{"id":11694,"date":"2020-11-27T15:16:16","date_gmt":"2020-11-27T05:16:16","guid":{"rendered":"http:\/\/lungfoundation.com.au\/?page_id=11694"},"modified":"2023-10-23T11:27:36","modified_gmt":"2023-10-23T01:27:36","slug":"pharmaceutical-benefits-scheme","status":"publish","type":"page","link":"https:\/\/lungfoundation.com.au\/advocacy\/pharmaceutical-benefits-scheme\/","title":{"rendered":"Pharmaceutical Benefits Scheme"},"content":{"rendered":"","protected":false},"excerpt":{"rendered":"","protected":false},"author":85,"featured_media":3675,"parent":7145,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-11694","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v24.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Pharmaceutical Benefits Scheme - Lung Foundation Australia<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lungfoundation.com.au\/advocacy\/pharmaceutical-benefits-scheme\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Pharmaceutical Benefits Scheme - 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We also support our members to make individual submissions to the PBAC.<\/p>\n<p class=\"x_MsoNormal\">You can find information on the PBAC\u00a0<a href=\"http:\/\/www.pbs.gov.au\/info\/industry\/listing\/participants\/pbac\" target=\"_blank\" rel=\"noopener noreferrer\" data-auth=\"NotApplicable\">here<\/a>\u00a0and the PBS\u00a0<a href=\"http:\/\/www.pbs.gov.au\/pbs\/home\" target=\"_blank\" rel=\"noopener noreferrer\" data-auth=\"NotApplicable\">here.<\/a><\/p>\n<p class=\"x_MsoNormal\">We seek the views and experiences of our members, of treatments under consideration by the PBAC, in advance of PBAC meetings. For more information on the meeting schedule of the PBAC, outcomes and public summary documents please\u00a0<a href=\"http:\/\/www.pbs.gov.au\/pbs\/industry\/listing\/elements\/pbac-meetings\" target=\"_blank\" rel=\"noopener noreferrer\" data-auth=\"NotApplicable\">click here.<\/a><\/p>\n<p class=\"x_MsoNormal\">If you wish to make an individual submission to the PBAC regarding a proposed listing, we recommend accessing the guides featured below and the\u00a0<a href=\"https:\/\/www.patientvoiceinitiative.org\/\" target=\"_blank\" rel=\"noopener noreferrer\" data-auth=\"NotApplicable\">Patient Voice Initiative website<\/a>\u00a0for support in preparing a submission.<\/p>\n","link":""},{"acf_fc_layout":"featured_posts_static","heading":"","view_more_link":null,"posts":[{"ID":8560,"post_author":"85","post_date":"2020-05-08 14:59:08","post_date_gmt":"2020-05-08 04:59:08","post_content":"<!-- wp:paragraph -->\n<p>Click here for the DOS and DONTS of writing consumer comments for PBAC submissions.<\/p>\n<!-- \/wp:paragraph -->","post_title":"PBAC Consumer Comments DOS and DON\u2019TS","post_excerpt":"Click here for the DOS and DONTS of writing consumer comments for PBAC submissions. ","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"pbac-consumer-comments-dos-and-donts","to_ping":"","pinged":"","post_modified":"2021-03-17 10:20:11","post_modified_gmt":"2021-03-17 00:20:11","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=8560","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":8558,"post_author":"85","post_date":"2020-05-08 14:55:52","post_date_gmt":"2020-05-08 04:55:52","post_content":"<!-- wp:paragraph -->\n<p>Click here for a tip sheet for submitting consumer comments to the Pharmaceutical Benefits Advisory Committee (PBAC).<\/p>\n<!-- \/wp:paragraph -->","post_title":"Tip sheet for submitting consumer comments to the PBAC","post_excerpt":"Click here for a tip sheet for submitting consumer comments to the Pharmaceutical Benefits Advisory Committee (PBAC).","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"tip-sheet-for-submitting-consumer-comments-to-the-pbac","to_ping":"","pinged":"","post_modified":"2021-03-17 10:16:59","post_modified_gmt":"2021-03-17 00:16:59","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&#038;p=8558","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":11604,"post_author":"85","post_date":"2020-11-18 17:55:10","post_date_gmt":"2020-11-18 07:55:10","post_content":"<!-- wp:paragraph -->\n<p>Jenny was just 15 when her sister was diagnosed with Pulmonary Arterial Hypertension (PAH). It was the 70s and very little was understood about the rare condition. Jenny watched helplessly as her beloved sister deteriorated. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cThere were no medications to help Rosslyn and we were very aware of that. She spent quite a bit of time in hospital being tested by many medical teams with a view to research, because they couldn\u2019t do anything for her. At that time, the medical teams did not have many patients of her age with this disease. I knew from day one that she was going to die from this disease,\u201d Jenny said. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Almost five decades later, Jenny\u2019s daughter, Emma, was diagnosed with PAH at age 27. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cI was devastated. We had been led to believe this was a rare disease and not one that would be passed on. Knowing that your daughter cannot play sport, cannot have children, cannot do an enormous amount of day-to day activities is devastating. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cWhat I\u2019ve learnt from my experience is that you have to be your own advocate or the advocate for your loved one. People just don\u2019t know what treatment and support is available to them, who to talk to and where to find information.\u201d <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Jenny joined passionate consumers from across the country in our latest round of advocacy training to help develop a policy platform for change and learn how to have tough conversations to influence key decision makers around government investment.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cIf other families can come together to share their stories and fight, we can create real change. The causes that make the greatest impact do so by people sharing their experiences. We love Emma immensely and want the very best quality of life she can possibly have and don\u2019t want her following in her Aunt\u2019s path.\u201d <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Through Lung Foundation Australia\u2019s Your Voice Advocacy Program, people like Jenny are sharing their experiences to support the development of priorities and solutions to address the significant gaps in treatment and services. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cBecoming an advocate can be hugely rewarding. There are many ways you can make your voice count \u2013 whether it\u2019s contributing to submissions, sitting down with your local Member of Parliament to discuss the impact of life with a lung disease or simply sharing your story to help raise awareness,\" Advocacy and Policy Manager, Patricia said.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4,\"style\":{\"color\":{\"text\":\"#491b62\"}}} -->\n<h4 class=\"has-text-color\" style=\"color:#491b62\">Improved access to treatment<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph {\"textColor\":\"white\",\"style\":{\"color\":{\"background\":\"#491b62\"}}} -->\n<p class=\"has-white-color has-text-color has-background\" style=\"background-color:#491b62\">Lung Foundation Australia consistently advocates for the listing of life-changing medicines on the Pharmaceutical Benefits Scheme (PBS). We're pleased to see that from 1 October 2020, endothelin receptor antagonist and phosphodiesterase-5 inhibitor medicines for dual therapy will be subsided by the PBS for people living with PAH experiencing World Health Organisation Functional Class (FC) III or IV symptoms. This decision comes following recommendations by the Pharmaceutical Benefits Advisory Committee (PBAC). With input from consumers and health professionals, we make submissions to the PBAC to advocate for timely and equitable access to treatment and medications. In recent years, as a result of our submissions, there have been a record number of new listings on the PBS for the treatment of lung disease and lung cancer. To stay informed and contribute to our submissions, talk to our team about subscribing to receive our email communications. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>To find out more about our advocacy program and ways you can get involved, visit lungfoundation.com.au or free call 1800 654 301.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Make your voice count","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"make-your-voice-count","to_ping":"","pinged":"","post_modified":"2020-11-18 17:55:12","post_modified_gmt":"2020-11-18 07:55:12","post_content_filtered":"","post_parent":0,"guid":"http:\/\/lungfoundation.com.au\/?post_type=article&#038;p=11604","menu_order":0,"post_type":"article","post_mime_type":"","comment_count":"0","filter":"raw"}]}],"subtitle":"","disable_header_overlay":false},"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/11694","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/users\/85"}],"replies":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/comments?post=11694"}],"version-history":[{"count":10,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/11694\/revisions"}],"predecessor-version":[{"id":92278,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/11694\/revisions\/92278"}],"up":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/7145"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/media\/3675"}],"wp:attachment":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/media?parent=11694"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}