{"id":7256,"date":"2020-01-24T11:49:51","date_gmt":"2020-01-24T01:49:51","guid":{"rendered":"https:\/\/lungfoundation.com.au\/?page_id=7256"},"modified":"2023-07-19T16:03:23","modified_gmt":"2023-07-19T06:03:23","slug":"resources","status":"publish","type":"page","link":"https:\/\/lungfoundation.com.au\/patients-carers\/conditions\/bronchiectasis\/resources\/","title":{"rendered":"Resources"},"content":{"rendered":"","protected":false},"excerpt":{"rendered":"","protected":false},"author":85,"featured_media":3141,"parent":1329,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-7256","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v24.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Resources - Lung Foundation Australia<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lungfoundation.com.au\/patients-carers\/conditions\/bronchiectasis\/resources\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Resources - Lung Foundation Australia\" \/>\n<meta property=\"og:url\" content=\"https:\/\/lungfoundation.com.au\/patients-carers\/conditions\/bronchiectasis\/resources\/\" \/>\n<meta property=\"og:site_name\" content=\"Lung Foundation Australia\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/lungfoundation\/\" \/>\n<meta property=\"article:modified_time\" content=\"2023-07-19T06:03:23+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/Jeff_Header-image.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1920\" \/>\n\t<meta property=\"og:image:height\" content=\"450\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:site\" content=\"@Lungfoundation\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/lungfoundation.com.au\/patients-carers\/conditions\/bronchiectasis\/resources\/\",\"url\":\"https:\/\/lungfoundation.com.au\/patients-carers\/conditions\/bronchiectasis\/resources\/\",\"name\":\"Resources - Lung Foundation Australia\",\"isPartOf\":{\"@id\":\"https:\/\/lungfoundation.com.au\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/lungfoundation.com.au\/patients-carers\/conditions\/bronchiectasis\/resources\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/lungfoundation.com.au\/patients-carers\/conditions\/bronchiectasis\/resources\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/Jeff_Header-image.jpg\",\"datePublished\":\"2020-01-24T01:49:51+00:00\",\"dateModified\":\"2023-07-19T06:03:23+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/lungfoundation.com.au\/patients-carers\/conditions\/bronchiectasis\/resources\/#breadcrumb\"},\"inLanguage\":\"en-AU\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/lungfoundation.com.au\/patients-carers\/conditions\/bronchiectasis\/resources\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-AU\",\"@id\":\"https:\/\/lungfoundation.com.au\/patients-carers\/conditions\/bronchiectasis\/resources\/#primaryimage\",\"url\":\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/Jeff_Header-image.jpg\",\"contentUrl\":\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/Jeff_Header-image.jpg\",\"width\":1920,\"height\":450},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/lungfoundation.com.au\/patients-carers\/conditions\/bronchiectasis\/resources\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/lungfoundation.com.au\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Patients &amp; 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This resource also helps your family members know what actions you need to take in an emergency. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>This patient resource should be filled out and reviewed regularly by your healthcare team in accordance with evidence- based guidelines. Click <a href=\"https:\/\/lungfoundation.com.au\/resources\/bronchiectasis-action-plan-explained\/\">here <\/a>to watch a video explaining the Bronchiectasis Action Plan step by step. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:embed {\"url\":\"https:\/\/www.youtube.com\/watch?v=AKnnpWwWu5s\\u0026amp;feature=youtu.be\",\"type\":\"video\",\"providerNameSlug\":\"youtube\",\"responsive\":true,\"className\":\"wp-embed-aspect-16-9 wp-has-aspect-ratio\"} -->\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\nhttps:\/\/www.youtube.com\/watch?v=AKnnpWwWu5s&amp;feature=youtu.be\n<\/div><\/figure>\n<!-- \/wp:embed -->\n\n<!-- wp:paragraph -->\n<p>To find out more about Bronchiectasis you can visit our<a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/conditions\/bronchiectasis\/overview\/\"> website.<\/a><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>For further information contact our&nbsp;<a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information and Support Centre<\/a>&nbsp;on&nbsp;<a href=\"tel:1800654301\">1800 654 301.<\/a><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><\/p>\n<!-- \/wp:paragraph -->","post_title":"Bronchiectasis Action Plan","post_excerpt":"When completed with a health professional, the Bronchiectasis Action Plan helps you recognise early signs of a flare-up and outlines what actions you need to take to manage it.","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"bronchiectasis-action-plan","to_ping":"","pinged":"","post_modified":"2023-01-25 16:20:47","post_modified_gmt":"2023-01-25 06:20:47","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=8027","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":9814,"post_author":"85","post_date":"2020-08-10 16:09:51","post_date_gmt":"2020-08-10 06:09:51","post_content":"<!-- wp:paragraph -->\n<p>In this video, Enna Stroil-Salama (Lung Foundation Australia) introduces Bronchiectasis and discusses the common causes and signs and symptoms. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>For further information about Bronchiectasis visit our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/conditions\/bronchiectasis\/overview\/\">website<\/a>. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>For information, support and access to our Respiratory Care Nurse service contact our Information and Support Centre on <a href=\"Tel:1800654301\">1800 654 301<\/a> or fill out our <a href=\"https:\/\/www.tfaforms.com\/4828245\">form. <\/a><\/p>\n<!-- \/wp:paragraph -->","post_title":"Understanding Bronchiectasis","post_excerpt":"In this video, Enna Stroil-Salama (Lung Foundation Australia) provides a brief overview of Bronchiectasis. \n","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"understanding-bronchiectasis","to_ping":"","pinged":"","post_modified":"2021-03-16 11:08:52","post_modified_gmt":"2021-03-16 01:08:52","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=9814","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"","view_more_link":"","posts":[{"ID":5018,"post_author":"3","post_date":"2019-02-11 11:16:01","post_date_gmt":"2019-02-11 01:16:01","post_content":"<!