{"id":19157,"date":"2021-06-15T12:05:31","date_gmt":"2021-06-15T02:05:31","guid":{"rendered":"https:\/\/lungfoundation.com.au\/?page_id=19157"},"modified":"2022-04-01T12:09:10","modified_gmt":"2022-04-01T02:09:10","slug":"resources","status":"publish","type":"page","link":"https:\/\/lungfoundation.com.au\/patients-carers\/after-your-diagnosis-title\/mental-health\/resources\/","title":{"rendered":"Resources"},"content":{"rendered":"","protected":false},"excerpt":{"rendered":"","protected":false},"author":85,"featured_media":19263,"parent":10397,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-19157","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"\nResources - Lung Foundation Australia<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lungfoundation.com.au\/patients-carers\/after-your-diagnosis-title\/mental-health\/resources\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Resources - 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Review our Resource Hub for videos, blogs and links to external support services.","link":""},{"acf_fc_layout":"featured_posts_static","heading":"Mindfulness and Self-Compassion Guided Practices","view_more_link":"","posts":[{"ID":19156,"post_author":"85","post_date":"2021-06-15 11:57:31","post_date_gmt":"2021-06-15 01:57:31","post_content":"<!-- wp:paragraph -->\n<p>The Mind Matters series is presented by Tracie Story (Social Worker, Counselor & Therapist) and aims to support your mental health over five videos by teaching you calming techniques. In our first Mind Matters video Tracie will teach you how to ground yourself and bring your focus to the present moment. <br>To access other Mind Matters videos click here. <br><br>For information about your lung disease you would be welcome to contact our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information & Support Centre<\/a> on <a href=\"tel:1800654301\">1800 654 301<\/a>.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" id=\"block-22b965a3-4c22-468a-8abb-c71d56451cd1\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 id=\"block-ed2aceab-b54d-430a-b933-3cd3ee9b2431\">Are you looking for more information about caring for your mental health and wellbeing?<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:buttons {\"contentJustification\":\"center\"} -->\n<div class=\"wp-block-buttons is-content-justification-center\"><!-- wp:button -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link\" href=\"https:\/\/lungfoundation.com.au\/patients-carers\/after-your-diagnosis-title\/mental-health\/\">Visit our Mind Matters Information Hub<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->","post_title":"Mind Matters Series: Grounding","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"mind-matters-series-grounding","to_ping":"","pinged":"","post_modified":"2021-06-15 12:01:37","post_modified_gmt":"2021-06-15 02:01:37","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=19156","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":19155,"post_author":"85","post_date":"2021-06-15 11:54:28","post_date_gmt":"2021-06-15 01:54:28","post_content":"<!-- wp:paragraph -->\n<p>The Mind Matters series is presented by Tracie Story (Social Worker, Counselor & Therapist) and aims to support your mental health over five videos by teaching you calming techniques. In our second Mind Matters video Tracie will teach you how to conduct a body scan to help you identify the difference between thinking about a sensation and feeling a sensation. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>To access other Mind Matters videos click <a href=\"https:\/\/lungfoundation.flywheelsites.com\/resources\/?user_category=31&search=mind%20matters\">here<\/a>. For information about your lung disease you would be welcome to contact our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information & Support Centre<\/a> on <a href=\"tel:1800654301\">1800 654 301<\/a>.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Are you looking for more information about caring for your mental health and wellbeing?<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:buttons {\"contentJustification\":\"center\"} -->\n<div class=\"wp-block-buttons is-content-justification-center\"><!-- wp:button -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link\" href=\"https:\/\/lungfoundation.com.au\/patients-carers\/after-your-diagnosis-title\/mental-health\/\">Visit our Mind Matters Information Hub<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->","post_title":"Mind Matters Series: Body Scan","post_excerpt":"Mental Health, Mind Matters, Mindfulness, self-care, Support","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"mind-matters-series-body-scan","to_ping":"","pinged":"","post_modified":"2021-06-15 12:01:44","post_modified_gmt":"2021-06-15 02:01:44","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=19155","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":19153,"post_author":"85","post_date":"2021-06-15 11:48:37","post_date_gmt":"2021-06-15 01:48:37","post_content":"<!-- wp:paragraph -->\n<p>The Mind Matters series is presented by Tracie Story (Social Worker, Counselor & Therapist) and aims to support your mental health over five videos by teaching you calming techniques. In our third Mind Matters video Tracie will teach you how to cultivate awareness by helping you identify that each experience is made up by different elements; thinking, feeling and sensing. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>To access other Mind Matters videos click <a href=\"https:\/\/lungfoundation.flywheelsites.com\/resources\/?user_category=31&search=mind%20matters\">here<\/a>. For information about your lung disease you would be welcome to contact our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information & Support Centre<\/a> on <a href=\"tel:1800654301\">1800 654 301<\/a>.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" id=\"block-d8f28204-bb2f-4107-982c-19d1c413d1a1\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 id=\"block-68a960b6-c43f-4125-a6a3-5a5e6b6123e4\">Are you looking for more information about caring for your mental health and wellbeing?<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:buttons {\"contentJustification\":\"center\"} -->\n<div class=\"wp-block-buttons is-content-justification-center\"><!-- wp:button -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link\" href=\"https:\/\/lungfoundation.com.au\/patients-carers\/after-your-diagnosis-title\/mental-health\/\">Visit our Mind Matters Information Hub<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->","post_title":"Mind Matters Series: Cultivating Awareness","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"mind-matters-series-cultivating-awareness","to_ping":"","pinged":"","post_modified":"2021-06-15 11:50:01","post_modified_gmt":"2021-06-15 01:50:01","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=19153","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"","view_more_link":"","posts":[{"ID":19150,"post_author":"85","post_date":"2021-06-15 11:35:24","post_date_gmt":"2021-06-15 01:35:24","post_content":"<!-- wp:paragraph -->\n<p>The Mind Matters series is presented by Tracie Story (Social Worker, Counsellor & Therapist) and aims to support your mental health over five videos by teaching you calming techniques. In our fourth Mind Matters video Tracie will teach you how conduct kindness meditation. To access other mind matters videos click <a href=\"https:\/\/lungfoundation.flywheelsites.com\/resources\/?user_category=31&search=mind%20matters\">here<\/a>. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>For information about your lung disease you would be welcome to contact our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information & Support Centre<\/a> on <a href=\"tel:1800654301\">1800 654 301<\/a>.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" id=\"block-d8f28204-bb2f-4107-982c-19d1c413d1a1\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 id=\"block-68a960b6-c43f-4125-a6a3-5a5e6b6123e4\">Are you looking for more information about caring for your mental health and wellbeing?<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:buttons {\"contentJustification\":\"center\"} -->\n<div class=\"wp-block-buttons is-content-justification-center\"><!-- wp:button -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link\" href=\"https:\/\/lungfoundation.com.au\/patients-carers\/after-your-diagnosis-title\/mental-health\/\">Visit our Mind Matters Information Hub<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->","post_title":"Mind Matters Series: Kindness Meditation","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"mind-matters-series-kindness-meditation","to_ping":"","pinged":"","post_modified":"2021-06-15 11:50:33","post_modified_gmt":"2021-06-15 01:50:33","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=19150","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":19149,"post_author":"85","post_date":"2021-06-15 11:33:08","post_date_gmt":"2021-06-15 01:33:08","post_content":"<!-- wp:paragraph -->\n<p>The Mind Matters series is presented by Tracie Story (Social Worker, Counsellor & Therapist) and aims to support your mental health over five videos by teaching you calming techniques. In our final Mind Matters video Tracie will teach you how to use the sooth, soften and allow process to deal with difficult situations where you feel stuck. To access other Mind Matters videos click <a href=\"https:\/\/lungfoundation.flywheelsites.com\/resources\/?user_category=31&search=mind%20matters\">here<\/a>. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>For information about your lung disease you would be welcome to contact our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information & Support Centre <\/a>on <a href=\"tel:1800654301\">1800 654 301<\/a>.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Are you looking for more information about caring for your mental health and wellbeing?<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:buttons {\"contentJustification\":\"center\"} -->\n<div class=\"wp-block-buttons is-content-justification-center\"><!-- wp:button -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link\" href=\"https:\/\/lungfoundation.flywheelsites.com\/patients-carers\/after-your-diagnosis-title\/mental-health\/\">Visit our Mind Matters Information Hub<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->","post_title":"Mind Matters Series: Soften, Sooth, Allow","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"mind-matters-series-soften-sooth-allow","to_ping":"","pinged":"","post_modified":"2021-06-15 11:50:14","post_modified_gmt":"2021-06-15 01:50:14","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=19149","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":19147,"post_author":"85","post_date":"2021-06-15 11:28:10","post_date_gmt":"2021-06-15 01:28:10","post_content":"<!-- wp:paragraph -->\n<p id=\"block-62e19f8d-25a0-44e5-8f69-0971a2407a79\">Welcome to our Mind Matters series for guided practices for mindfulness and self-compassion. In our five episode series, Tracie Story (Social Worker) will be taking us through the following practices:<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul id=\"block-9223bb36-5a37-45e9-adb0-61c69a584a5c\"><li>Grounding<\/li><li>Body scans<\/li><li>Cultivating awareness<\/li><li>Kindness Meditation<\/li><li>Soften, Sooth, Allow<\/li><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:paragraph -->\n<p id=\"block-93a64098-7785-43d0-a702-883f25cd0056\">For information about your lung disease you would be welcome to contact our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information & Support Centre<\/a> on <a href=\"tel:1800654301\">1800 654 301<\/a>.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Mind Matters Series (Playlist)","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"mind-matters-series-playlist","to_ping":"","pinged":"","post_modified":"2021-07-01 14:21:17","post_modified_gmt":"2021-07-01 04:21:17","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=19147","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"Blogs","view_more_link":"","posts":[{"ID":19076,"post_author":"85","post_date":"2020-12-14 13:15:00","post_date_gmt":"2020-12-14 03:15:00","post_content":"<!-- wp:paragraph -->\n<p><strong>Some lung conditions can be life-limiting. Generally, your doctor will discuss this with you when you\u2019re diagnosed or shortly after. If you or a loved one have been diagnosed with a terminal lung condition, it can be a very difficult time. Each person will experience this differently, but there are some strategies that can help you to navigate and process those experiences<\/strong>. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:media-text {\"mediaId\":19077,\"mediaLink\":\"https:\\\/\\\/lungfoundation.com.au\\\/?attachment_id=19077\",\"mediaType\":\"image\",\"mediaWidth\":44} -->\n<div class=\"wp-block-media-text alignwide is-stacked-on-mobile\" style=\"grid-template-columns:44% auto\"><figure class=\"wp-block-media-text__media\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/06\/iStock-1137469598-1024x673.jpg\" alt=\"Family sitting around a coffee table discuss a life-limiting diagnosis\" class=\"wp-image-19077 size-full\" \/><\/figure><div class=\"wp-block-media-text__content\"><!