{"id":12110,"date":"2021-01-12T11:12:39","date_gmt":"2021-01-12T01:12:39","guid":{"rendered":"http:\/\/lungfoundation.com.au\/?post_type=story&p=12110"},"modified":"2021-03-05T15:45:11","modified_gmt":"2021-03-05T05:45:11","slug":"tegans-story","status":"publish","type":"story","link":"https:\/\/lungfoundation.com.au\/stories\/tegans-story\/","title":{"rendered":"Tegan\u2019s story"},"content":{"rendered":"\n

For Tegan, research means longer life expectancy, more effective treatments and to one day find a cure. <\/h3>\n\n\n\n

Aged just five, Tegan was diagnosed with Pulmonary Arterial Hypertension. Her heart was roughly the size of an adult male athlete.  <\/p>\n\n\n\n

Her mum was told her daughter had five years to live. <\/p>\n\n\n\n

Tegan had been suffering seizures, losing consciousness. Shortly after, she developed a persistent cough that would not go away. \u201cWith my doctor finally deciding to send me for an X-ray, it became apparent all too quickly that something major was wrong,\u201d she says. <\/p>\n\n\n\n

Five years later, aligning with her doctor\u2019s timeline, Tegan\u2019s symptoms began to worsen. <\/p>\n\n\n\n

I deteriorated so much that I was placed on the heart\/lung transplant waiting list. My seizure activity increased dramatically \u2026 I was placed on oxygen and used a wheelchair for all activities outside the house.<\/em><\/strong> <\/em><\/p><\/blockquote>\n\n\n\n

Pulmonary Arterial Hypertension (PAH) is a progressive disease caused by narrowing or tightening of the pulmonary arteries that connect to the right side of the heart to the lungs. <\/p>\n\n\n\n

When a new medication became available, it was effectively Tegan\u2019s last option while she waited for a transplant. It meant inserting a permanent line into her heart to deliver medication frequently; she\u202fwould have to carry around a pump and\u202fher\u202fmum and\u202fher\u202ffriends\u202fwould\u202fhave to\u202fhelp\u202fher take the\u202fcomplicated medication\u202fevery day. <\/p>\n\n\n\n

But within a month, she saw dramatic changes. The right side of her heart returned to normal, Tegan could walk more unhindered and she eventually came off oxygen, no longer needing a \u201ctruckload\u201d of medications.  <\/p>\n\n\n\n

Now 31 and working as a full-time nurse, Tegan exercises regularly and can enjoy her hobby \u2026 travel. She has travelled solo for three months across Europe and Scandinavia during winter, taking with her three months\u2019 supply of medications and supplies weighing 60kgs. <\/p>\n\n\n\n

For Tegan, research means more effective treatments and hope of a cure one day. <\/strong> <\/p>\n\n\n\n

\u201cMy life requires planning and preparation more so than most, but I make it work. <\/p>\n\n\n\n

\u201cWhen I was a child, my prognosis was poor, no longer than five years. Technology and medicine keep advancing, improving my chance of long-term survival \u2026 it\u2019s now been (almost) 25 years since my diagnosis.\u201d <\/p>\n\n\n\n

Tegan is thankful for what research has been able to do for her condition but hopes that more research can provide more stability and certainty for the future.  <\/p>\n\n\n\n

Research saves lives and gives hope for a cure.
Give hope. Give to research today<\/strong>.<\/h2>\n\n\n\n
\n
Donate today<\/a><\/div>\n<\/div>\n\n\n\n
\n\n\n\n
\"\"<\/figure>
\n

30 Reasons for Research<\/h4>\n\n\n\n

In celebration of our 30th anniversary, we are highlighting 30 Reasons to donate to life-changing lung disease and lung cancer research. For the millions of Australians impacted by lung disease and lung cancer, research means more precious moments with loved ones, a chance to experience their next life milestone, and independence to do the day-to-day activities that many of us take for granted. <\/p>\n<\/div><\/div>\n\n\n\n

Click here<\/a><\/span> <\/strong>to find out more about the research being done courtesy of generous donations.  <\/h5>\n","protected":false},"excerpt":{"rendered":"

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