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Lung Foundation Australia can help connect you to a support group near you.<\/p>\n","link_url":"https:\/\/lungfoundation.com.au\/patients-carers\/get-support\/support-groups\/"},{"image":{"ID":1407,"id":1407,"title":"Palliative care","filename":"Palliative-care.jpg","filesize":578663,"url":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/Palliative-care.jpg","link":"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pf\/treatment\/palliative-care\/","alt":"","author":"1","description":"","caption":"","name":"palliative-care","status":"inherit","uploaded_to":1272,"date":"2018-09-18 00:14:08","modified":"2018-09-18 00:19:07","menu_order":0,"mime_type":"image\/jpeg","type":"image","subtype":"jpeg","icon":"https:\/\/lungfoundation.com.au\/wp-includes\/images\/media\/default.png","width":1920,"height":1426,"sizes":{"thumbnail":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/Palliative-care-150x150.jpg","thumbnail-width":150,"thumbnail-height":150,"medium":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/Palliative-care-300x223.jpg","medium-width":300,"medium-height":223,"medium_large":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/Palliative-care-768x570.jpg","medium_large-width":768,"medium_large-height":570,"large":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/Palliative-care-1024x761.jpg","large-width":1024,"large-height":761,"1536x1536":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/Palliative-care.jpg","1536x1536-width":1536,"1536x1536-height":1141,"2048x2048":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/Palliative-care.jpg","2048x2048-width":1920,"2048x2048-height":1426,"xxlarge":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/Palliative-care-1920x1426.jpg","xxlarge-width":1920,"xxlarge-height":1426,"xlarge":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/Palliative-care.jpg","xlarge-width":1280,"xlarge-height":951,"header-navigation":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/Palliative-care-480x1080.jpg","header-navigation-width":480,"header-navigation-height":1080,"link-category":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/Palliative-care-380x256.jpg","link-category-width":380,"link-category-height":256,"card":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/Palliative-care-450x450.jpg","card-width":450,"card-height":450,"gform-image-choice-sm":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/Palliative-care.jpg","gform-image-choice-sm-width":300,"gform-image-choice-sm-height":223,"gform-image-choice-md":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/Palliative-care.jpg","gform-image-choice-md-width":400,"gform-image-choice-md-height":297,"gform-image-choice-lg":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/Palliative-care.jpg","gform-image-choice-lg-width":600,"gform-image-choice-lg-height":446}},"title":"Support and Palliative Care","description":"<p>Palliative care professionals can support you and your family to improve your quality of life so you can live as well as you can for as long as you can.\u00a0 Palliative care complements your active treatments - such as clinical trials - whilst also addressing your symptoms to ensure you get the best out<\/p>\n","link_url":"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support-and-palliative-care\/"}]},{"acf_fc_layout":"cta_horizontal","heading":"Become a member","copy":"Join Lung Foundation Australia to stay up to date with services, events and information that will help you to live well with your lung condition. Membership offers access to a range of benefits, including access to a hard copy of our quarterly LungNet newsletter.    ","link":{"title":"Sign up","url":"https:\/\/lungfoundation.com.au\/become-a-member\/","target":""},"link_icon":"none","background":{"background_type":"Image","image":{"ID":726,"id":726,"title":"SAL events header","filename":"SAL-events-header.jpg","filesize":985846,"url":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/SAL-events-header.jpg","link":"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/copd\/support\/sal-events-header\/","alt":"","author":"3","description":"","caption":"","name":"sal-events-header","status":"inherit","uploaded_to":1109,"date":"2018-09-11 23:32:40","modified":"2021-11-22 22:50:16","menu_order":0,"mime_type":"image\/jpeg","type":"image","subtype":"jpeg","icon":"https:\/\/lungfoundation.com.au\/wp-includes\/images\/media\/default.png","width":1920,"height":450,"sizes":{"thumbnail":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/SAL-events-header-150x150.jpg","thumbnail-width":150,"thumbnail-height":150,"medium":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/SAL-events-header-300x70.jpg","medium-width":300,"medium-height":70,"medium_large":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/SAL-events-header-768x180.jpg","medium_large-width":768,"medium_large-height":180,"large":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/SAL-events-header-1024x240.jpg","large-width":1024,"large-height":240,"1536x1536":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/SAL-events-header.jpg","1536x1536-width":1536,"1536x1536-height":360,"2048x2048":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/SAL-events-header.jpg","2048x2048-width":1920,"2048x2048-height":450,"xxlarge":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/SAL-events-header-1920x450.jpg","xxlarge-width":1920,"xxlarge-height