-- wp:heading {\"level\":4} -->\n<h4>Talk about death and dying <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>It is not unusual for people to avoid conversations about death and dying with their loved ones, wider family and close friends when they have a life-limiting condition. Some of the most frequently cited reasons are a fear of upsetting loved ones, being too upset to talk and not wanting to be morbid. Most people try to protect their loved ones by avoiding the subject. In fact, for most people the opposite is true. Talking about these things can bring a sense of peace, a shared understanding and help to relieve stress and worry about what the other is thinking and feeling. Remember, it is okay to cry during these conversations. If you feel too distressed, pause, gather your thoughts and either continue or come back to it later. Tears are nature\u2019s \u2018pressure release valve\u2019 - they help to regulate emotions. <\/p>\n<!-- \/wp:paragraph --><\/div><\/div>\n<!-- \/wp:media-text -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Grounded in reality <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Lung diseases and lung cancer present challenges to both the person living with the condition and their loved ones. It is not unusual for a partner, or another family member, to express opinions that are opposite to the reality of the situation. In short, they might be in denial. That person may be resolute in their expectation of themselves or their loved one getting better and reject the idea that more care and support is needed, or that the time to discuss end-of-life issues has come.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>These are difficult conversations to have. Many factors affect why one or more people are in denial. However, the fact remains that eventually they will need to be brought around to facing the gravity and reality of the situation. Including your treating healthcare team can be very helpful in these instances as they are a third party and can help to take out much of the emotion attached to the denial.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>However, even after these types of conversations, people may still need time to adjust to the reality of the situation. As much as you may want someone to \u2018face reality\u2019, try to give them the time they need and don\u2019t be afraid to enlist the healthcare team to help again if needed. You don\u2019t have to do it all yourself. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Decide what is and isn\u2019t important <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>When you are adapting to the reality of a life-limiting lung condition, it is important to think about the things you are passionate about. Ask yourself: \u201cWhat is really important to me and my loved ones?\u201d. Then begin a list. When considering the list, you might find yourself writing down things that would be fun, exciting or adventurous, like climbing a mountain or going game fishing. While those types of things might be fun, are they really what is important to you? If yes, then you may try to find ways of achieving them. More likely, you will find other things on your list like: <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><li>Tell those close to you how much you love, admire and respect them <\/li><li>Sort out photos <\/li><li>Organise your finances <\/li><li>Spend time with people you like and love <\/li><li>Write or record some of your memories and history <\/li><li>Do things that create memories with those you care about <\/li><li>Apologise or repair a relationship that matters <\/li><li>Make a Will, advance care directive and enduring power of attorney. <\/li><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:paragraph -->\n<p>There will be many other things you can write on your list but if you use your values and passions to guide what you write, many of those things will be achievable. Try to remember to be kind and compassionate towards yourself. Trying to be the best version of yourself and making each day count is something you might strive for, but you still need to have quiet days and days to rest and recover.   <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Examine possible future needs <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>As lung diseases and lung cancer progresses or changes, you may need to adapt your home in some way, shape or form to accommodate progression and decline in function. Discuss what might need to be done with your treating healthcare team in advance, so you can be prepared. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Emotional reactions <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Reconciling yourself with the prospect of a life-limiting condition will bring with it emotional reactions. Try to let the moments when these reactions hit, not scare you too much. Try to remind yourself that these reactions are normal and to be expected. Practice your kindness and compassion on yourself by reminding yourself that you don\u2019t have to be strong all the time; it is OK to show emotion and let those around you know you feel vulnerable at that moment. Ultimately, these shared moments may bring people closer together.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Are you looking for more information about caring for your mental health and wellbeing?<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:buttons {\"contentJustification\":\"center\"} -->\n<div class=\"wp-block-buttons is-content-justification-center\"><!-- wp:button -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link\" href=\"https:\/\/lungfoundation.com.au\/patients-carers\/after-your-diagnosis-title\/mental-health\/\">Visit our Mind Matters Information Hub<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->","post_title":"Living with a life-limiting lung condition","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"living-with-a-life-limiting-lung-condition","to_ping":"","pinged":"","post_modified":"2021-06-29 09:56:24","post_modified_gmt":"2021-06-28 23:56:24","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=article&p=19076","menu_order":0,"post_type":"article","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":19078,"post_author":"85","post_date":"2021-01-14 13:28:00","post_date_gmt":"2021-01-14 03:28:00","post_content":"<!-- wp:paragraph -->\n<p><strong>It is not unusual to experience \u2018big feelings\u2019 or 'big emotions' when living with a lung condition. Many people experience higher than usual levels of anger, sadness, hopelessness, worthlessness, irritability, frustration, stress and impatience. Noticing that you might not be as calm as you once were, is another normal reaction to living with a lung condition.  <\/strong><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>These big feelings might become more evident when you are tired, sick or worried about something like going to a specialist appointment or receiving test results. If you notice you are experiencing higher than usual levels of negative emotions, this is a good time to talk to someone about how you are going. Your GP might be a good place to start and you may be able to get a referral to see a mental health professional. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:quote -->\n<blockquote class=\"wp-block-quote\"><p>\"<em>You need to give the mental health professionals time and capacity to help you.  Just give it a chance.<\/em>\"<\/p><cite>Anonymous, living with a Chronic Obstructive Pulmonary Disease. <\/cite><\/blockquote>\n<!-- \/wp:quote -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Tips for when you feel overwhelmed  <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>In general, when your brain is feeling overwhelmed, you are more likely to notice that your patience is reduced, you may be more likely to snap at people around you and feel higher levels of hopelessness and frustration.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p> One strategy to assist with these times is to acknowledge that you are feeling \u201cout of sorts\u201d. Let your mind be curious about what it is you are actually feeling. What is your self-talk saying to you? Write it down, as it can help with organising your thoughts. It might be that you are feeling overwhelmed by all your appointments, or maybe work is particularly busy, or you are wondering how you are going to afford medication or the house modifications you might need.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Look at the things you have written down and make a list of those you can do something about, and another for what is \u2018out of your control\u2019. Take one thing off the list you can do something about and get started on it; this action will help you feel more in control and should help to reduce some of the stress you feel.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:media-text {\"mediaPosition\":\"right\",\"mediaId\":19079,\"mediaLink\":\"https:\\\/\\\/lungfoundation.com.au\\\/?attachment_id=19079\",\"mediaType\":\"image\"} -->\n<div class=\"wp-block-media-text alignwide has-media-on-the-right is-stacked-on-mobile\"><figure class=\"wp-block-media-text__media\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/06\/iStock-1193778650-1024x684.jpg\" alt=\"Father and son discussing big feelings over a cup of tea. \" class=\"wp-image-19079 size-full\" \/><\/figure><div class=\"wp-block-media-text__content\"><!-- wp:paragraph -->\n<p>Another thing you can do is to tell your partner, family or trusted friends that you are feeling overwhelmed. When they know you are struggling, they will be less likely to take offence if you are snappy towards them. Talking to trusted people about how you feel helps them feel more connected to you, and you to them. It is OK to tell them you don\u2019t need them to fix anything, that you just want them to listen. <\/p>\n<!-- \/wp:paragraph --><\/div><\/div>\n<!-- \/wp:media-text -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>What if I just feel numb? <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Another way people can react to the impact of living with lung cancer or a lung disease, especially one that is life-limiting or significantly changes your lifestyle, is to feel nothing but numb. You might feel as if you are wading through molasses; people, things and even sound feel slightly muffled and removed. You might feel heavy and as if your reactions are slowed, and you just can\u2019t find the energy to smile or talk. Other people feel like they are on auto-pilot; they can feel themselves going through the motions but don\u2019t feel connected to the experience.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:quote -->\n<blockquote class=\"wp-block-quote\"><p>\"<em>At the time of diagnosis, I tried to be tough for everyone because your family falls to pieces. You just become numb and run on autopilot.<\/em>\"<\/p><cite>- Anonymous, living with Pulmonary Arterial Hypertension. <\/cite><\/blockquote>\n<!-- \/wp:quote -->\n\n<!-- wp:paragraph -->\n<p>This feeling of numbness or being on autopilot are aspects of dissociation. It is the brain\u2019s way of trying to protect you from feeling too much and is quite normal in certain circumstances. If you get these feelings, rest assured that you are not going crazy. However, if these feelings persist beyond a short period of time or begin to impact you in one or more domains of your life, you should seek assistance from a mental health professional.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Learning to \u2018sit with your emotions\u2019 <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>When we get upset, it is natural to try to push that feeling away. Generally, this strategy is not very effective. Instead, a good way to manage difficult emotions is to simply let them sit there for a while, eventually the emotion will change into another one, and a bit later change again.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Emotions are a bit like the weather; they change throughout any given day, depending on what we do and what happens around us. Learning to let emotions just sit with us and not actually trying to do anything about them can be a huge relief. When we open up to this possibility, we free ourselves to do other things. Sometimes we can help ourselves to change distressing emotions to something more positive by doing something we enjoy, something that normally gives us pleasure.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p> By reminding ourselves of the things we like doing, the things we are grateful for and the things that make our heart sing, we provide ourselves with opportunities to feel positive emotions and when we feel positive emotions, we are more able to feel optimistic and hopeful. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>You may wish to view our Mindfulness and Self-compassion guided practices, which can help to increase your ability to be present and flexible in our responses to life\u2019s joys and challenges.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Are you looking for more information about caring for your mental health and wellbeing?<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:buttons {\"contentJustification\":\"center\"} -->\n<div class=\"wp-block-buttons is-content-justification-center\"><!-- wp:button -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link\" href=\"https:\/\/lungfoundation.com.au\/patients-carers\/after-your-diagnosis-title\/mental-health\/\">Visit our Mind Matters Information Hub<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->\n\n<!-- wp:paragraph -->\n<p><\/p>\n<!