons {\"align\":\"center\"} -->\n<div class=\"wp-block-buttons aligncenter\"><!-- wp:button {\"style\":{\"color\":{\"background\":\"#158c40\"}}} -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-background\" style=\"background-color:#158c40\">Donate today<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:media-text {\"mediaId\":12521,\"mediaLink\":\"https:\\\/\\\/lungfoundation.com.au\\\/stories\\\/ethans-story\\\/oyo200924_30-reasons_afaf-and-elizabeth_outro-thumbnail-small\\\/\",\"mediaType\":\"image\"} -->\n<div class=\"wp-block-media-text alignwide is-stacked-on-mobile\"><figure class=\"wp-block-media-text__media\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2020\/10\/OYO200924_30-Reasons_Afaf-and-Elizabeth_Outro-Thumbnail-small-1024x576.jpg\" alt=\"\" class=\"wp-image-12521 size-full\" \/><\/figure><div class=\"wp-block-media-text__content\"><!-- wp:heading {\"level\":4} -->\n<h4>30 Reasons for Research<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>In celebration of our 30th anniversary,&nbsp;we are highlighting 30 Reasons to donate to life-changing lung disease and lung cancer research.&nbsp;For the millions of Australians impacted by lung disease and lung cancer, research means more precious moments with loved ones, a chance to experience their&nbsp;next life milestone, and independence to do&nbsp;the&nbsp;day-to-day activities that many of us take for granted.&nbsp;<\/p>\n<!-- \/wp:paragraph --><\/div><\/div>\n<!-- \/wp:media-text -->\n\n<!-- wp:heading {\"textAlign\":\"center\",\"level\":5} -->\n<h5 class=\"has-text-align-center\">Click<strong>\u00a0<\/strong><a href=\"https:\/\/lungfoundation.com.au\/get-involved\/campaigns\/30-reasons-for-research\/\" target=\"_blank\" rel=\"noreferrer noopener\"><strong>here<\/strong><\/a><strong>\u00a0<\/strong>to find out more\u00a0about the research being done courtesy of generous donations.\u00a0\u00a0<\/h5>\n<!-- \/wp:heading -->","post_title":"Cobey's Story","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"cobeys-story-2","to_ping":"","pinged":"","post_modified":"2021-03-05 15:42:14","post_modified_gmt":"2021-03-05 05:42:14","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=story&#038;p=10855","menu_order":0,"post_type":"story","post_mime_type":"","comment_count":"0","filter":"raw"}]}],"subtitle":"Pulmonary Arterial Hypertension","disable_header_overlay":false},"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/7260","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/users\/85"}],"replies":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/comments?post=7260"}],"version-history":[{"count":10,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/7260\/revisions"}],"predecessor-version":[{"id":90151,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/7260\/revisions\/90151"}],"up":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/1376"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/media\/88885"}],"wp:attachment":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/media?parent=7260"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}