-- wp:paragraph -->\n<p>The Bronchiectasis infographic provides a snapshot of Bronchiectasis in Australia including key statistics, risk factors, symptoms, treatment, and support.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>For further information contact our\u00a0<a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information and Support Centre<\/a>\u00a0on\u00a0<a href=\"tel:1800654301\">1800 654 301.<\/a><\/p>\n<!-- \/wp:paragraph -->","post_title":"Bronchiectasis","post_excerpt":"The Bronchiectasis infographic provides a snapshot of Bronchiectasis in Australia including key statistics, risk factors, symptoms, treatment, and support.","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"bronchiectasis-infographic","to_ping":"","pinged":"","post_modified":"2021-03-16 10:39:53","post_modified_gmt":"2021-03-16 00:39:53","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=5018","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":1963,"post_author":"12","post_date":"2018-02-05 13:02:28","post_date_gmt":"2018-02-05 03:02:28","post_content":"<strong>By Dr Lucy Burr, Director of Respiratory, Cystic Fibrosis and Sleep Medicine, Mater Health Services, Brisbane<\/strong>\r\n\r\nBronchiectasis is characterised by chronic infection in the small airways, allowing infected mucus to build up causing parts of the lungs to be damaged. This damage results in airway dilatation and increased mucus production leading to a chronic daily cough. Increased mucus means people with bronchiectasis are more likely to be affected by recurrent airway infection and frequent exacerbations (or flare up of symptoms) which often require antibiotics.\r\n\r\nThe key to treatment and therapy for bronchiectasis is to ensure good general health including a balanced diet, stopping smoking and a particular focus on regular cardiovascular exercise.\r\n\r\nOne of the most important factors in both controlling symptoms and reducing the opportunity for bacterial infection is keeping the chest free of mucus. Chest clearance can take many forms and many people have no trouble coughing up the mucus and find it easy to clear their lungs in the shower, or whilst out walking. Others find it a little harder and need to utilise a few specialised techniques.\r\n\r\nActive Cycle of Breathing (ACBT) is a method used where cycles of controlled breathing are interspersed with deep breathing and huffing. Added to this can be Positive Expiratory Pressure (PEP) where breathing cycles are added to by breathing out against resistance. There are several types of devices that can help with this, find out more from your health professional. Combining these two techniques can help shift the distal mucus that can be difficult to cough up.\r\n\r\nThere are a few medications that may be useful for people with bronchiectasis, however their use depends to some degree on what bacteria are growing in the lungs. Macrolide antibiotics have been shown to reduce mucus secretion and exacerbations in patients who still have exacerbations despite optimal clearance and exercise. Patients with the Pseudomonas aeruginosa bacteria seem particularly responsive to macrolide, however care must be taken if using these medications when there is co-infection with non-tuberculous mycobacteria (NTM). Other forms of medical treatment may include nebulised antibiotics and nebulised saline to help break up sticky mucus.\r\n\r\n<strong>For more information, contact Lung Foundation Australia via freecall 1800 654 301.<\/strong>\r\n<h4>Bronchiectasis Action Plan<\/h4>\r\nIt is important to understand your bronchiectasis and develop an action plan with your doctor. This should include your symptoms and management strategies for when you are well and for when your symptoms deteriorate. To download the Action Plan, visit: <a href=\"http:\/\/bronchiectasis.com.au\/bronchiectasis\/management\/action-plan\">http:\/\/bronchiectasis.com.au\/bronchiectasis\/management\/action-plan<\/a> or contact us.","post_title":"Bronchiectasis: Mucus clearance techniques","post_excerpt":"","post_status":"publish","comment_status":"open","ping_status":"closed","post_password":"","post_name":"bronchiectasis-mucus-clearance-techniques","to_ping":"","pinged":"","post_modified":"2020-11-18 22:13:49","post_modified_gmt":"2020-11-18 12:13:49","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=article&#038;p=1963","menu_order":0,"post_type":"article","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":17854,"post_author":"278","post_date":"2021-05-21 10:03:26","post_date_gmt":"2021-05-21 00:03:26","post_content":"<!-- wp:paragraph -->\n<p>The My Bronchiectasis checklist summarises key self-management activities to help you manage your Bronchiectasis in accordance with evidence-based guidelines. The My Bronchiectasis checklist is a template to be completed by you in conjunction with your GP or specialist to outline your plan for self-management. <br>The checklist covers topics including: <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><!-- wp:list-item -->\n<li>Diagnosis <\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Action plans <\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Airway clearance <\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Vaccinations <\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Pulmonary rehabilitation<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Exercise <\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Diet<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Mental Health<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li> Quit Smoking <\/li>\n<!-- \/wp:list-item --><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:embed {\"url\":\"https:\/\/www.youtube.com\/watch?v=t86Aw7ztlNg\",\"type\":\"video\",\"providerNameSlug\":\"youtube\",\"responsive\":true,\"className\":\"wp-embed-aspect-16-9 wp-has-aspect-ratio\"} -->\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\nhttps:\/\/www.youtube.com\/watch?v=t86Aw7ztlNg\n<\/div><\/figure>\n<!-- \/wp:embed -->\n\n<!-- wp:paragraph -->\n<p>For further information or to engage with our Respiratory Care Nurse you can contact our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information and Support Centre <\/a>on <a href=\"tel:1800654301\">1800 654 301<\/a>.<\/p>\n<!