-- \/wp:paragraph -->","post_title":"Living with big feelings","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"what-are-big-feelings","to_ping":"","pinged":"","post_modified":"2021-06-29 09:58:14","post_modified_gmt":"2021-06-28 23:58:14","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=article&p=19078","menu_order":0,"post_type":"article","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":19080,"post_author":"85","post_date":"2021-03-14 13:31:00","post_date_gmt":"2021-03-14 03:31:00","post_content":"<!-- wp:paragraph -->\n<p><strong>For people living with lung cancer and lung disease, dealing with stigma can cause feelings of guilt, shame and embarrassment, regardless of whether they have a history of smoking or not. One of our greatest challenges is to educate people that it does not matter how you came to have a lung condition, you are still deserving of care, support and understanding.  <\/strong><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>The second big challenge is to help people with a lung condition who do have a history of smoking not to feel high levels of shame and guilt. What is done is done. None of us are blessed with a crystal ball and the ability to see the future. There are many complex reasons why people smoke. Judging and placing blame on others or ourselves for smoking is of little help and only adds to the shame, guilt and embarrassment.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Developing a \u2018Thick Skin\u2019 <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>There will always be people we come across who are uneducated and naive about lung conditions. Outside of lung cancer and COPD, much of the population may not have heard of your condition, let alone understand the impact on you and your loved ones.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Comments such as \u201cyou don\u2019t look sick\u201d, \u201cyou look well\u201d or \u201cyou must have been a smoker\u201d are commonly reported to cause distress. The first two examples are meant to be a compliment, you can elect to receive them as such or you can decide to educate the person regarding what \"sick\" actually looks like. The last comment and those similar are just plain judgment. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:quote -->\n<blockquote class=\"wp-block-quote\"><p><strong><em>\"I have to work out how to cope when people say how well I look\u202f. Nobody asks you if you are okay. You look well because your condition is silent.<\/em>\"<\/strong><\/p><cite>- Anonymous, living with Idiopathic Pulmonary Disease.<\/cite><\/blockquote>\n<!-- \/wp:quote -->\n\n<!-- wp:paragraph -->\n<p>There is no right or wrong way to act when dealing with stigma and managing other people\u2019s perceptions and ignorance. How you respond will depend on a range of factors such as the setting, intent behind the words, how much energy and time you have, whether this person is worth educating.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p> For those people who you decide to educate, the following hints might help:  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><li>Bookmark on your mobile phone or computer a good educational page, such one of our webpages that describe your condition, and show them or email the link to them.  <\/li><li>You can develop a script that helps people to understand that invisible diseases rarely \u201clook sick\u201d.  <\/li><li>Develop a 30-second description of your lung condition for when time is tight. <\/li><li>Ask the person if they would like to know more. If they say no, move on, they weren\u2019t worth the time anyway. <\/li><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:image {\"align\":\"center\",\"id\":19081,\"width\":316,\"height\":228,\"sizeSlug\":\"large\",\"linkDestination\":\"none\"} -->\n<div class=\"wp-block-image\"><figure class=\"aligncenter size-large is-resized\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/06\/iStock-1205480426-1024x730.jpg\" alt=\"A woman dealing with stigma by educating a young man. \" class=\"wp-image-19081\" width=\"316\" height=\"228\" \/><\/figure><\/div>\n<!-- \/wp:image -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Know when walk away<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>For people who you decide are not worth educating, ignore them.  Silence is sometimes the best weapon. Turn your back and simply move away.   <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p> Sadly, there is no easy answer or easy set of strategies for dealing with stigma.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p> Sometime people\u2019s comments, stares or behaviour will upset you, that is unavoidable. Allow yourself to feel upset, if appropriate tell them so and as far as is humanly possible, imagine the words sliding off you in the same way water slides off a duck\u2019s feathers; put their comments in a bubble and let it drift away. Remind yourself that those words can only hurt you if you accept that they are true and accurate.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:quote -->\n<blockquote class=\"wp-block-quote\"><p><em>\u201cWhen someone is judgmental towards me, I ask myself is this going to matter in 5 minutes, 5 days, 5 weeks or 5 months? I have used that strategy for a long time.\u201d <\/em><\/p><cite><em>Anonymous, living with C<\/em>hronic Obstructive Pulmonary Disease.<\/cite><\/blockquote>\n<!-- \/wp:quote -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Are you looking for more information about caring for your mental health and wellbeing?<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:buttons {\"contentJustification\":\"center\"} -->\n<div class=\"wp-block-buttons is-content-justification-center\"><!-- wp:button -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link\" href=\"https:\/\/lungfoundation.com.au\/patients-carers\/after-your-diagnosis-title\/mental-health\/\">Visit our Mind Matters Information Hub<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->","post_title":"Dealing with stigma and shame","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"dealing-with-feelings-of-stigma-and-shame","to_ping":"","pinged":"","post_modified":"2021-06-29 09:59:21","post_modified_gmt":"2021-06-28 23:59:21","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=article&p=19080","menu_order":0,"post_type":"article","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"","view_more_link":null,"posts":[{"ID":19126,"post_author":"85","post_date":"2021-04-21 10:09:00","post_date_gmt":"2021-04-21 00:09:00","post_content":"<!-- wp:paragraph -->\n<p><strong>The addition of the partner-carer role to a couples\u2019 relationship can cause even the most stable of unions to become wobbly. Not all partnerships are \u201cfairytale happy\u201d and supportive; and if your relationship is already stressed, the addition of a partner-carer role will likely add to challenges you already face.  <\/strong><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Role changes <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Not all relationships undergo role changes when one of the couple is diagnosed with a lung condition but for chronic and life-limiting lung diseases, especially those that strike later in life, role changes can be confronting. In households with clear role delineation, set chores, responsibilities and rigid images of self, it can be especially difficult.   <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>When someone living with a lung condition has a career or job where they feel respected, in charge and work long hours, they may find it difficult to consider the prospect of retiring early or reducing their hours. Alternatively, a person who has kept house, cooked, cleaned and been the nurturing \u201cheart and soul\u201d of a family may find it difficult to relinquish these tasks and be cared for themselves.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>If you are in the partner-carer role and don\u2019t know how to start the lawn mower, watching the lawn grow higher can be distressing. Not only is it distressing for the person who has never had to do this household chore, but it can act as a stark reminder to the person with the lung condition that they are no longer able to do \u201ceven the simple things\u201d. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Many people derive much of their self-esteem from their work and activities; and when this is taken away, their mental health can suffer. It is a good idea to discuss the possible need to change some of the roles and responsibilities in the relationship to accommodate for changing health status. Discussing these things in advance and keeping the lines of communication open can help to ease the transition.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:quote -->\n<blockquote class=\"wp-block-quote\"><p><em><strong>Your relationship changes. \u202fSuddenly you both have a lack of energy to deal with everything. It's important to focus on the relationship and consider early on how it might change and work together to protect it.<\/strong> <\/em><\/p><cite>Anonymous, living with lung cancer.<\/cite><\/blockquote>\n<!-- \/wp:quote -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Restrictions and missing out <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Depending upon your loved one\u2019s lung condition and where they are in their progression, it will eventually become more difficult for them to do everything they used to do and want to do. Family and friends will issue invitations to different gatherings and events. Sometimes your loved one may attend but there will be times when they won\u2019t be able to accept due to their health limitations.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>This can be particularly hard on the partner-carer: you might feel torn. Do you stay home with your loved one or accept the invitation? There is no easy answer. Each time this question comes up, you will have to assess the situation and each time, the answer might be different. Sometimes you will accept the invitation, sometimes you won\u2019t and sometimes you will accept, then have to cancel at the last minute.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>For family and friends, the uncertainty and unpredictability can be difficult and it might even test relationships. Educating family and friends on the lung condition and keeping them \u201cin the loop\u201d will go a long way towards having them accept and accommodate the needs of you and your loved one.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Finding creative ways to not always miss out can help you both to feel like you are maintaining valuable connections with your circle of family and friends. If you have often hosted dinners or family barbeques yet the stress associated with this now makes it difficult, try asking everyone to bring a plate and to stay around to help clean up. You might be surprised how accepting and willing to help friends and family can be when asked. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Remember me? I\u2019m your spouse! <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>The time and stress associated with added responsibilities of being a partner-carer can significantly strain relationships. Finding ways to spend quality time together as a couple is an important step in making sure the relationship remains stable and fulfilling. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>The time and stress associated with added responsibilities of being a partner-carer can significantly strain relationships. Finding ways to spend quality time together as a couple is an important step in making sure the relationship remains stable and fulfilling. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:media-text {\"mediaId\":19127,\"mediaLink\":\"https:\\\/\\\/lungfoundation.com.au\\\/?attachment_id=19127\",\"mediaType\":\"image\"} -->\n<div class=\"wp-block-media-text alignwide is-stacked-on-mobile\"><figure class=\"wp-block-media-text__media\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/06\/iStock-1027141710-1024x694.jpg\" alt=\"Someone living with lung disease and their carer partner enjoying each others company outside.\" class=\"wp-image-19127 size-full\" \/><\/figure><div class=\"wp-block-media-text__content\"><!-- wp:paragraph -->\n<p>Finding a minimum of 20 minutes each day, free from distractions and solely focused on each other, is a great way to keep relationships strong. Talk about things other than children and household chores; talk about the things that help each of you feel heard, understood and valued. Keep an interest in your own and each other\u2019s thoughts and hopes. Along with talking, doing other things you both enjoy is fundamental to staying engaged with each other.  <\/p>\n<!-- \/wp:paragraph --><\/div><\/div>\n<!-- \/wp:media-text -->\n\n<!-- wp:quote -->\n<blockquote class=\"wp-block-quote\"><p><strong><em>\"Every night I check in with my wife and ask if there is anything she wants to talk about, so things don\u2019t build up through her looking after me<\/em>.\"<\/strong><\/p><cite>Anonymous, living with bronchiectasis. <\/cite><\/blockquote>\n<!-- \/wp:quote -->\n\n<!-- wp:paragraph -->\n<p>If you notice that things are becoming tense with your partner, it might be time for some tips and strategies from a relationship therapist before irreparable damage is done. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Are you looking for more information about caring for your mental health and wellbeing?