":450,"xlarge":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/SAL-events-header.jpg","xlarge-width":1280,"xlarge-height":300,"header-navigation":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/SAL-events-header-480x450.jpg","header-navigation-width":480,"header-navigation-height":450,"link-category":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/SAL-events-header-380x256.jpg","link-category-width":380,"link-category-height":256,"card":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/SAL-events-header-450x450.jpg","card-width":450,"card-height":450,"gform-image-choice-sm":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/SAL-events-header.jpg","gform-image-choice-sm-width":300,"gform-image-choice-sm-height":70,"gform-image-choice-md":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/SAL-events-header.jpg","gform-image-choice-md-width":400,"gform-image-choice-md-height":94,"gform-image-choice-lg":"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/SAL-events-header.jpg","gform-image-choice-lg-width":600,"gform-image-choice-lg-height":141}},"colour":"#ffffff","overlay":"Black","repeat":false}},{"acf_fc_layout":"featured_posts_static","heading":"Real COPD Stories","view_more_link":"","posts":[{"ID":462,"post_author":"3","post_date":"2018-09-06 14:01:09","post_date_gmt":"2018-09-06 04:01:09","post_content":"<h3>Imagine spending every hour of everyday being short of breath. My disease has no cure - it\u2019s progressive and kills over 3 million people every year.<\/h3>\r\nMy name is Russell Winwood also referred to as the COPD Athlete. My disease has left me with just 30% lung function \u2013 my life operates in an extreme environment.\r\n\r\nI was diagnosed with asthma when I was young, but managed to have an active childhood playing sports and doing what most kids do. In my late teens I started smoking socially. I\u2019m not sure why, as I knew it was bad for me, but continued to smoke until my late 30\u2019s. On Christmas Day in 2002 I collapsed. Too many years of not looking after myself had caught up with me in the form of a stroke \u2013 I was 36. The paramedics who attended to me when I had my stroke visited me in hospital three days later as they didn\u2019t believe I had survived. I realised it was time to change my habits. I eventually gave up the cigarettes, cut down drinking alcohol and started eating better. At the time of my stroke I was 88 kg, about 20 kg over weight. My son had just started cycling and talked me into taking it up \u2013 it was the best thing I ever did. The weight started coming off and I was feeling like a 36 year old should.\r\n\r\n<img class=\"alignnone size-large wp-image-464\" src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/Family-1024x718.jpg\" alt=\"\" width=\"1024\" height=\"718\" \/>\r\n\r\nA friend of mine suggested I should do a triathlon. I was hesitant because I wasn\u2019t a great swimmer, but eventually I agreed. So for the next eight years I competed in varying distances of triathlons from sprint to Half Ironman as well as a couple of ultra-marathons.\r\n<blockquote>In 2011 after noticing my training times were getting slower, exercise was getting harder and I was constantly short of breath, I took myself off to the doctors.<\/blockquote>\r\nSpirometry and lung function tests confirmed I had Chronic Obstructive Pulmonary Disease (COPD), with a FEV 1 &lt;30% of predicted. That basically means my lungs are operating between 22-30% of their predicted capacity. I was told that I would possibly need a double lung transplant within five years. Surprisingly the scan showed that there was no major damage to my lungs from smoking. My airways had become very narrow due to years of chest infections, causing a build-up of scar tissue.\r\n\r\n<img class=\"alignnone size-full wp-image-465\" src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/GCM2.jpg\" alt=\"\" width=\"664\" height=\"1000\" \/>\r\n\r\nBeing diagnosed with COPD was hard. I felt cheated because I had worked so hard to rebuild my health after having a stroke.\r\n<blockquote>I could have let this disease slowly suffocate the life out of me.<\/blockquote>\r\nInstead, I decided to do an Ironman event and then another, and another. Then I thought I\u2019d run marathons around the world and raise money for charities \u2013 New York, Gold Coast, London and recently Boston.\r\n\r\nI\u2019m very different to other disabled athletes who may have lost a limb or been confined to life in a wheel chair. My disability doesn\u2019t have a category in the Para Olympics or any event because people with my disability don\u2019t usually run, cycle or swim. Patients with my level of disease are generally house bound and very immobile, and many find it hard to go on.\r\n<blockquote>My disability affects the number one thing in life we cannot do without \u2013 the ability to breathe.<\/blockquote>\r\nI have found a way of living well with COPD and spend most of my days sharing my experiences with patients and respiratory professionals. I have written over a hundred articles about my disease \u2013 the highs, the lows and my strategies which allow me to live well with COPD.\r\n<blockquote>My dream is to run a marathon with one of my grandchildren, when they are old enough. My disease will never define me!<\/blockquote>\r\n<h4>Sharing your personal experience with lung disease is a compelling and inspiring way for others to learn about and cope with their diagnosis. Your story may also encourage people to identify and act on symptoms they are experiencing, which may otherwise have been ignored.