-- \/wp:paragraph -->","post_title":"My Bronchiectasis Checklist","post_excerpt":"The My Bronchiectasis Checklist provides an overview of the key strategies to manage your Bronchiectasis.","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"my-bronchiectasis-checklist","to_ping":"","pinged":"","post_modified":"2023-01-25 16:20:52","post_modified_gmt":"2023-01-25 06:20:52","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=17854","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"Exercise ","view_more_link":"","posts":[{"ID":133,"post_author":"3","post_date":"2018-09-04 10:35:27","post_date_gmt":"2018-09-04 00:35:27","post_content":"<!-- wp:paragraph -->\n<p>The Better Living with Exercise booklet is for people living with a lung condition to create an exercise program in collaboration with their exercise professional. The booklet covers topics including:<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><li>Exercise safety<\/li><li>Tips for exercising effectively<\/li><li>Sample exercises<\/li><li>Exercise plan template<\/li><li>Lung Foundation Australia resources<\/li><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:paragraph -->\n<p>Lung Foundation Australia has also developed a series of exercise videos called <a href=\"https:\/\/lungfoundation.com.au\/resources\/?search=maintaining%20movement\">Maintaining Movement<\/a>. This series features many of the exercises discussed in this booklet, to find out more visit our website <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/lung-disease-and-exercise\/\">here<\/a>. <br>To purchase this book in hardcopy visit our website <a href=\"https:\/\/shop.lungfoundation.com.au\/product\/better-living-with-exercise-your-personal-guide\/\">here<\/a>. <\/p>\n<!-- \/wp:paragraph -->","post_title":"Better Living with Exercise","post_excerpt":"The Better Living with Exercise booklet can be used by you and your exercise professional to develop a suitable exercise program based on your needs. ","post_status":"publish","comment_status":"open","ping_status":"closed","post_password":"","post_name":"better-living-with-exercise-booklet","to_ping":"","pinged":"","post_modified":"2021-03-16 09:45:49","post_modified_gmt":"2021-03-15 23:45:49","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=133","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":641,"post_author":"3","post_date":"2018-09-11 11:27:03","post_date_gmt":"2018-09-11 01:27:03","post_content":"<!-- wp:paragraph -->\n<p>The Pulmonary Rehabilitation fact sheet provides an overview of what pulmonary rehabilitation is, and also covers topics including:<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><!-- wp:list-item -->\n<li>Who can attend<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>What the benefits are<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>What is involved in the program<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>What topics are discussed<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Safety in pulmonary rehabilitation<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>How pulmonary rehabilitation will help<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>What comes after pulmonary rehabilitation<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>How to access a program.<\/li>\n<!-- \/wp:list-item --><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:paragraph -->\n<p>You can find your local pulmonary rehabilitation program on our website <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/lung-disease-and-exercise\/pulmonary-rehabilitation\/\">here<\/a>. For other exercise resources you can visit our website <a href=\"https:\/\/lungfoundation.com.au\/resources\/?search=exercise\">here<\/a>.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Pulmonary Rehabilitation","post_excerpt":"The Pulmonary Rehabilitation fact sheet provides an overview explaining pulmonary rehabilitation and its benefits.","post_status":"publish","comment_status":"open","ping_status":"closed","post_password":"","post_name":"pulmonary-rehabilitation-fact-sheet","to_ping":"","pinged":"","post_modified":"2023-08-30 15:23:09","post_modified_gmt":"2023-08-30 05:23:09","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=641","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":9830,"post_author":"85","post_date":"2020-08-11 09:57:50","post_date_gmt":"2020-08-10 23:57:50","post_content":"<!-- wp:paragraph -->\n<p>Exercise Physiologist, Emma is hosting an at-home exercise series to help you maintain movement. <br><br>The series will take you step-by-step through simple exercises that can be completed at home with objects found around the house. Emma will take you through exercise routines in multiple settings including: the home, park, kitchen and desk. <br><br>Before commencing any of these exercises it is recommended to read our Exercise Safety Guidelines found <a href=\"https:\/\/lungfoundation.com.au\/resources\/?user_category=31&amp;search=exercise%20safety%20guidelines\">here <\/a>and discuss exercise with your treating healthcare professional or accredited exercise professional.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Maintaining Movement (Playlist)","post_excerpt":"We are hosting an at-home exercise series to help you maintain movement. The series will take you step-by step through exercises using minimal or no equipment.","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"maintaining-movement","to_ping":"","pinged":"","post_modified":"2021-03-16 13:52:31","post_modified_gmt":"2021-03-16 03:52:31","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=9830","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"Webinars","view_more_link":"","posts":[{"ID":88937,"post_author":"482","post_date":"2022-09-08 11:18:36","post_date_gmt":"2022-09-08 01:18:36","post_content":"<!-- wp:paragraph -->\n<p>This webinar, co-hosted by Lung Foundation Australia Chair Professor Lucy Morgan, presents a panel of expert clinicians and consumers to answer community questions about bronchiectasis, including: <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><li>Being battle fit \u2013 lifestyle considerations, fitness, airway clearance, knowing your baseline<\/li><li>Recognising invaders \u2013 respiratory viruses <\/li><li>Re-grouping when you\u2019re surrounded \u2013 recognising exacerbations, treatments <\/li><li>Putting up your best fight \u2013 mental health and wellbeing, peer support.