<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:buttons {\"contentJustification\":\"center\"} -->\n<div class=\"wp-block-buttons is-content-justification-center\"><!-- wp:button -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link\" href=\"https:\/\/lungfoundation.com.au\/patients-carers\/after-your-diagnosis-title\/mental-health\/\">Visit our Mind Matters Information Hub<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->","post_title":"Becoming a partner-carer","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"becoming-a-partner-carer","to_ping":"","pinged":"","post_modified":"2021-06-29 10:06:44","post_modified_gmt":"2021-06-29 00:06:44","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=article&p=19126","menu_order":0,"post_type":"article","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":19128,"post_author":"85","post_date":"2021-04-28 10:29:00","post_date_gmt":"2021-04-28 00:29:00","post_content":"<!-- wp:paragraph -->\n<p><strong>For parents of a child with a lung condition, the role of caregiving can take on a whole new dimension. When we become parents, we immediately take on a caring role and most parents at some time have cared for an unwell child. However, for parents of a child with a lung condition, the impact of long-term parent-carer role can be profound.  <\/strong><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Expert navigator and advocate <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>As a parent-carer, it will primarily be up to you to know and understand any special needs that your child might have, monitor their condition and decide when and where you take them if they have an exacerbation or deteriorate. You will provide education to family, friends and others involved in your child\u2019s life, such as teachers and school staff, regarding what your child needs and any limitations they might have. You will become an expert at navigating the healthcare and education systems, and you will become your child\u2019s chief advocate.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Work\/Life Balance <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Whether you are able to maintain employment outside the home as the parent-carer of a chronically ill child will depend on many things, including the type of lung condition your child has, the severity, spousal or family support and financial circumstances. The challenges often mean a career will have to be put on hold. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Maintaining a career, as long as the demands and hours are manageable, can be a great way of keeping your sense of self outside of the parent-carer role. Flexible work arrangements are important to allow you to have time to attend appointments or if your child needs treatment, but these can be difficult to find.  If you find yourself being pulled in too many directions because of the demands of your work, reassessing may be necessary. There is no right or wrong answer when it comes to working or not working; it will depend on your circumstances. If you do work, try to ensure you still have time and energy left for yourself and your family.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Remember me? I\u2019m your spouse! <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Having a child with a lung condition can add considerable responsibilities to the parent-carer role. The time and stress associated can significantly strain parents\u2019 relationships. Finding ways to spend quality time together as a couple is an important step in making sure the relationship remains stable and fulfilling.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Finding a minimum of 20 minutes each day, free from distractions and solely focused on each other, is a great way to help keep relationships strong. Talk about things other than the kids and household chores; try to talk about things that help each of you feel heard, understood and valued. Keep an interest in your own and your partner's dreams and hopes. Along with talking, doing things together that you both enjoy is fundamental to staying engaged with each other.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>If you notice that things are getting a bit tense with your partner, it might be time to get some tips and strategies from a relationship therapist before any irreparable damage is done.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Siblings <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>In addition to finding time to spend with your spouse, making time for your other children is also important. Family dynamics can be tricky to manage with the added requirements of caring for chronically ill child along with the usual family routines and schedules. It is normal for healthy siblings to carry an emotional burden in relation to their unwell sibling.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:media-text {\"mediaId\":19129,\"mediaLink\":\"https:\\\/\\\/lungfoundation.com.au\\\/?attachment_id=19129\",\"mediaType\":\"image\"} -->\n<div class=\"wp-block-media-text alignwide is-stacked-on-mobile\"><figure class=\"wp-block-media-text__media\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/06\/iStock-1152838913-1024x709.jpg\" alt=\"Parent-carer talking to a sibling of a child living with a lung condition. \" class=\"wp-image-19129 size-full\" \/><\/figure><div class=\"wp-block-media-text__content\"><!-- wp:paragraph -->\n<p>They might worry about the illness or treatment their sibling needs to have. Their imagination about the illness and the treatment will generally be far worse than the truth. This also opens up space for them to ask questions and to be reassured, using simple and age-appropriate language. Engaging them as far as is appropriate in medical or hospital visits and treatment helps them to feel part of the team. <\/p>\n<!-- \/wp:paragraph --><\/div><\/div>\n<!-- \/wp:media-text -->\n\n<!-- wp:paragraph -->\n<p>Any change to their normal behaviour could indicate that they are not managing the situation well. Children can act out, become withdrawn, pick fights or show resentment. It isn\u2019t unusual for the healthy sibling to wish they too were sick, in order to get some time with their parents. Letting teachers and their school know about their sibling\u2019s illness can also assist in watching out for undue emotional stress and catching it before it becomes too much of a problem. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Regularly setting time aside for each of the children will help maintain good family dynamics and alleviate feelings of resentment. Let your other children know it is OK to ask for help, they are not being a bother, you understand they have needs too and as their parent, you want to know all about the things that matter to them as well.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" id=\"block-cee8800c-09e1-44da-ae1b-7eb1b1025d0d\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 id=\"block-c4b3a03d-ec84-4f10-abc0-7fd816f6564f\">Are you looking for more information about caring for your mental health and wellbeing?<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:buttons {\"contentJustification\":\"center\"} -->\n<div class=\"wp-block-buttons is-content-justification-center\"><!-- wp:button -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link\" href=\"https:\/\/lungfoundation.com.au\/patients-carers\/after-your-diagnosis-title\/mental-health\/\" target=\"_blank\" rel=\"noreferrer noopener\">Visit our Mind Matters Information Hub<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->","post_title":"The role of a parent-carer","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"the-role-of-a-parent-carer","to_ping":"","pinged":"","post_modified":"2021-06-29 10:06:05","post_modified_gmt":"2021-06-29 00:06:05","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=article&p=19128","menu_order":0,"post_type":"article","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":19130,"post_author":"85","post_date":"2021-05-03 10:34:00","post_date_gmt":"2021-05-03 00:34:00","post_content":"<!-- wp:paragraph -->\n<p><strong>Looking after yourself as a carer to guard against burnout is extremely important. When you are caring for a loved one, you may lose sight of the need for, and benefits of, self-care to maintain your own emotional and physical wellbeing. It can be difficult to find time to prioritise your own wellbeing and even when you do take time for yourself, you may still feel guilty. Self-care is not selfish but an essential thing that all carers need to do. Remind yourself that this time away from your loved one will help you to avoid burnout and to return to your carer role with renewed vigour and energy. <\/strong><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>If you do struggle with feelings of guilt, try to <a href=\"https:\/\/www.youtube.com\/playlist?list=PLx5RMZtuxzUS6XD6r-jf6kcB5X2vRf6Uc\" target=\"_blank\" rel=\"noreferrer noopener\">practice mindfulness<\/a> on that emotion, let it sit there for a while, then let it pass.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4> Some ways you can practise self-care: <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:list -->\n<ul><li>Find someone to talk to, a friend, support group or mental health professional <\/li><li>As much as possible, maintain daily routines<\/li><li>Try to eat healthy food <\/li><li>Allow yourself time to rest  <\/li><li>Get some exercise, even if just a walk around the block <\/li><li>Have a regular bedtime and wake-up time <\/li><li>Book regular appointments with your GP, dentist, hairdresser and other services that help you to stay healthy and feel good <\/li><li>Ask for help from family, friends, support services <\/li><li>Allow yourself to have \u2018good days\u2019 and \u2018bad days\u2019, \u2018good moments\u2019 and \u2018bad moments\u2019 <\/li><li>Accept that there will be times when you feel angry, frustrated and upset. This is normal and does not mean you are a bad person or carer <\/li><li>Get advice on what is realistic for you to achieve  <\/li><li>Make time for hobbies and interests that make you feel good <\/li><li>Ask friends to come around for a chat and visit them <\/li><li>Make a list of things that you can do when you feel a bit flat and low. <\/li><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:quote -->\n<blockquote class=\"wp-block-quote\"><p><strong>\"<em>You can become very overloaded and I have had trouble even reading a newspaper. It is important to undertake restorative activities like yoga or meditation. Doing exercise also helps my mental health. It helps me stay in the moment.\"<\/em><\/strong><\/p><cite>- Anonymous, parent-carer for someone living with Pulmonary Arterial Hypertension. <\/cite><\/blockquote>\n<!-- \/wp:quote -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Recognising carer burnout <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:media-text {\"mediaId\":19131,\"mediaLink\":\"https:\\\/\\\/lungfoundation.com.au\\\/?attachment_id=19131\",\"mediaType\":\"image\"} -->\n<div class=\"wp-block-media-text alignwide is-stacked-on-mobile\"><figure class=\"wp-block-media-text__media\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/06\/iStock-1157317608-1024x683.jpg\" alt=\"A carer relaxing with a cup of tea as a strategy to combat carer burnout. \" class=\"wp-image-19131 size-full\" \/><\/figure><div class=\"wp-block-media-text__content\"><!-- wp:paragraph -->\n<p>Every caregiver still needs to make time to do things for themselves. Caregivers still need to go to their own appointments, get a haircut, catch up with friends, go shopping, pursue a hobby, have time to bathe, do household chores and just relax with a good book or TV show. Caring for someone who is unwell can eat into your available time to do the things you need to do for yourself, including relaxing and resting. <\/p>\n<!-- \/wp:paragraph --><\/div><\/div>\n<!-- \/wp:media-text -->\n\n<!-- wp:paragraph -->\n<p>If you don\u2019t find time to pursue these things, or repeatedly put them off, you will eventually be at risk of caregiver burnout. Burnout is a very real dilemma for many carers, especially if they have been in a caring role for a long time or there has been an intense period of caring and worry.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:quote -->\n<blockquote class=\"wp-block-quote\"><p><em><strong>\"I realised there was no use trying to be<\/strong><\/em><strong><em> mighty woman<\/em>.\" <\/strong><\/p><cite>-Anonymous, carer for someone living with bronchiectasis. <\/cite><\/blockquote>\n<!-- \/wp:quote -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Signs of carer burnout <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Burnout is generally described as a \u2018state of physical, emotional and mental exhaustion\u2019. Looking out for the early signs is essential, as it is easier to get back to your \u2018normal self\u2019 if you recognise it and intervene early. Let other people you are close with know the signs, as sometimes caregivers are the last person to notice or acknowledge that they are not feeling good.  