<\/h4>\r\n<h4><a href=\"https:\/\/lungfoundation.com.au\/get-involved\/how-you-can-help\/share-your-story\/\">Share your story, here<\/a>.<\/h4>","post_title":"Russell's story","post_excerpt":"","post_status":"publish","comment_status":"open","ping_status":"closed","post_password":"","post_name":"russells-story","to_ping":"","pinged":"","post_modified":"2018-10-18 15:02:08","post_modified_gmt":"2018-10-18 05:02:08","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=story&#038;p=462","menu_order":0,"post_type":"story","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":471,"post_author":"3","post_date":"2018-09-06 14:05:07","post_date_gmt":"2018-09-06 04:05:07","post_content":"<h3>I hope to travel for a long time yet. There is still plenty to look forward to, even with COPD.<\/h3>\r\nA few years ago I was diagnosed with osteoporosis and was doing exercises to better manage it.\r\n<blockquote>At the time I remember feeling that my breathing and endurance was not as good as the other ladies in the class.<\/blockquote>\r\nI had minor asthma over the years, a few years of smoking and lived in a mining town for many years. A few times I had bronchitis and chest infections and finally pneumonia. It was at that stage that the report said that I had some degree of Chronic Obstructive Pulmonary Disease (COPD), which was later confirmed by a spirometry test.\r\n<blockquote>When I was diagnosed with COPD I had to do a lot of research to find out what it was as I was not familiar with that term.<\/blockquote>\r\nAt the time I didn\u2019t take it all that seriously, except to think that I now had to look out for something else after being diagnosed with a second disease.\r\n\r\nSince being diagnosed, I have learnt there are many things I can do to live well with my condition. I have a small Peak Flow Meter at home which works with my iPad, so I am able to keep track of the quality of my breathing. I try to let neither COPD nor osteoporosis define me.\r\n<blockquote>Thanks to pulmonary rehabilitation, I do a lot more exercise than I have probably done before. I go to the gym four times a week and do a lot of weights \u2013 even one of my favourites, the deadlift.<\/blockquote>\r\nI also use a lot of the other machines and recently started on the step machine and have been able to improve from 66 steps to 110.\r\n\r\nWhen I go on my 50 minute walk, which I do when I don't go to the gym, I do a few minutes of jogging or until my breath is not that great anymore. I have an exercise physiologist to write my program, but I still do a lot of the exercises which the two beautiful ladies who taught us at pulmonary rehabilitation - Stella and Jo. I am now stage 3 of COPD, but I still do most of the things I did a couple of years ago.\r\n<blockquote>I wish I was told earlier about the benefits of pulmonary rehabilitation as I found the program very helpful - maybe doctors don't know how useful it actually is. Anybody with COPD should have the opportunity to participate in such a program.<\/blockquote>\r\nI hope more research is being done so that one day there might be a medication that is able to reverse or stop the progress of COPD.\r\n\r\nMy husband is a great help at home and a fantastic chef in the kitchen. He helps out with all sorts of household chores and does a lot of organising for our overseas trips. Other than travelling, I also enjoy crosswords, following politics, exercising, reading, admiring the colourful gardens when I go walking and listening to the songs of the birds.\r\n<blockquote>I hope to travel for a long time yet. There is still plenty to look forward to, even with COPD.<\/blockquote>\r\nAfter studying commerce, I worked for many years as an Office Manager both nationally and internationally and still do some selling on the internet to keep my mind busy and active. My husband and I have been blessed with two beautiful and successful children and four very lovely grandchildren.\r\n<h4>Sharing your personal experience with lung disease is a compelling and inspiring way for others to learn about and cope with their diagnosis. Your story may also encourage people to identify and act on symptoms they are experiencing, which may otherwise have been ignored.<\/h4>\r\n<h4><a href=\"https:\/\/lungfoundation.com.au\/get-involved\/how-you-can-help\/share-your-story\/\">Share your story, here<\/a>.<\/h4>","post_title":"Josefina's story","post_excerpt":"","post_status":"publish","comment_status":"open","ping_status":"closed","post_password":"","post_name":"josefina","to_ping":"","pinged":"","post_modified":"2018-10-18 15:00:30","post_modified_gmt":"2018-10-18 05:00:30","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=story&#038;p=471","menu_order":0,"post_type":"story","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":402,"post_author":"3","post_date":"2018-09-06 07:58:51","post_date_gmt":"2018-09-05 21:58:51","post_content":"I was always a very active person, a handy man, I enjoyed outdoor activities and played sport competitively until in my 40s. Unfortunately, my work life exposed me to irritants in industrial plants, machinery and equipment and I was born in the 40s and like many of my generation, I was a regular smoker until I quit in when I was 50.\n\nI guess my positive, cavalier or casual approach to life convinced me that I was somehow immune to lung disease and it was something other people suffered.