<\/li><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:paragraph -->\n<p>Contact our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information and Support Centre<\/a> for further information and to be connected with our free Respiratory Care Nurse service. Free call <a href=\"tel:1800 654 301\">1800 654 301<\/a> (option 3) or fill out the form <a href=\"https:\/\/www.tfaforms.com\/4828245\">here<\/a> to book an appointment.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Going into Battle with Bronchiectasis","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"going-into-battle-with-bronchiectasis","to_ping":"","pinged":"","post_modified":"2022-10-21 10:07:33","post_modified_gmt":"2022-10-21 00:07:33","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=88937","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":86611,"post_author":"482","post_date":"2022-06-01 12:07:47","post_date_gmt":"2022-06-01 02:07:47","post_content":"<!-- wp:paragraph -->\n<p>In this webinar, our Chronic Lung Disease panel answer some of the most asked questions from the COPD and Bronchiectasis community. They share their experiences of living with these conditions, the challenges they have encountered, their coping strategies and their stories of strength and hope.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Our panelists discuss their personal tips and experiences with:&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><li>Exercise&nbsp;&nbsp;<\/li><li>Managing breathlessness or excessive mucous buildup&nbsp;<\/li><li>Impacts of weather on your lungs&nbsp;<\/li><li>Helping others understand your condition&nbsp;<\/li><li>Taking care of your mental health and wellbeing&nbsp;<\/li><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:paragraph -->\n<p>For further information contact our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\" target=\"_blank\" rel=\"noreferrer noopener\">Information and Support Centre<\/a> on <a href=\"tel:1800654301\" target=\"_blank\" rel=\"noreferrer noopener\">1800 654 301<\/a>.&nbsp;<\/p>\n<!-- \/wp:paragraph -->","post_title":"Chronic Lung Disease - Lived Experience Panel\u00a0","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"chronic-lung-disease-lived-experience-panel","to_ping":"","pinged":"","post_modified":"2022-06-01 12:07:49","post_modified_gmt":"2022-06-01 02:07:49","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=86611","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":3896,"post_author":"85","post_date":"2018-10-12 14:49:57","post_date_gmt":"2018-10-12 04:49:57","post_content":"<!-- wp:paragraph -->\n<p>Join Lung Foundation Australia and Stella Just (Physiotherapist &amp; Pulmonary Rehabilitation Coordinator) for the Am I too sick to exercise webinar. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>In this session Stella will discuss why it is important to exercise despite experiencing breathlessness and what role it has in your disease management. <br><br>For further information about exercise you can visit our website <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/lung-disease-and-exercise\/\">here<\/a>, if you have any questions contact our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information and Support Centre<\/a> on <a href=\"Tel:1800 654 301\">1800 654 301<\/a>.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Am I too sick to exercise","post_excerpt":"This webinar, presented by Stella Just, Physiotherapist and Pulmonary Rehabilitation Coordinator, features the benefits of exercise for people living with a lung disease.","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"am-i-too-sick-to-exercise","to_ping":"","pinged":"","post_modified":"2021-03-16 10:03:40","post_modified_gmt":"2021-03-16 00:03:40","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=3896","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"Articles ","view_more_link":"","posts":[{"ID":238,"post_author":"3","post_date":"2018-09-05 10:35:38","post_date_gmt":"2018-09-05 00:35:38","post_content":"<!-- wp:paragraph -->\n<p>Jeff has Bronchiectasis and has experienced stigma throughout his diagnosis. Learn more about how stigma has impacted him.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>To find out more about Bronchiectasis you can visit our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/conditions\/bronchiectasis\/overview\/\">website<\/a>.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>For information, support and access to our Respiratory Care Nurse service contact our Information and Support Centre on <a href=\"tel:1800654301\">1800 654 301<\/a> or fill out our <a href=\"https:\/\/www.tfaforms.com\/4828245\">form<\/a>.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Breaking down the stigma for Bronchiectasis","post_excerpt":"Meet Jeff, he has Bronchiectasis. Listen to his experience with Bronchiectasis and his perspective of how stigma has impacted him. ","post_status":"publish","comment_status":"open","ping_status":"closed","post_password":"","post_name":"breaking-down-the-stigma-for-bronchiectasis","to_ping":"","pinged":"","post_modified":"2021-03-16 10:56:03","post_modified_gmt":"2021-03-16 00:56:03","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=238","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":4639,"post_author":"3","post_date":"2018-11-28 09:53:49","post_date_gmt":"2018-11-27 23:53:49","post_content":"<!-- wp:paragraph -->\n<p>Meet, 5-year-old Freddy who was diagnosed with Bronchiectasis. Hear about his family\u2019s journey with the diagnosis and how they help him manage his condition. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>To learn more about Bronchiectasis visit our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/conditions\/bronchiectasis\/overview.\">website pages<\/a>. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p> For information, support and access to our Respiratory Care Nurse service contact our Information and Support Centre on <a href=\"tel:1800654301\">1800 654 301<\/a> or fill out our <a href=\"https:\/\/www.tfaforms.com\/4828245\">form<\/a>.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Freddy's family and their battle with bronchiectasis","post_excerpt":"Meet Freddy, he was diagnosed with Bronchiectasis at age 5. Hear his families story navigating life with the disease. \n","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"freddys-family-and-their-battle-with-bronchiectasis","to_ping":"","pinged":"","post_modified":"2021-03-16 11:05:26","post_modified_gmt":"2021-03-16 01:05:26","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=4639","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":3898,"post_author":"85","post_date":"2018-10-12 14:50:16","post_date_gmt":"2018-10-12 04:50:16","post_content":"<!