Signs and symptoms of caregiver burnout may include: <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><li>Changes to sleep <\/li><li>Irritability <\/li><li>Feeling like you can\u2019t concentrate <\/li><li>Withdrawing from family, friends and social activities  <\/li><li>Losing interest in things that you once found enjoyable <\/li><li>Change in appetite, weight or both <\/li><li>Feeling flat and low <\/li><li>Teary <\/li><li>Mood swings <\/li><li>Feelings of hopelessness and helplessness <\/li><li>Lack of energy or feeling exhausted <\/li><li>Experiencing suicidal thoughts <\/li><li>Having thoughts that you want to hurt the person you are caring for. <\/li><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:paragraph -->\n<p>If you are experiencing all or some of these, you should talk to a mental health professional about the fact that you might be experiencing carer burnout. You can recover and prevent it with support and self-care routines.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Respite <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>More formal respite care might not be necessary for everyone but for some, it will be essential. Respite can come in many forms and each state and territory will have different options and processes. Talking to your GP, respiratory team and\/or local hospital is a good place to start finding out what might be available and suitable.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Formal respite care can allow the carer to undertake some essential self-care, firm in the knowledge that their loved one is also well cared for. Some respite can be done in home for a few hours at a time while other respite might be for longer periods in assisted care facilities.   <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Making time for yourself is what gives you the capacity to carry on caring. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Are you looking for more information about caring for your mental health and wellbeing?<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:buttons {\"contentJustification\":\"center\"} -->\n<div class=\"wp-block-buttons is-content-justification-center\"><!-- wp:button -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link\" href=\"https:\/\/lungfoundation.com.au\/patients-carers\/after-your-diagnosis-title\/mental-health\/\">Visit our Mind Matters Information Hub<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->","post_title":"Avoiding carer burnout","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"avoiding-carer-burnout","to_ping":"","pinged":"","post_modified":"2021-06-29 10:07:24","post_modified_gmt":"2021-06-29 00:07:24","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=article&p=19130","menu_order":0,"post_type":"article","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"","view_more_link":null,"posts":[{"ID":19132,"post_author":"85","post_date":"2021-05-01 10:42:00","post_date_gmt":"2021-05-01 00:42:00","post_content":"<!-- wp:heading {\"level\":4} -->\n<h4>What to do if you\u2019re feeling helpless as a carer <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>When you are caring for a loved one, you need to develop strategies to deal with your own negative feelings and stress. A sense of helplessness is not unusual for families and friends in a carer role.  Feelings of helplessness can be particularly heightened if the carer is result-orientated and used to making things happen. If you notice yourself thinking \u201csurely there has to be something that can be done\u201d or similar, you are more at risk of feeling a sense of helplessness at some point as you care for your loved one.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:quote -->\n<blockquote class=\"wp-block-quote\"><p><strong>\"<em>If you are a person who is used to solving problems, then it is very difficult because there are no answers.\"<\/em> <\/strong><\/p><cite>- Anonymous, living with lung cancer. <\/cite><\/blockquote>\n<!-- \/wp:quote -->\n\n<!-- wp:paragraph -->\n<p>There will be times when the best thing you can do is to just stay close (metaphorically or physically, depending on the circumstance) to let your loved one know that you are there for them and available if they need you. This might be as simple as staying physically close while your loved one has a bout of coughing which feels like it will never end; or when your loved one tries to catch their breath after a brief physical exertion. In both these circumstances, the most supportive thing you may be able to do is to just be present, even though it might feel like it is not enough.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Other times, you might not want to accept the diagnosis or trajectory of the lung condition. You might want to find a \u2018miracle cure\u2019, that doctor who can operate or provide medication to \u2018fix\u2019 your loved one. These feelings of needing to do something, and feeling helpless if you don\u2019t try, are common. One of the best things you can do is to simply be there. Hug, hang out and be as \u2018normal\u2019 as possible in your relationship with the person who is living with a lung condition. This is especially important as the more serious, life-limiting lung diseases progress.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:media-text {\"mediaId\":19133,\"mediaLink\":\"https:\\\/\\\/lungfoundation.com.au\\\/?attachment_id=19133\",\"mediaType\":\"image\"} -->\n<div class=\"wp-block-media-text alignwide is-stacked-on-mobile\"><figure class=\"wp-block-media-text__media\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/06\/iStock-1263543059-1024x683.jpg\" alt=\"Family members combatting feelings of helplessness by hugging. \" class=\"wp-image-19133 size-full\" \/><\/figure><div class=\"wp-block-media-text__content\"><!-- wp:paragraph -->\n<p>Never underestimate the power of touch and wonderfulness of a heartfelt hug. It is OK to be close to loved ones when they are seriously unwell. If your loved one is in hospital and has tubes and machines attached to them, find a way to wind your arms around the tubes to touch and hug them; times like these is when the power of touch is most important. <\/p>\n<!-- \/wp:paragraph --><\/div><\/div>\n<!-- \/wp:media-text -->\n\n<!-- wp:paragraph -->\n<p>Lastly, allow yourself the right to feel helplessness. It is often linked to how much we care about the other person. The thought that there might not be something to \u2018fix\u2019 and still wanting to show how much we care can be excruciating. Like all emotional reactions it will pass, especially if we acknowledge that we are feeling it and that it has a right to be there. View our <a href=\"https:\/\/www.youtube.com\/watch?v=EDsAn_3rk0g&list=PLx5RMZtuxzUS6XD6r-jf6kcB5X2vRf6Uc\" target=\"_blank\" rel=\"noreferrer noopener\">mindfulness and self-compassion guided practices,<\/a> which can help you to cultivate helpful skills when experiencing painful or difficult emotions.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Are you looking for more information about caring for your mental health and wellbeing?<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:buttons {\"contentJustification\":\"center\"} -->\n<div class=\"wp-block-buttons is-content-justification-center\"><!-- wp:button -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link\" href=\"https:\/\/lungfoundation.com.au\/patients-carers\/after-your-diagnosis-title\/mental-health\/\">Visit our Mind Matters Information Hub<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->","post_title":"Feelings of helplessness in carers","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"feelings-of-helplessness-in-carers","to_ping":"","pinged":"","post_modified":"2021-06-29 10:08:12","post_modified_gmt":"2021-06-29 00:08:12","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=article&p=19132","menu_order":0,"post_type":"article","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":19135,"post_author":"85","post_date":"2021-06-15 10:48:58","post_date_gmt":"2021-06-15 00:48:58","post_content":"<!-- wp:heading {\"level\":4} -->\n<h4>Tips for living with lung disease and lung cancer in \u2018new normal\u2019 <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:quote -->\n<blockquote class=\"wp-block-quote\"><p><strong>\u201cHumans are social creatures and we are not used to social distancing. The difficult part of social distancing is that we can start to feel disconnected from each other. As a result, it\u2019s normal to start to have feelings of isolation, loneliness and sadness which can affect mental health.\u201d<\/strong><\/p><cite>- Debra Sandford, Clinical Psychologist<\/cite><\/blockquote>\n<!-- \/wp:quote -->\n\n<!-- wp:paragraph -->\n<p>The mental health impact of COVID-19 continues to be felt in Australia with the ongoing risk of outbreaks, unexpected short-term lockdowns and restrictions. Lung Foundation Australia, in collaboration with Clinical Psychologist Debra Sandford, offers the following advice for looking after your mental health during this time. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>There is no stereotypical way for people to react to these unprecedented times. For many, their lives for the foreseeable future will be greatly affected by COVID-19 either emotionally, physically or financially, or even all three. It\u2019s normal to develop feelings of anxiousness, distress, fear and even anger.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>It is important to prioritise your physical and mental health. These strategies may help you to cope with feelings that arise while you are social distancing or self-isolating.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Coping with self-isolation and social distancing <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:heading {\"level\":5} -->\n<h5>Maintain perspective  <\/h5>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>If you are feeling anxious or worried about the current situation, remember that health professionals, government officials and researchers are working tirelessly to help those in need and slow the spread of the disease. This is a global issue, which means the world\u2019s best minds are working to solve it.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":5} -->\n<h5>Limit media intake  <\/h5>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>It\u2019s important to keep up-to-date with new announcements but don\u2019t let the 24\/7 news cycle control your life. Know when to switch off, as repeated exposure can increase feelings of anxiety for most people.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Debra recommends: \u201cCheck the news in the morning, perhaps just half an hour to catch up with what\u2019s happened overnight, then again listen to the evening news. It\u2019s important to disconnect during the day to give yourself a break.\u201d <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":5} -->\n<h5>Follow government advice  <\/h5>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>The Federal and State Governments are regularly updating advice on how to protect yourself, the COVID-19 vaccination rollouts, current restrictions and health alerts. It can feel overwhelming when the information on restrictions and travel can change so frequently; find the most current information via <a href=\"https:\/\/www.health.gov.au\/\" target=\"_blank\" rel=\"noreferrer noopener\">health.gov.au<\/a>.   <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":5} -->\n<h5>Health and wellbeing  <\/h5>\n<!-- \/wp:heading -->\n\n<!-- wp:media-text {\"mediaId\":19136,\"mediaLink\":\"https:\\\/\\\/lungfoundation.com.au\\\/?attachment_id=19136\",\"mediaType\":\"image\",\"mediaWidth\":39} -->\n<div class=\"wp-block-media-text alignwide is-stacked-on-mobile\" style=\"grid-template-columns:39% auto\"><figure class=\"wp-block-media-text__media\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/06\/iStock-1167942965-1024x578.jpg\" alt=\"Older woman exercising to reduce the mental impact of COVID-19. \" class=\"wp-image-19136 size-full\" \/><\/figure><div class=\"wp-block-media-text__content\"><!-- wp:paragraph -->\n<p>Keeping well physically may help to improve your mental wellbeing and reduce the impact of COVID-19. Regularly drink water, eat healthy and nourishing food to fuel your body and try to keep your body moving. Now might be the time to talk to your GP or an exercise physiologist about a home-based exercise program. Try to establish a regular sleeping pattern, as this will help you to maintain your normal routine and feel more at ease. <\/p>\n<!-- \/wp:paragraph --><\/div><\/div>\n<!-- \/wp:media-text -->\n\n<!-- wp:paragraph -->\n<p>Debra says: \u201cIf you are struggling to exercise because of your health, try sitting out in the fresh air and getting some sunshine. This will help you feel a bit better and it will definitely help with your sleep routine.\u201d  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Living with others in lockdown <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>The impact of COVID-19 lockdowns and restrictions mean you may be spending more time at home with your family or housemates than you typically would. Equip yourself early with the tools to manage household politics, as conflict in the home can take a toll on your mental health.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:quote -->\n<blockquote class=\"wp-block-quote\"><p><strong>\"<em>The isolation is difficult, you miss doing things spontaneously. Not going out and interacting with others, means you have less to talk about with your partner.<\/em>\"<\/strong><\/p><cite>- Anonymous, living with lung cancer. <\/cite><\/blockquote>\n<!-- \/wp:quote -->\n\n<!