\n\n<img class=\"alignnone wp-image-403 size-full\" src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/Ian-and-Judy.jpg\" alt=\"\" width=\"1380\" height=\"776\" \/>\n\nIn 2003, I began to experience subtle symptoms which belied the seriousness of the condition that I now live with.\u00a0Like many, I had excuses and reasons for them all. The shortness of breath walking up some hills I assumed I was getting older or I because I didn\u2019t exercise as much as I should. The cough seemed to hang on much longer after a bout of the flu or a bad cold. I seemed to be getting more chest infections than I used to however I was travelling in areas of weather extremes and exposed to varying levels of health in the general population \u2013 I assumed that was the cause.\n\nIt wasn\u2019t until my mid-fifties I was told I had Chronic Obstructive Pulmonary Disease (COPD) and had lost more than 25 per cent of my lung capacity. The specialist simply said as long as you do not smoke again, you should have many years in front of you. In my mind I had already quit smoking six years before, so there was no need to do anything further.\n\nFast forward to 2011, I was eight years older, and despite all my bravado and self-deception, I was forced by events to confront reality. My breathing was now considerably worse and beginning to impact my everyday living. Things began to take longer to do and everyday activities such as fishing, gardening, playing with grandchildren were becoming a chore. Planning physical activity became a necessary part of every day to avoid increasing tiredness and the need to rest. I worked hard to hide the worst of my symptoms from my greatest supporter, and most severe critic, my significant other. Work responsibilities also began to bear down on me as the disability spiral kicked up a gear.\n\nFortunately for me, my wife is far smarter than I am and, having grown tired of letting me believe that she saw none of this, insisted that I consult another respiratory specialist, do what I was told, and plan an exit from work. Another breathing test result now showed a 50 per cent loss of predicted capacity, I faced reality and my own mortality squarely in the eye for the very first time. I began\u00a0an eight week\u00a0pulmonary rehabilitation\u00a0at the Royal Brisbane and Womens Hospital soon after. Once the pulmonary rehabilitation program was finished, the group was urged to \u2018maintain the gains\u2019 at weekly Lungs in Action community group-based\u00a0pulmonary maintenance exercise\u00a0classes.\n\n<img class=\"alignnone wp-image-404 size-full\" src=\"https:\/\/lungfoundation.com.au\/wp-content\/uploads\/2018\/09\/iPad-Photos-267-resized.jpg\" alt=\"\" width=\"1200\" height=\"800\" \/>\n\nI attend this class twice weekly and I believe this is one of the most critical factors in maintaining good health for people with COPD.\u00a0It\u2019s taught me not to be too hard on myself. Living with COPD is a day-to-day proposition. I believe in doing what I can\u00a0and being honest with myself. If I am breathless I always remember that in a while I will recover.\n\nI am now more than 12 years post diagnosis and after completing pulmonary rehabilitation and starting my volunteer work with Lung Foundation Australia, I can look back with some satisfaction at where I am and what I have achieved.\n\nMy COPD is stable, despite having suffered a couple of exacerbations over the last few years while travelling overseas.\u00a0The fact that I have travelled at all is testimony to the fact that there is life after diagnosis and my commitment to maintenance exercise and close attention to medication and preventative measures plays no small role in that.\n\nThis is my story. Whether you\u2019re a patient, carer, clinician or bystander, I hope what I have shared resonates with you in some way.\n<h4>Sharing your personal experience with lung disease is a compelling and inspiring way for others to learn about and cope with their diagnosis. Your story may also encourage people to identify and act on symptoms they are experiencing, which may otherwise have been ignored.<\/h4>\n<h4><a href=\"https:\/\/lungfoundation.com.au\/get-involved\/how-you-can-help\/share-your-story\/\">Share your story, here<\/a>.<\/h4>","post_title":"Ian's story","post_excerpt":"","post_status":"publish","comment_status":"open","ping_status":"closed","post_password":"","post_name":"ians-story","to_ping":"","pinged":"","post_modified":"2019-04-17 14:09:32","post_modified_gmt":"2019-04-17 04:09:32","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=story&#038;p=402","menu_order":0,"post_type":"story","post_mime_type":"","comment_count":"0","filter":"raw"}]}],"subtitle":"Chronic Obstructive Pulmonary Disease","disable_header_overlay":false},"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/1109","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/comments?post=1109"}],"version-history":[{"count":9,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/1109\/revisions"}],"predecessor-version":[{"id":94080,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/1109\/revisions\/94080"}],"up":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/1095"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/media\/2783"}],"wp:attachment":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/media?parent=1109"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}