-- wp:paragraph -->\n<p>Join Joanne to get some tips on how she lives with a chronic lung disease (bronchiectasis). Joanne takes you through the journey of how she was diagnosed, the emotions she had at the time and how important self-care is for her ongoing management. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>To find out more contact our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information and Support Centre<\/a> on <a href=\"tel:1800 654 301\">1800 654 301<\/a>.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Joanne's tips for living with chronic lung disease","post_excerpt":"Tune in to listen to Joanne's tips to living with a chronic lung condition, she also talks about her personal experience living with bronchiectasis.","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"joannes-tips-for-living-with-chronic-lung-disease","to_ping":"","pinged":"","post_modified":"2021-03-23 08:54:55","post_modified_gmt":"2021-03-22 22:54:55","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=3898","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"Stories ","view_more_link":"https:\/\/lungfoundation.com.au\/stories\/?condition=7","posts":[{"ID":432,"post_author":"3","post_date":"2018-09-06 13:10:04","post_date_gmt":"2018-09-06 03:10:04","post_content":"<p>My name is Joanne; I enjoy walking to stay active, pottering around the home I share with my husband, and entertaining family and friends. In November 2016 at the age of 51, I was diagnosed with bronchiectasis. Except for childhood bronchitis, I lead a very healthy life so I was surprised by the diagnosis.<\/p>\n<p>My symptoms began in the beginning of 2016. I was working as a full-time kindergarten teacher as well as volunteering for a number of organisations in my spare time. I had persistent cold-like symptoms and shortness of breath that was greatly impacting on my ability to breathe. \u00a0I noticed my post-nasal drip increased, along with large amounts of phlegm that would pool in my throat. The coughing fits would frequently wake me and my partner up as I tried to clear the phlegm. \u00a0Around the same time I was extremely tired and lethargic and my body was breaking out in hives. Suddenly, walking great distances left me very short of breath.<\/p>\n<blockquote>\n<p>Some days I struggled to walk to the post box without being out of breath, and it would take me a long time to recover from the walking. I put it down to being unfit and extreme stress from work.<\/p>\n<\/blockquote>\n<p>Luckily, I have a very supportive husband and family who voiced their concerns with the state of my health, which progressively worsened over the year. \u00a0In hindsight it was because I ignored the signals my body had been giving me for months that I was not well. My family had a history of lung related illnesses but I didn\u2019t connect that I could too. I didn\u2019t really think the persistent croupy cough was something to worry about or to seek medical advice because I put it down to working with small children, where catching colds and viruses was common place.<\/p>\n<p><img class=\"alignnone size-large wp-image-434\" src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/3X0A5098-resized-1024x683.jpg\" alt=\"\" width=\"1024\" height=\"683\" \/><\/p>\n<p>I was incredibly lucky to be referred to a lung specialist by my general practitioner (GP) who was able to fit me in within two weeks. \u00a0The specialist performed a lung function test, and I had bloods and scans taken. The lung function test was poor; no wonder I was so short of breath. \u00a0The scans showed pus-like cysts in both lungs - the right was completely congested and the left was doing all the work.\u00a0 The lungs also showed considerable scarring. \u00a0My specialist was brilliant and explained that bronchiectasis was quite common, treatable and could be managed with antibiotics and quality self-care. I underwent a bronchoscopy to clear the fluid out of the lungs and afterwards antibiotics twice weekly to clear the lung infection. I also sort advice from an ear, nose and throat (ENT) specialist for the post-nasal drip and discovered nasal polyps which were treated with short term steroids and a long term nasal spray application and salt nasal cleanses.<\/p>\n<blockquote>\n<p>I didn\u2019t listen to the very overt clues my body was giving me. I overrode all the signals until I had run my body into a state of ill health which took a long time to recover from.<\/p>\n<\/blockquote>\n<p>Had I sought medical advice early, there may not have been as much scarring or recovery time. A year on and I still have exacerbations but I go to the doctor immediately so recovery is quick.<\/p>\n<p>The GP was correct in that it is a lifelong medical condition, however if you listen to your body, see your doctors regularly and take responsibility with looking after your health and wellbeing then bronchiectasis is definitely manageable.\u00a0I chose to be an equal partner in staying informed and understanding the nature of my illness. I continue to find ways to support myself and the care that is needed to stay healthy. The specialist discussed what treatments may help along with giving me a brochure from Lung Foundation Australia on bronchiectasis and I visited their website for further information, which really helped. I also followed the ENT\u2019s advice and worked with a physiotherapist to strengthen my lungs. The good news is my lung function which was re-tested in March 2018 has increased to over 70%, which was not expected from my first lot of scans.\u00a0 I am currently taking antibiotics twice weekly to manage the bronchiectasis and I treat my lungs as if they are insured for a million dollars, quality self-care is the most important gift I can give to myself because it allows me to lead a full and healthy life.<\/p>\n<h4>Sharing your personal experience with lung disease is a compelling and inspiring way for others to learn about and cope with their diagnosis. Your story may also encourage people to identify and act on symptoms they are experiencing, which may otherwise have been ignored.<\/h4>\n<h4><a href=\"https:\/\/lungfoundation.com.au\/get-involved\/how-you-can-help\/share-your-story\/\">Share your story, here<\/a>.<\/h4>\n\n<!-- wp:core-embed\/youtube {\"url\":\"https:\\\/\\\/www.youtube.com\\\/watch?v=02L2Tz5vtqA\",\"type\":\"video\",\"providerNameSlug\":\"youtube\",\"className\":\"wp-embed-aspect-16-9 wp-has-aspect-ratio\"} -->\n<figure class=\"wp-block-embed-youtube wp-block-embed is-type-video is-provider-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\nhttps:\/\/www.youtube.com\/watch?v=02L2Tz5vtqA\n<\/div><\/figure>\n<!