-- wp:heading {\"level\":5} -->\n<h5>Set rules and boundaries  <\/h5>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Have all the household members come together when everyone is feeling calm and discuss rules or boundaries you each have that may make life easier during this time. It might be having a designated \u201cquiet hour\u201d or developing a roster of chores.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":5} -->\n<h5>Connect  <\/h5>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Schedule time each day to focus on making the most of each other\u2019s company: sit down for a meal, play a board game, watch a television show. Make it an activity that everyone enjoys to create a happy environment. This is a challenging time for everyone, so bolster each other with positivity and check in on your loved one\u2019s mental health regularly. If you are feeling stressed or angry, walk away and calm down before confronting someone. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Debra says: \u201cIt\u2019s likely you or your loved one may have a shorter temper than usual; this is quite normal when people become stressed. Under these circumstances, give each other space to cool off and come back together when you are both calmer to discuss the issue.\u201d  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":5} -->\n<h5>The five senses exercise  <\/h5>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>The goal of this exercise is to calm your mind by using all your senses to focus on your environment instead of your thoughts.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><li>First, notice five things that you can see. Look around you and become aware of your environment. Try to pick out something that you would not usually notice.<\/li><li>Second, notice four things you can feel. Bring your attention to the things that you\u2019re currently feeling, such as the texture of your clothing or the smooth surface of the table you\u2019re resting your hands on.<\/li><li>Third, notice three things that you can hear. Listen for and notice things in the background that you don\u2019t normally notice. It could be the birds chirping outside or an appliance humming in the next room. <\/li><li>Fourth, notice two things you can smell. Bring attention to scents that you usually filter out, either pleasant or unpleasant. Catch a whiff of the pine trees outside or food cooking in the kitchen.<\/li><li>Finally, notice one thing you can taste. Take a sip of a drink, chew gum or notice the current taste in your mouth. <\/li><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:paragraph -->\n<p>Debra says: \u201cThe more descriptive information you include during this exercise, the better it will work. It also usually works better if you can talk out loud; your ear will hear your voice and create a feedback loop, which helps your mind to come back to the present moment. This exercise can be shortened or lengthened until you notice you are feeling calmer. To shorten the exercise, just name three things you can see, hear and feel, and repeat until you feel calmer. To lengthen, name five things you can see, hear and feel, adding in smell and taste if appropriate and keep repeating until you feel calmer.\u201d <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>For this exercise it does not matter whether you are breathing slowly, rapidly or in short bursts, just focus on your body and the space you are in. If you are looking for more mindfulness techniques, see our <a href=\"https:\/\/www.youtube.com\/playlist?list=PLx5RMZtuxzUS6XD6r-jf6kcB5X2vRf6Uc\" target=\"_blank\" rel=\"noreferrer noopener\">Mind Matters video series on mindfulness and self-compassion practices. <\/a><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":5} -->\n<h5>Things to keep in mind  <\/h5>\n<!-- \/wp:heading -->\n\n<!-- wp:list -->\n<ul><li>Remind yourself that lockdowns and restrictions are temporary. Staying at home is not a punishment, it\u2019s to protect yourself and those around you by slowing the spread of the virus.<\/li><li>Take time to be grateful for the small things, such as sunshine or catching up with an old friend on the phone.<\/li><li>Focus on the things that you can help to control that will reduce the impact of COVID-19, such as maintaining your wellbeing with good nutrition, physical activity and enough sleep, good hand hygiene, practising social distancing, limiting negative news consumption and treating yourself and others with kindness.<\/li><li>Make time for activities you enjoy such as reading a good book, watching a new TV show or tending to your garden.<\/li><li>Above all, be kind to yourself.  <\/li><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Seek support  <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>People with pre-existing mental health conditions should continue with their treatment and be aware of any new or worsening symptoms. If you need to talk to someone, reach out to a support service such as Lifeline (13 11 14), who provide 24-hour support to listen to how you are feeling and offer you information and advice.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>If you would like to hear more from Debra, we have recorded a<a href=\"https:\/\/lungfoundation.com.au\/resources\/webinar-looking-after-your-mental-health-during-coronavirus\/\" target=\"_blank\" rel=\"noreferrer noopener\"> webinar <\/a>which is available on our YouTube channel, Lung Foundation Australia.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":5} -->\n<h5>We\u2019re here for you  <\/h5>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Remember our Information and Support Centre staff are available to connect you with resources and support services to help reduce the impact of COVID-19. Also keep an eye on our <a href=\"https:\/\/lungfoundation.com.au\">website<\/a> and <a href=\"https:\/\/www.facebook.com\/lungfoundation\" target=\"_blank\" rel=\"noreferrer noopener\">Facebook page<\/a> for COVID-19 information. Our Information and Support Centre is open Monday to Friday 8:00am-4:30pm. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Are you looking for more information about caring for your mental health and wellbeing?<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:buttons {\"contentJustification\":\"center\"} -->\n<div class=\"wp-block-buttons is-content-justification-center\"><!-- wp:button -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link\" href=\"https:\/\/lungfoundation.com.au\/patients-carers\/after-your-diagnosis-title\/mental-health\/\">Visit our Mind Matters Information Hub<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->","post_title":"Mental impact of COVID-19","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"mental-impact-of-covid-19","to_ping":"","pinged":"","post_modified":"2021-06-29 10:10:55","post_modified_gmt":"2021-06-29 00:10:55","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=article&p=19135","menu_order":0,"post_type":"article","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":19139,"post_author":"85","post_date":"2021-06-15 10:55:42","post_date_gmt":"2021-06-15 00:55:42","post_content":"<!-- wp:paragraph -->\n<p><strong>Having effective self-care strategies can help you to take care of your mental health, maintain overall wellbeing, manage illness and care for others. While in theory it may seem simple, it is important to plan and dedicate time for a self-care routine.   <\/strong><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Self-care can help you to improve your mood and to manage the stress and challenges of living with a lung condition. These self-care strategies can also be beneficial for carers, family and friends.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>How to start a self-care routine <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Starting each day with a routine is a good way to ensure you get your daily dose of self-care. A self-care routine creates structure, a sense of accomplishment and can act as an anchor to maintaining emotional wellbeing. Building in flexibility will help you to maintain your self-care routine even when things go wobbly. It is important to ensure you nurture your body and your mind.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>A few tips for what to include in your morning self-care routine:  <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:list -->\n<ul><li>Eat breakfast. Try a fruit smoothie if you are struggling to manage things that are more solid. <\/li><li>Get some sunshine. This helps with our sleep\/wake cycle. Try eating your breakfast in a sunny nook or on the verandah. <\/li><li>Do some exercise. 10-20 minutes of walking is an ideal way to enjoy some sunshine or you could do some arm and leg weights. <\/li><li>Make a plan for the rest of the day. If you already have this done, review it over breakfast. <\/li><li>Find 5-10 minutes to sit or lie quietly and just be. Some people like to meditate or you can just sit and notice things around you.  <\/li><li>Try to get up with enough time to be ready for your day without rushing. <\/li><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Why movement is important <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Try to get your body moving every day. Exercise is one of the best ways to combat depression and feeling low. Going for a walk encourages your brain to release \u2018feel good\u2019 hormones. Many people with a lung condition become fearful of exercise, especially if they struggle with breathlessness. We all have receptors in our brain that set off our \u2018alarm system\u2019 and when we get too breathless, this can cause you to feel anxious or panic. If that happens, the brain\u2019s feedback loop will tell you it is unsafe to exercise.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Your GP can refer you to a pulmonary rehabilitation program, respiratory physiotherapist or exercise physiologist with expertise in lung conditions. They can show you how to exercise safely and within your body\u2019s limits and capabilities. They can even show you how to exercise if you need oxygen therapy. Staying fit, maintaining movement and maintaining good muscle tone is crucial to helping you manage your lung condition. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Importance of mental health <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Taking care of your mental and emotional health is just as important as making sure you keep your body in the best possible health. Mind and body are inextricably linked and it makes sense that what impacts one will impact the other. Learning how to maintain healthy emotions will make managing your lung condition easier. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Some people like to set time aside each day to meditate or practise mindfulness. Just like going to the gym or a pulmonary rehabilitation session, this time of reflection, focus and introspection is a dedicated time to pursue this activity. And just like physical activity, some people prefer to incorporate mindful practice into their everyday activities rather than practising it a dedicated time. <a href=\"https:\/\/www.youtube.com\/playlist?list=PLx5RMZtuxzUS6XD6r-jf6kcB5X2vRf6Uc\" target=\"_blank\" rel=\"noreferrer noopener\"> See our Mindfulness and Self-compassion Guided Practices to get your started. <\/a><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Similar to physical health, improving your emotional \u2018fitness\u2019 takes practice, patience and time. If you allow yourself to become emotionally fitter each day, in time you will look back and realise that you are more aware of and more in control of your emotions.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Learning how thoughts influence emotions does not mean that we will never feel sad, angry, disappointed, frustrated or the myriad of other emotions which leave us feeling flat. It just means that when these normal and natural emotions show up, you will have a better sense of why they are there and how to deal with them.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:quote -->\n<blockquote class=\"wp-block-quote\"><p><strong>\"<em>I have gained mental maturity through the experience of lung disease. You need to process things, break them down and learn not to feed on it.\" <\/em><\/strong><\/p><cite>- Anonymous, living with Chronic Obstructive Pulmonary Disease. <\/cite><\/blockquote>\n<!-- \/wp:quote -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Why having a team is important? <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:media-text {\"mediaPosition\":\"right\",\"mediaId\":19140,\"mediaLink\":\"https:\\\/\\\/lungfoundation.com.au\\\/?attachment_id=19140\",\"mediaType\":\"image\"} -->\n<div class=\"wp-block-media-text alignwide has-media-on-the-right is-stacked-on-mobile\"><figure class=\"wp-block-media-text__media\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/06\/iStock-1146553476-1024x701.jpg\" alt=\"\" class=\"wp-image-19140 size-full\" \/><\/figure><div class=\"wp-block-media-text__content\"><!-- wp:paragraph -->\n<p>Humans are not meant to live in isolation and be solitary. We all need a \u2018team\u2019. When you have a diagnosis of a chronic or life-limiting lung condition, more than ever you need to make sure you have your team around you. Get your team on board as soon as you can. The more they understand your lung condition and the possible support you will need now, and in the future, the better you will fare. Having discussions with family, friends and support organisations early means that you will feel better prepared when and if your disease progresses and your support needs increase. <\/p>\n<!