{"id":10855,"date":"2020-09-30T17:24:04","date_gmt":"2020-09-30T07:24:04","guid":{"rendered":"https:\/\/lungfoundation.com.au\/?post_type=story&p=10855"},"modified":"2021-03-05T15:42:14","modified_gmt":"2021-03-05T05:42:14","slug":"cobeys-story-2","status":"publish","type":"story","link":"https:\/\/lungfoundation.com.au\/stories\/cobeys-story-2\/","title":{"rendered":"Cobey’s Story"},"content":{"rendered":"\n

For Cobey, research means the chance to grow old with her husband and hope for a cure.  <\/strong><\/h4>\n\n\n\n
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In 2018, aged just 21, the newlywed, pharmacist and self-confessed dog lover was diagnosed with a rare and incurable lung disease – Idiopathic Pulmonary Arterial Hypertension (PAH).  <\/p>\n\n\n\n

Cobey\u2019s condition has forced her to reconsider her future plans, like starting a family. While advancements in treatment currently allow her to live a relatively normal life, Cobey knows that at some point the medication may stop working and without research to uncover more options, a lung transplant will be a likely necessity. <\/p>\n<\/div><\/div>\n\n\n\n

\u201cI was totally devastated when I was diagnosed. It turned my life upside down. At 21, you don\u2019t expect to be told you have a life-threatening disease with no cure. Not when you think you have the rest of your life ahead of you. Every day is a mental and physical battle, but I refuse to let it beat me.\u201d  <\/p>\n\n\n\n

\u201cI was told that at this stage having children would be very dangerous and that the medication I was put on to help my disease could cause birth defects. My husband and I had talked about having children in the future, but my diagnosis has made us re-evaluate these plans.  <\/p>\n\n\n\n

\u201cSince I\u2019ve been diagnosed and put on medication, my life has improved. Medical advances have come a long way and I\u2019m hopeful of what the future holds with more research. <\/p>\n\n\n\n

\u201cPAH is considered an incurable disease, if research could find out exactly how it develops than maybe they could find a way of curing it without patients having to undergo a lung transplant. <\/p><\/blockquote><\/figure>\n\n\n\n

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\u201cIf I do have to undergo a lung transplant, research may help find a way to develop lungs made from my own cells which would reduce the likelihood of organ rejection and the need to be on lots of medications that prevent rejection or those that treat the side effects of anti-rejection medications. This would mean that I could live my life to the fullest, free of organ rejection worry, side effects of medications and lungs that are failing me. <\/p>\n\n\n\n

\u201cThere is no doubt that research changes lives \u2013 it has helped get combination therapy listed on the PBS so that more people with my disease have access to it and can afford it. It has helped develop medicines that don\u2019t require a continuous intravenous infusion which means patients like me can live a more normal and better quality of life without being attached to a pump 24\/7. <\/p>\n<\/div><\/div>\n\n\n\n

\u201cSupport for research into PAH shows me that other people do care about improving the lives of those suffering from PAH and that whilst I may have an invisible disease, I am not invisible to researchers.  <\/p>\n\n\n\n

Please consider donating to support lung health research, you have no idea how many people you can help. You will help not just patients suffering from lung disease but all their loved ones too as lung disease does not just impact the patient, but their families and  loved ones. Your support could improve a patient\u2019s quality of life, help find a new medication or develop a cure for a disease. Every dollar has the potential to improve or save a life.”<\/p>\n\n\n\n

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Research saves lives and gives hope for a cure.
Give hope. Give to research today<\/strong>.<\/h2>\n\n\n\n
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Donate today<\/a><\/div>\n<\/div>\n\n\n\n
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30 Reasons for Research<\/h4>\n\n\n\n

In celebration of our 30th anniversary, we are highlighting 30 Reasons to donate to life-changing lung disease and lung cancer research. For the millions of Australians impacted by lung disease and lung cancer, research means more precious moments with loved ones, a chance to experience their next life milestone, and independence to do the day-to-day activities that many of us take for granted. <\/p>\n<\/div><\/div>\n\n\n\n

Click\u00a0<\/strong>here<\/strong><\/a>\u00a0<\/strong>to find out more\u00a0about the research being done courtesy of generous donations.\u00a0\u00a0<\/h5>\n","protected":false},"excerpt":{"rendered":"

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