-- \/wp:core-embed\/youtube -->","post_title":"Joanne's story","post_excerpt":"","post_status":"publish","comment_status":"open","ping_status":"closed","post_password":"","post_name":"joannes-story","to_ping":"","pinged":"","post_modified":"2020-10-20 16:20:41","post_modified_gmt":"2020-10-20 06:20:41","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=story&#038;p=432","menu_order":0,"post_type":"story","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":4603,"post_author":"12","post_date":"2018-11-26 16:15:03","post_date_gmt":"2018-11-26 06:15:03","post_content":"<!-- wp:heading {\"level\":3} -->\n<h3><strong>For Freddy<\/strong><strong>\u2019s Mum, Melissa<\/strong><strong>, research means<\/strong><strong>&nbsp;hope&nbsp;<\/strong><strong>that her son can have a normal, happy life without boundaries.&nbsp;<\/strong>&nbsp;<\/h3>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p><strong><em>Whenever anybody asks me what condition Freddy has, I\u2019m asked bronchi-what?<\/em><\/strong><strong><em>&nbsp;<\/em><\/strong>&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>When Freddy was a baby,&nbsp;mum&nbsp;Melissa&nbsp;thought&nbsp;he&nbsp;had cystic fibrosis. He had a&nbsp;persistent&nbsp;cough, was always sick and had recurrent croup&nbsp;(upper airway infection that&nbsp;restricts&nbsp;breathing).&nbsp;Told it was asthma, \u201cmother\u2019s instinct\u201d&nbsp;suggested to&nbsp;Melissa&nbsp;it was something more.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Through her background as a paediatric nurse, she was able to get a diagnosis, with&nbsp;scans&nbsp;showing&nbsp;he&nbsp;had bronchiectasis.&nbsp;A&nbsp;diagnosis meant being able to plan&nbsp;and&nbsp;put in place strategies to prevent or relieve Freddy\u2019s symptoms.&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cBronchiectasis affects the whole family,\" Melissa says.&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\"Freddy can\u2019t mix with any children who have the same condition or cystic fibrosis, as it can cause cross contamination \u2026 he must avoid being around \u2018sick people\u2019 and we have to ask friends&nbsp;or&nbsp;family not to visit if they have a cough or cold,&nbsp;as this could end with Freddy admitted to hospital.\"&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Melissa says Freddy,&nbsp;aged&nbsp;just three when they&nbsp;moved to Australia,&nbsp;spent&nbsp;his&nbsp;first&nbsp;six weeks&nbsp;after the move&nbsp;coughing. She&nbsp;still&nbsp;labels&nbsp;the cough&nbsp;\"absolutely&nbsp;heartbreaking&nbsp;\u2026 it&nbsp;wakes the whole house and makes him so tired\u201d.&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><strong>But through ever-evolving research and practices, Melissa says the<\/strong><strong>&nbsp;family is<\/strong><strong>&nbsp;fortunate to have access to support, medications and respiratory specialists.<\/strong>&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\"I am so grateful for the Lung Foundation and the amazing research advancements that they are making&nbsp;... without research, we wouldn't be where we are now,\u201d she says.\u202f&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Every day,&nbsp;Freddy&nbsp;has to&nbsp;do&nbsp;airway clearance and physiotherapy, no matter how he is feeling \u2026&nbsp;he can be crying, tired and&nbsp;saying his chest is hurting.&nbsp;It&nbsp;can have Melissa&nbsp;in tears&nbsp;\u201cbut I have to remind myself that it is all to make him better.\u201d&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Living in a semi-rural area&nbsp;with&nbsp;burn-offs in winter,&nbsp;Freddy&nbsp;has to&nbsp;wear&nbsp;a mask or stay indoors with&nbsp;windows&nbsp;closed.&nbsp;Yet he is \u201cvery active\", swimming&nbsp;twice a week.&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><strong>\u201c<\/strong><strong>He just wants to be like any other child<\/strong><strong>. My over-arching hope is that my son will grow up to live a normal happy life without boundaries<\/strong><strong>.<\/strong><strong>\"<\/strong><strong>&nbsp;<\/strong>&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Through&nbsp;Lung&nbsp;Foundation&nbsp;Australia, the&nbsp;Australian Bronchiectasis Registry provides information on incidence, diagnosis and mortality rates, allowing hope of&nbsp;advancements in treatments and a possible cure.&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cWe&nbsp;know that Freddy is going to do something amazing,\u201d Melissa says.&nbsp;&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cHe is hilarious, intelligent and inquisitive and the most resilient person we know.&nbsp;We do not let his condition define him.\u201d&nbsp;<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><strong>Donating\u00a0to research\u00a0helps\u00a0save lives.\u00a0Without research,\u00a0Melissa says \u201cwe wouldn\u2019t have access to the knowledge we have today. Imagine what we can achieve in the future.\"<\/strong>\u00a0<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:media-text {\"mediaId\":10681,\"mediaLink\":\"https:\\\/\\\/lungfoundation.com.au\\\/radiologist-reading-a-ct-scan-female-doctor-running-ct-scan-from-control-room-at-hospital\\\/\",\"mediaType\":\"image\",\"mediaWidth\":35} -->\n<div class=\"wp-block-media-text alignwide is-stacked-on-mobile\" style=\"grid-template-columns:35% auto\"><figure class=\"wp-block-media-text__media\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2020\/09\/iStock-1130772508-1024x683.jpg\" alt=\"\" class=\"wp-image-10681 size-full\" \/><\/figure><div class=\"wp-block-media-text__content\"><!-- wp:heading {\"level\":4} -->\n<h4><strong>About the Australian Bronchiectasis Registry<\/strong>\u00a0<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Lung Foundation Australia\u2019s Australian Bronchiectasis Registry (ABR) systematically collects data on people diagnosed with bronchiectasis, currently 1,380+ adults and children, to provide researchers around the world a critical source of rich data to fuel their studies. The ABR is nationally and internationally recognised for contributing data to\u00a0a number of\u00a0ground-breaking research projects. However, in order to continue this important body of work, funding support is needed. Find out more about the ABR and how you can help give hope for a brighter future.