-- \/wp:paragraph --><\/div><\/div>\n<!-- \/wp:media-text -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Are you looking for more information about caring for your mental health and wellbeing?<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:buttons {\"contentJustification\":\"center\"} -->\n<div class=\"wp-block-buttons is-content-justification-center\"><!-- wp:button -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link\" href=\"https:\/\/lungfoundation.com.au\/patients-carers\/after-your-diagnosis-title\/mental-health\/\">Visit our Mind Matters Information Hub<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->\n\n<!-- wp:paragraph -->\n<p><\/p>\n<!-- \/wp:paragraph -->","post_title":"Holistic self-care","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"holistic-self-care","to_ping":"","pinged":"","post_modified":"2021-06-29 10:15:01","post_modified_gmt":"2021-06-29 00:15:01","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=article&p=19139","menu_order":0,"post_type":"article","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"","view_more_link":null,"posts":[{"ID":19124,"post_author":"85","post_date":"2021-04-15 09:56:00","post_date_gmt":"2021-04-14 23:56:00","post_content":"<!-- wp:paragraph -->\n<p id=\"block-8bc1fbef-d83c-411e-a0c0-17d6bcc2ecac\"><strong>Some people have developed healthy and positive coping techniques for dealing with the added stresses of living with a lung condition, while others rely on less healthy and ultimately quite destructive ways of coping.<\/strong>   <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p id=\"block-7d43fd1d-a86b-4295-8cf8-4b5ffa54b2f1\">Healthy ways of coping are not difficult to say or write down and, on the surface, they seem obvious. Yet many of us struggle to incorporate them into our daily lives. Often, we cite lack of time or being too busy when in fact we may be relying on less positive methods to get us through.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 id=\"block-c6571326-7fa3-4aef-9a39-68c5c8d24b1f\">Healthy Coping Techniques<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:list -->\n<ul id=\"block-faae2c6f-9b9f-42d0-ad66-1e51c14b0aa2\"><li><strong>Talking to others<\/strong>: Talking to others about how you are feeling and what you are thinking is a fabulous coping strategy. Many people will try to protect the people they love and care about by not talking to them about the things that worry and trouble them. In most cases, this just makes it harder for all concerned because when people don\u2019t communicate, the other person will usually imagine the worst-case scenario. Both people end up being overly worried or troubled and find themselves bottling it all up. This builds up stress which can result in short tempers, miscommunication about other things and increase feelings of distress. <\/li><li><strong>Staying engaged with interests and friends:<\/strong> Keeping yourself interested in activities and hobbies that bring you pleasure is another useful and healthy coping strategy. You may need to modify the way you do an activity or include pacing with regular rest periods to reduce fatigue. You may also look for activities or hobbies you have not done before and find new interests. Socialising with people you like should not be undervalued as another great way of releasing stress and helping you to cope when the situation is stressful.  <\/li><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:media-text {\"mediaId\":19125,\"mediaLink\":\"https:\\\/\\\/lungfoundation.com.au\\\/?attachment_id=19125\",\"mediaType\":\"image\"} -->\n<div class=\"wp-block-media-text alignwide is-stacked-on-mobile\"><figure class=\"wp-block-media-text__media\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/06\/iStock-945842852-1024x699.jpg\" alt=\"Woman engaging in an outdoor walk with her dog as a coping technique. \" class=\"wp-image-19125 size-full\" \/><\/figure><div class=\"wp-block-media-text__content\"><!-- wp:list -->\n<ul><li><strong>Pets can help you cope:<\/strong> Depending upon your individual circumstances and lung condition, the companionship and love of a pet, especially one you can pat, is a fabulous way of working through difficult feelings. Our four-legged furry friends are naturals at helping people deal with strong emotions and troublesome situations. Patting a dog or cat and looking into their eyes can help the brain release feel-good chemicals that are natural anti-depressants. Having a dog who likes to go for a walk or have the ball thrown is also a great way to make sure you get out each day and enjoy some fresh air. <\/li><\/ul>\n<!-- \/wp:list --><\/div><\/div>\n<!-- \/wp:media-text -->\n\n<!-- wp:paragraph -->\n<p><strong>\"<em>I try to do self-care activities. I find things that soothing <\/em>and<em> within my limitations. Exercise is so important. Walking the dog really helped motivate me to do it.<\/em>\"<\/strong> - Anonymous, living with lung cancer.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul id=\"block-d0b9b500-a02d-4492-85b6-b45c38fa4ef8\"><li><strong>Benefits of exercise: <\/strong>Apart from the significant benefit to your physical health, exercise boosts your emotional wellbeing by releasing feel-good chemicals into your body which can help to lift your mood.  Other benefits of exercise on your mental health include improved memory and focus, reduced stress and protection against anxiety and depression. Even if you find exercise difficult due to the limitations of your lung condition, getting out in the sunshine and fresh air will help you to cope better and can even improve your sleep. Early-morning sunshine will help to reset your inner body clock and help your brain to regulate the release of a hormone called melatonin, which is important for a healthy sleep\/wake cycle.  <\/li><li><strong>Importance of rest for coping with stress:<\/strong> Getting enough rest and sleep is another important and healthy strategy for coping during stressful times. If you have trouble switching off, there are some useful apps with guided meditations, pink and white noise (Calm) and hypnosis (Mindset); or try our <a href=\"https:\/\/www.youtube.com\/watch?v=EDsAn_3rk0g&list=PLx5RMZtuxzUS6XD6r-jf6kcB5X2vRf6Uc\" target=\"_blank\" rel=\"noreferrer noopener\">mindfulness and self compassion guided practices. <\/a><\/li><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" id=\"block-24ba1640-d5b6-498e-912d-ca5765a0ec55\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 id=\"block-7db43bc3-a42b-4a86-936b-2c5cef8b5869\">Less Helpful Coping Techniques <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p id=\"block-d903438e-9bbc-47b8-a4b5-34bb161d6d1c\">There are other strategies that people sometimes use to cope which are less healthy and can become very destructive, including: <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul id=\"block-3d867385-12d8-4048-bc33-dd9434e99cf8\"><li>drinking too much alcohol  <\/li><li>smoking cigarettes  <\/li><li>using illicit substances  <\/li><li>gambling  <\/li><li>shutting yourself away and avoiding social contact  <\/li><li>eating junk food.  <\/li><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:paragraph -->\n<p id=\"block-b8f6c0c2-0fa9-4a58-902f-647aa1dbf280\">It is self-explanatory why most of these are not very useful ways to cope. However, for some people, these are the first things they rely on to get through a stressful period, even though they know they may ultimately make them feel worse.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p id=\"block-0709580e-506d-460d-9a73-0697011c27c4\">If you notice you are resorting to some unhelpful ways to manage stress and cope, it might be wise to try to share some of the things you are worrying about with someone you are close to and trust; or you could raise the subject with your treating healthcare team. Talking to a mental health professional can also help you develop healthier coping strategies and tools for your emotional first-aid toolbox. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" id=\"block-fa441a7f-31ac-402f-addf-c61ee62b5315\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 id=\"block-fe0e7efa-3c37-4b7e-b8cb-4bb59aafaec4\">Are you looking for more information about caring for your mental health and wellbeing?<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:buttons {\"contentJustification\":\"center\"} -->\n<div class=\"wp-block-buttons is-content-justification-center\"><!-- wp:button -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link\" href=\"https:\/\/lungfoundation.com.au\/patients-carers\/after-your-diagnosis-title\/mental-health\/\">Visit our Mind Matters Information Hub<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->","post_title":"Coping techniques for living well","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"coping-techniques-for-living-well","to_ping":"","pinged":"","post_modified":"2021-06-29 10:04:41","post_modified_gmt":"2021-06-29 00:04:41","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=article&p=19124","menu_order":0,"post_type":"article","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":19082,"post_author":"85","post_date":"2021-03-24 17:04:00","post_date_gmt":"2021-03-24 07:04:00","post_content":"<!-- wp:paragraph -->\n<p id=\"block-d00fe256-e529-44ad-aaf2-a97a6b8aca46\"><strong>The moment your doctor tells you that you have lung disease or lung cancer may be quite surreal. You may hear the diagnosis and feel like your brain stops working. You continue to hear everything that the doctor says and you may even ask questions; but as you walk out of the appointment, you feel numb, as if you are not actually in your own body. Psychologists call it dissociating, which is how our brain keeps us from becoming too distressed when we get bad or upsetting news. It distances us from the situation and makes us feel like we are not really present. The feeling may last a few minutes, a few hours or even a few days.  <\/strong><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 id=\"block-a9551c40-5641-44ec-aabe-e6fddb6cdaa9\">Diagnosis as a Relief <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p id=\"block-390bc7b4-6eed-4ecd-852e-5d1c1d30310d\">There is no right or correct way to feel around the time of diagnosis. Every person will have their own unique experience. Some people may feel quite relieved once they know the reason for how they have been feeling. Others might feel a level of certainty because the path ahead is now clearer. Some people may feel relief because they have been fearful of a much worse outcome than what they have been told.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\"It was a relief to be diagnosed. I knew something was wrong and then finally I could start to understand and do something about it. Knowing what was wrong, helped me to deal with it.\"- Anonymous, living with bronchiectasis.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 id=\"block-b11c86dc-193d-460b-9bfb-d023fa7d68e2\"> Diagnosis as a Shock <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p id=\"block-f98de079-095c-4c7e-a4f2-b0fc87b3b3c3\">While some people may feel a level of relief by knowing the diagnosis, it can still come as quite a shock. Feeling shock is quite normal. You may find yourself moving between acceptance and denial and the feeling of dissociating may wax and wane; you might feel like you can\u2019t really concentrate or sleep and your appetite might be impacted. Feeling much of anything other than just existing may be too much effort but this feeling should resolve within a week or two. If it persists, reach out to a mental health professional who can help you come to terms with the gravity of your diagnosis. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p id=\"block-80b394b3-c1e6-4641-9f31-cb377d7752eb\">People who have been previously quite well and whose symptoms came on either quickly or were almost non-existent before being diagnosed \u2018by accident\u2019, are most at risk of struggling to process a diagnosis.  How you process your diagnosis will depend on things such as personality, family and social supports, financial circumstances, age, gender and the condition itself. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 id=\"block-390a8b28-6810-4940-a122-b32c44da18a5\">Is it normal to be in denial about a diagnosis?  <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p id=\"block-a24389b4-71ea-4eb0-9d93-2dde8df10aba\">Experiencing a period of denial, a \u201cthis can\u2019t be true\u201d period, is quite normal when you get a diagnosis, especially if it has life-limiting implications. It can take time to adjust to the significance of your diagnosis. Using denial initially, especially if you are still quite well or don\u2019t have many symptoms, can allow you to present yourself as if nothing has changed. But in the long run, this tactic can make it harder for you and those you care about to come to terms with your diagnosis. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p id=\"block-1b6e4cfa-5127-4ba5-bdb6-09fd809b5f37\">Sometimes it is not the person with the lung condition who is in denial but their loved ones who find it hard to accept the reality of what it means. Comments such as \u201cyou don\u2019t look sick\u201d or \u201cwe really want you to come too\u201d can indicate that they are in denial or that they simply don\u2019t understand that a lung condition can make it hard for you to participate in social events.