\u00a0<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:buttons {\"align\":\"center\"} -->\n<div class=\"wp-block-buttons aligncenter\"><!-- wp:button -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link\" href=\"https:\/\/lungfoundation.com.au\/research\/our-research\/bronchiectasis\/\">Read more<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons --><\/div><\/div>\n<!-- \/wp:media-text -->\n\n<!-- wp:paragraph -->\n<p><\/p>\n<!-- \/wp:paragraph -->","post_title":"Freddy's story","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"freddys-story","to_ping":"","pinged":"","post_modified":"2021-04-18 08:33:39","post_modified_gmt":"2021-04-17 22:33:39","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=story&#038;p=4603","menu_order":0,"post_type":"story","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":376,"post_author":"3","post_date":"2018-09-05 16:11:08","post_date_gmt":"2018-09-05 06:11:08","post_content":"<h3 class=\"lead\">I tend to keep my condition to myself, mainly because you just don\u2019t want people to judge, you don\u2019t want to be treated any differently.<\/h3>\r\n[youtube https:\/\/www.youtube.com\/watch?v=GnNgX40cBFI?rel=0]\r\nMy name is Jeff Fisher, I am 34 years of age and I have moderate bronchiectasis, a lung condition characterised by chronic infection in small airways that results in some parts of the lung becoming damaged, scarred and dilated, allowing infected mucus to build up in pockets.\r\n\r\nI'm not one hundred per cent sure when I was diagnosed with bronchiectasis as I was quite young however the primary cause was pneumocystis pneumonia which I had when I was three months old. The infection was caused by an underlying immune deficiency that made me susceptible to frequent chest infections. This resulted in scarring and thickening of my bronchi. I believe the diagnosis of bronchiectasis was made progressively using CT scans in the following years. This is when I experienced symptoms including a persistent cough, frequent chest infections, increase in chest secretions and shortness of breath.\r\n<blockquote>When I was initially diagnosed with bronchiectasis, I was fairly unaware of it and what it meant, as I was young. To me, it was an annoying cough and the occasional chest infection, similar to what other kids would experience in the cooler months of the year.<\/blockquote>\r\nI've managed my health well through exercise and regular airway clearance which means I can minimise my cough and conceal my symptoms. As I\u2019ve gotten older, I've become more aware of the condition though as it has affected my fitness and I frequently experience shortness of breath.\r\n\r\nWhen I do experience a flare-up of my symptoms, which happens once or twice a year, symptoms include a persistent cough and increased secretions (phlegm or mucus) and this is when I\u2019ve experienced the stigma attached to lung disease.\r\n\r\nPeople's automatic reactions range quite significantly. Some people are genuinely concerned whilst others are repulsed and appear disgusted \u2013 which is particularly understandable in the flu season although I do wish people would give me the benefit of the doubt. It can be quite demoralising.\r\n\r\nWhilst most people are understanding and sympathetic when I inform them of my condition, I feel like I shouldn\u2019t be judged before having the chance to explain it to them.\r\n<blockquote>\"When you think about what you go through day-to-day, to think people out there think it\u2019s self-inflicted and that is my own fault is quite hurtful.\"<\/blockquote>\r\nWhilst there are some things I can\u2019t do as easily as others, I do manage my condition well and live a regular day-to-day life. I've taken up rowing again recently which has been great for my lungs. I use an indoor rowing ergometer daily and when I am able, I like to get out and row on the Brisbane River or Moreton Bay. I've also travelled\u00a0all over Europe, New Zealand and Asia and am really looking forward to exploring the other continents in the future.\r\n\r\nI studied civil and electrical engineering and I now work in the water sector in strategic network planning and hydraulic modelling.\u00a0I'm enjoying applying electrical engineering techniques to traditional civil engineering applications. I've also continued to work on my electrical engineering thesis project which I finished earlier this year which was an electro-mechanical oscillating\u00a0positive pressure expiratory (OPEP) device. I'm in the middle of designing a new prototype\u00a0which I hope to finish over the coming weekends.\r\n\r\nI'm also really into maker culture so I always have a lot of tech projects on the go - I dabble in building robotics, drones, 3D printing and other gadgets.\r\n<h4>Sharing your personal experience with lung disease is a compelling and inspiring way for others to learn about and cope with their diagnosis. Your story may also encourage people to identify and act on symptoms they are experiencing, which may otherwise have been ignored.<\/h4>\r\n<h4><a href=\"https:\/\/lungfoundation.com.au\/get-involved\/how-you-can-help\/share-your-story\/\">Share your story, here<\/a>.<\/h4>","post_title":"Jeff's story","post_excerpt":"","post_status":"publish","comment_status":"open","ping_status":"closed","post_password":"","post_name":"jeffs-story","to_ping":"","pinged":"","post_modified":"2018-10-18 15:30:52","post_modified_gmt":"2018-10-18 05:30:52","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=story&#038;p=376","menu_order":0,"post_type":"story","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"helpful_links","heading":"Patient Conferences","image_display_setting":true,"links_list":[{"image":{"ID":84475,"id":84475,"title":"Computer icon","filename":"Computer-icon.png","filesize":8168,"url":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/09\/Computer-icon.png","link":"https:\/\/lungfoundation.com.au\/health-professionals\/clinical-information\/pulmonary-rehabilitation\/exercise-training\/computer-icon\/","alt":"Computer image","author":"85","description":"","caption":"","name":"computer-icon","status":"inherit","uploaded_to":5461,"date":"2021-09-08 12:04:17","modified":"2024-11-08 01:22:22","menu_order":0,"mime_type":"image\/png","type":"image","subtype":"png","icon":"https:\/\/lungfoundation.com.au\/wp-includes\/images\/media\/default.png","width":800,"height":800,"sizes":{"thumbnail":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/09\/Computer-icon-150x150.png","thumbnail-width":150,"thumbnail-height":150,"medium":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/09\/Computer-icon-300x300.png","medium-width":300,"medium-height":300,"medium_large":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/09\/Computer-icon-768x768.png","medium_large-width":768,"medium_large-height":768,"large":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/09\/Computer-icon.png","large-width":800,"large-height":800,"1536x1536":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/09\/Computer-icon.png","1536x1536-width":800,"1536x1536-height":800,"2048x2048":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/09\/Computer-icon.png","2048x2048-width":800,"2048x2048-height":800,"xxlarge":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/09\/Computer-icon.png","xxlarge-width":800,"xxlarge-height":800,"xlarge":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/09\/Computer-icon.png","xlarge-width":800,"xlarge-height":800,"header-navigation":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/09\/Computer-icon-480x800.png","header-navigation-width":480,"header-navigation-height":800,"link-category":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/09\/Computer-icon-380x256.png","link-category-width":380,"link-category-height":256,"card":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/09\/Computer-icon-450x450.png","card-width":450,"card-height":450,"gform-image-choice-sm":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/09\/Computer-icon.png","gform-image-choice-sm-width":300,"gform-image-choice-sm-height":300,"gform-image-choice-md":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/09\/Computer-icon.png","gform-image-choice-md-width":400,"gform-image-choice-md-height":400,"gform-image-choice-lg":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/09\/Computer-icon.png","gform-image-choice-lg-width":600,"gform-image-choice-lg-height":600}},"title":"European Bronchiectasis Patient Conference 2022","description":"<p>The Bronchiectasis Patient Conference 2022 took place online on Sunday 27 March. The conference focused on treatment and self-management. To access the free recordings from the conference follow the link below:<\/p>\n","link_url":"https:\/\/www.ersnet.org\/ers-respiratory-channel\/bronchiectasis-patient-conference-2022\/"}]},{"acf_fc_layout":"featured_content","heading":"Respiratory Care Nurse","copy":"The Respiratory Care Nurse telephone service is available for people living with Chronic Obstructive Pulmonary Disease (COPD) or bronchiectasis. Our skilled nurse can provide guidance on all aspects of your condition according to the management guidelines. The Respiratory Care Nurse aims to connect you with the information and support to live well with your lung condition.","image":{"ID":8306,"id":8306,"title":"IMG_4731 (1)","filename":"IMG_4731-1-scaled.jpg","filesize":442501,"url":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2020\/04\/IMG_4731-1-scaled.jpg","link":"https:\/\/lungfoundation.com.au\/lung-health\/protecting-your-lungs\/coronavirus-disease-covid-19\/health-and-wellbeing\/img_4731-1\/","alt":"","author":"85","description":"","caption":"","name":"img_4731-1","status":"inherit","uploaded_to":7766,"date":"2020-04-24 06:47:14","modified":"2020-04-24 06:47:14","menu_order":0,"mime_type":"image\/jpeg","type":"image","subtype":"jpeg","icon":"https:\/\/lungfoundation.com.au\/wp-includes\/images\/media\/default.png","width":1920,"height":2560,"sizes":{"thumbnail":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2020\/04\/IMG_4731-1-150x150.jpg","thumbnail-width":150,"thumbnail-height":150,"medium":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2020\/04\/IMG_4731-1-225x300.jpg","medium-width":225,"medium-height":300,"medium_large":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2020\/04\/IMG_4731-1-768x1024.jpg","medium_large-width":768,"medium_large-height":1024,"large":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2020\/04\/IMG_4731-1-768x1024.jpg","large-width":768,"large-height":1024,"1536x1536":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2020\/04\/IMG_4731-1-1152x1536.jpg","1536x1536-width":1152,"1536x1536-height":1536,"2048x2048":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2020\/04\/IMG_4731-1-1536x2048.jpg","2048x2048-width":1536,"2048x2048-height":2048,"xxlarge":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2020\/04\/IMG_4731-1-1440x1920.jpg","xxlarge-width":1440,"xxlarge-height":1920,"xlarge":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2020\/04\/IMG_4731-1-scaled.jpg","xlarge-width":960,"xlarge-height":1280,"header-navigation":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2020\/04\/IMG_4731-1-480x1080.jpg","header-navigation-width":480,"header-navigation-height":1080,"link-category":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2020\/04\/IMG_4731-1-380x256.jpg","link-category-width":380,"link-category-height":256,"card":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2020\/04\/IMG_4731-1-450x450.jpg","card-width":450,"card-height":450,"gform-image-choice-sm":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2020\/04\/IMG_4731-1-scaled.jpg","gform-image-choice-sm-width":225,"gform-image-choice-sm-height":300,"gform-image-choice-md":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2020\/04\/IMG_4731-1-scaled.jpg","gform-image-choice-md-width":300,"gform-image-choice-md-height":400,"gform-image-choice-lg":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2020\/04\/IMG_4731-1-scaled.jpg","gform-image-choice-lg-width":450,"gform-image-choice-lg-height":600}},"button":{"":null,"button_type":"Link Button","link":{"title":"Book an appointment ","url":"https:\/\/lungfoundation.com.au\/find-a-service\/respiratory-care-nurse\/?service-card=7","target":"_blank"},"email":"","file":false,"modal_trigger":"","button_text":""}}],"subtitle":"","disable_header_overlay":false},"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/7256","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/users\/85"}],"replies":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/comments?post=7256"}],"version-history":[{"count":10,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/7256\/revisions"}],"predecessor-version":[{"id":91604,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/7256\/revisions\/91604"}],"up":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/1329"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/media\/3141"}],"wp:attachment":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/media?parent=7256"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}