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p id=\"block-36d35815-8b28-41fe-9b07-9444b6502288\">If you or one of your loved ones is struggling with denial, it might be a good idea to jointly talk to a mental health professional or your respiratory specialist.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><strong>\"<em>When you are diagnosed you need to prepare for the full impact on your mental health, not just your physical health.\"<\/em><\/strong>- Anonymous, living with lung cancer.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:image {\"align\":\"center\",\"id\":18738,\"width\":434,\"height\":289,\"sizeSlug\":\"large\",\"linkDestination\":\"none\"} -->\n<div id=\"block-dd23f228-d03b-428d-9c57-6e54c651fced\" class=\"wp-block-image\"><figure class=\"aligncenter size-large is-resized\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/06\/iStock-481073822-1024x683.jpg\" alt=\"Patient discussing diagnosis with their doctor. \" class=\"wp-image-18738\" width=\"434\" height=\"289\" \/><\/figure><\/div>\n<!-- \/wp:image -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Coping with a diagnosis  <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>The concept of coping is subjective and will look and feel differently for each person. Many of us will have said or heard someone we care about at some point say \u201cI\u2019m not coping!\u201d What this statement usually means is \u201cI don\u2019t feel like I am coping as well as I would like to, and I feel  overwhelmed\u201d. Even sitting in a corner crying and rocking is a form of coping and self-soothing. It may not feel very good but it is coping.  <a href=\"https:\/\/lungfoundation.com.au\/news\/coping-techniques-for-living-well\/\" target=\"_blank\" rel=\"noreferrer noopener\">For more information on ways of coping see our blog. <\/a><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4>Are you looking for more information about caring for your mental health and wellbeing?<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:buttons {\"contentJustification\":\"center\"} -->\n<div class=\"wp-block-buttons is-content-justification-center\"><!-- wp:button -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link\" href=\"https:\/\/lungfoundation.com.au\/patients-carers\/after-your-diagnosis-title\/mental-health\/\" target=\"_blank\" rel=\"noreferrer noopener\">Visit our Mind Matters Information Hub<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->","post_title":"Coming to terms with a lung condition diagnosis","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"coming-to-terms-with-a-lung-condition-diagnosis","to_ping":"","pinged":"","post_modified":"2021-06-29 10:02:11","post_modified_gmt":"2021-06-29 00:02:11","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=article&p=19082","menu_order":0,"post_type":"article","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":19120,"post_author":"85","post_date":"2021-03-10 09:52:00","post_date_gmt":"2021-03-09 23:52:00","post_content":"<!-- wp:paragraph -->\n<p><strong>Going to your medical appointments and tests can be quite stressful. Your brain will most likely create worst-case scenarios, which can scare you and potentially make the experience feel worse. <\/strong><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>If you notice your brain going straight to the worst case scenario, try to pause and bring yourself back to the present moment. Worrying about the things we can\u2019t control uses up a lot of emotional energy and does not actually achieve anything. Bringing to mind the things you can control and making plans for those specifically, may help you to feel more prepared for tests and appointments.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:image {\"align\":\"center\",\"id\":19121,\"width\":359,\"height\":238,\"sizeSlug\":\"large\",\"linkDestination\":\"none\"} -->\n<div class=\"wp-block-image\"><figure class=\"aligncenter size-large is-resized\"><img src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2021\/06\/iStock-1180070187-1024x683.jpg\" alt=\"Older woman at a medical appointment. \" class=\"wp-image-19121\" width=\"359\" height=\"238\" \/><\/figure><\/div>\n<!-- \/wp:image -->\n\n<!-- wp:paragraph -->\n<p id=\"block-f816dffe-cbc3-46da-8509-332c38d0416c\">If you notice yourself feeling scared and worried, you can try a strategy called grounding.  This can help bring you back to the present and to re-focus. You can do this anywhere and it is a good strategy to have in your 'emotional first-aid toolbox.'   <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:embed {\"url\":\"https:\\\/\\\/www.youtube.com\\\/watch?v=bJc31HorhOY\",\"type\":\"video\",\"providerNameSlug\":\"youtube\",\"responsive\":true,\"className\":\"wp-embed-aspect-16-9 wp-has-aspect-ratio\"} -->\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\nhttps:\/\/www.youtube.com\/watch?v=bJc31HorhOY\n<\/div><\/figure>\n<!-- \/wp:embed -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 id=\"block-a92253f1-be5a-44c6-a813-e5dab0b56a3b\">Other practical strategies to assist with medical appointments<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:list {\"ordered\":true} -->\n<ol id=\"block-df113096-3043-4047-aab9-839f8c8ab8f1\"><li><strong>Keep a list<\/strong>: In the lead-up to any appointment, keep a list of the questions, issues and any symptoms to discuss with your doctor. Taking your list with you, will help you and your doctor stay on track. <\/li><li><strong>Take a support person<\/strong>:  If possible, take someone you trust and like with you. They can sit in the waiting room or come into the appointment, depending on how you want it to happen. If they come into the appointment, they will be able to help you remember afterwards what was said, which can be helpful. You could even ask them to take notes as another way to recall what was being said. <\/li><li><strong>A \u2018test run\u2019<\/strong>: Knowing where you are going for your appointments can help you to be prepared.  A test run a week or a few days beforehand can save you angst on the day. Allow for traffic and finding a parking spot or drop-off point. Some big city hospitals and outpatient units get very busy and navigating them can take time, especially if you are experiencing breathlessness. Some people find it easier and less expensive to catch a taxi or ride-share to their appointments. <\/li><\/ol>\n<!-- \/wp:list -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" id=\"block-90a9c6ab-973a-44c0-8c29-cc3d4237daba\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 id=\"block-420d4456-dd7f-47a5-afa9-f64dbdafad30\">Are you looking for more information about caring for your mental health and wellbeing?<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:buttons {\"contentJustification\":\"center\"} -->\n<div class=\"wp-block-buttons is-content-justification-center\"><!-- wp:button -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link\" href=\"https:\/\/lungfoundation.com.au\/patients-carers\/after-your-diagnosis-title\/mental-health\/\">Visit our Mind Matters Information Hub<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->","post_title":"Preparing for medical appointments","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"preparing-for-medical-appointments","to_ping":"","pinged":"","post_modified":"2021-06-29 10:03:11","post_modified_gmt":"2021-06-29 00:03:11","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=article&p=19120","menu_order":0,"post_type":"article","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"helpful_links","heading":"Referral Directory","image_display_setting":false,"links_list":[{"image":false,"title":"Lifeline 24\/7 Crisis Support","description":"<p>Lifeline provides telephone access to 24-hour crisis support and suicide prevention services. Ph: 13 11 14 (24\/7 crisis support).<\/p>\n","link_url":"https:\/\/www.lifeline.org.au\/"},{"image":false,"title":"Beyond Blue","description":"<p>Access to trained mental health professionals, peer support, information and advice about anxiety and depression to help point you in the right direction to seek further support. Ph: 1300 224 636.<\/p>\n","link_url":"https:\/\/www.beyondblue.org.au\/"},{"image":false,"title":"Services Australia - Centrelink - Social work services","description":"<p>Social workers help with short term counselling and referrals to support services. Contact is through the Centrelink telephone number and ask to speak with a social worker. Ph: 132 850.<\/p>\n","link_url":"https:\/\/www.servicesaustralia.gov.au\/individuals\/services\/social-work-services"},{"image":false,"title":"Relationships Australia","description":"<p>Relationships Australia provides relationship support services for individuals and families experiencing difficulties and change. Ph: 1300 364 277.<\/p>\n","link_url":"https:\/\/www.relationships.org.au\/"},{"image":false,"title":"Head to Health","description":"<p>Head to Health website helps you to find digital mental health services including apps, online programs, online forums, and telephone services as well as information resources.<\/p>\n","link_url":"https:\/\/headtohealth.gov.au\/"},{"image":false,"title":"Friendline","description":"<p>FriendLine is for anyone who wants to reconnect or just wants to chat anonymously with a friendly volunteer. Ph: 1800 424 287.<\/p>\n","link_url":"https:\/\/www.friendline.org.au\/"},{"image":false,"title":"Griefline","description":"<p>Griefline provides free counselling support to anyone experiencing grief, loss and the many related feelings that occur as a result. Ph: 1300 845 745<\/p>\n","link_url":"https:\/\/griefline.org.au\/"},{"image":false,"title":"Carer Gateway","description":"<p>Carer Gateway connects you with a network of service providers, offers confidential counselling and can discuss your needs and help you to find local service and support. Ph: 1800 422 737.<\/p>\n","link_url":"https:\/\/www.carergateway.gov.au\/"},{"image":false,"title":"Headspace","description":"<p>Headspace provides mental health support for Australian youth through the delivery of support via telehealth, Headspace support centres and free online and telephone counselling.<\/p>\n","link_url":"https:\/\/headspace.org.au\/"},{"image":false,"title":"Mensline Australia","description":"<p>Mensline offers telephone counselling and online chat to men having relationship and family problems. Ph: 1300 789 978.<\/p>\n","link_url":"https:\/\/mensline.org.au\/"},{"image":false,"title":"Kids Help Line","description":"<p>Confidential and anonymous, telephone and online support for people aged between 5 and 25. Ph: 1800 551 800.<\/p>\n","link_url":"https:\/\/kidshelpline.com.au\/"},{"image":false,"title":"13YARN","description":"<p>13YARN is a 24\/7 crisis support service to yarn without judgement and provides a confidential, culturally safe space to explore your needs worries or concerns. Ph: 13 92 76<\/p>\n","link_url":"https:\/\/www.13yarn.org.au\/"},{"image":false,"title":"Mind Australia","description":"<p>Mind Australia has an online service directory and telephone service to find what services are available near you and how you may best be supported. Ph:1300 286 463.<\/p>\n","link_url":"https:\/\/www.mindaustralia.org.au\/"},{"image":false,"title":"MindSpot","description":"<p>MindSpot is a free digital mental health clinic where you can undertake an online assessment and treatment if you are experience stress, anxiety, depression and chronic pain. Ph: 1800 614 434.<\/p>\n","link_url":"https:\/\/mindspot.org.au\/"},{"image":false,"title":"Young Carers Network","description":"<p>Young Carers Network is a place for young carers to learn about support services, access resources and share stories.<\/p>\n","link_url":"https:\/\/youngcarersnetwork.com.au\/"},{"image":false,"title":"Black Dog Institute Resources and Support","description":"<p>Black Dog Institute website brings together mental health resources and support tools, including written resources, digital tools and apps as well as connection to peer support.<\/p>\n","link_url":"https:\/\/www.blackdoginstitute.org.au\/resources-support\/"},{"image":false,"title":"e-hub Assist","description":"<p>e-hub's free self help programs have been developed and are delivered by mental health experts at Australian National University.<\/p>\n","link_url":"https:\/\/assist.ehubhealth.com\/"},{"image":false,"title":"This Way Up","description":"<p>This Was Up provides a range of self-paced online courses that teach clinically proven strategies to help you improve the way you feel.<\/p>\n","link_url":"https:\/\/thiswayup.org.au\/"}]},{"acf_fc_layout":"wysiwyg_content_area","heading":"","content":"<p>Mind Matters was part funded by a COVID Response Grant from MSD.<\/p>\n","link":""}],"subtitle":"Mind Matters","disable_header_overlay":false},"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/19157","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/users\/85"}],"replies":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/comments?post=19157"}],"version-history":[{"count":10,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/19157\/revisions"}],"predecessor-version":[{"id":86273,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/19157\/revisions\/86273"}],"up":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/10397"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/media\/19263"}],"wp:attachment":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/media?parent=19157"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}