{"id":10618,"date":"2020-09-21T11:38:55","date_gmt":"2020-09-21T01:38:55","guid":{"rendered":"https:\/\/lungfoundation.com.au\/?page_id=10618"},"modified":"2023-08-31T16:23:29","modified_gmt":"2023-08-31T06:23:29","slug":"resources","status":"publish","type":"page","link":"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pf\/resources\/","title":{"rendered":"Resources"},"content":{"rendered":"","protected":false},"excerpt":{"rendered":"","protected":false},"author":85,"featured_media":91879,"parent":1262,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-10618","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"\nResources - Lung Foundation Australia<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lungfoundation.com.au\/patients-carers\/living-with-a-lung-disease\/pf\/resources\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Resources - 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Lung Foundation Australia, in partnership with the Centre of Research Excellence in Pulmonary Fibrosis, are here to provide you with the tools and information you need to live well with your condition. Explore this page and download our free resource pack to access evidence-based resources, connection to a community of others who understand what you're going through, and updates on clinical trials and research. ","link":""},{"acf_fc_layout":"form","heading":"Download a free pulmonary fibrosis resource pack or scroll down to browse our resources below.","text":"Connect to care today. Complete the form below to access your FREE resource pack.","form":18},{"acf_fc_layout":"featured_posts_static","heading":"Resources to get you started","view_more_link":"","posts":[{"ID":6114,"post_author":"85","post_date":"2019-08-20 14:08:17","post_date_gmt":"2019-08-20 04:08:17","post_content":"<!-- wp:paragraph -->\n<p>The Life with Pulmonary Fibrosis (PF) booklet provides detailed information to help you gain a deeper understanding about PF and covers the following topics:<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul class=\"wp-block-list\"><!-- wp:list-item -->\n<li>Diagnosis<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Ongoing monitoring<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Treatment<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Managing symptoms<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Exacerbations<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Other conditions<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Living well<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Getting around<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Preparing for life with PF.<\/li>\n<!-- \/wp:list-item --><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:paragraph -->\n<p>For further detailed information you can watch our webinar series with specific topics <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/webinars\/\">here <\/a>or contact our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information and Support Centre<\/a> on <a href=\"tel:1800 654 301\">1800 654 301.<\/a><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 class=\"wp-block-heading\">Additional Languages:<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p><a href=\"https:\/\/lungfoundation.com.au\/resources\/the-life-with-pulmonary-fibrosis-simplified-chinese\/\">Simplified Chinese \u2013 \u4e0e\u80ba\u7ea4\u7ef4\u5316 \u5171\u5b58\u7684\u751f\u6d3b<\/a><br><a href=\"https:\/\/lungfoundation.com.au\/resources\/the-life-with-pulmonary-fibrosis-vietnamese\/\">Vietnamese \u2013 Cu\u1ed9c s\u1ed1ng v\u1edbi b\u1ec7nh x\u01a1 ph\u1ed5i<\/a><br><a href=\"https:\/\/lungfoundation.com.au\/resources\/the-life-with-pulmonary-fibrosis-arabic\/\">Arabic \u2013 \u0627\u0644\u062d\u064a\u0627\u0629 \u0645\u0639 \u0627\u0644\u062a\u0644\u064a\u0641 \u0627\u0644\u0631\u0626\u0648\u064a<\/a><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><a href=\"https:\/\/lungfoundation.com.au\/resources\/the-life-with-pulmonary-fibrosis-arabic\/\"><br><\/a><\/p>\n<!-- \/wp:paragraph -->","post_title":"Life with Pulmonary Fibrosis","post_excerpt":"This booklet contains information for people living with Pulmonary Fibrosis (PF) and their carers including an overview of diagnosis, management and living well.","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"life-with-pulmonary-fibrosis","to_ping":"","pinged":"","post_modified":"2024-11-08 10:51:16","post_modified_gmt":"2024-11-08 00:51:16","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=6114","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":180,"post_author":"3","post_date":"2018-09-04 15:11:40","post_date_gmt":"2018-09-04 05:11:40","post_content":"<!-- wp:paragraph -->\n<p>The Idiopathic Pulmonary Fibrosis (IPF) fact sheet provides an understanding of the condition and covers topics including:<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><!-- wp:list-item -->\n<li>Experiences<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Treatment<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Management<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Medications<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Oxygen therapy<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Lung transplants<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Pulmonary rehabilitation<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Vaccination<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Emotional support<\/li>\n<!-- \/wp:list-item --><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:paragraph -->\n<p>For further information you can access the Life with Pulmonary Fibrosis booklet found <a href=\"https:\/\/lungfoundation.com.au\/resources\/?user_category=31&search=life%20with%20pulmonary%20fibrosis\">here <\/a>or contact our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information and Support Centre<\/a> on <a href=\"tel:1800 654 301\">1800 654 301<\/a>.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Idiopathic Pulmonary Fibrosis (IPF)","post_excerpt":"The Idiopathic Pulmonary Fibrosis (IPF) fact sheet provides a brief overview of IPF, symptoms, causes, diagnosis, treatment and management.","post_status":"publish","comment_status":"open","ping_status":"closed","post_password":"","post_name":"ipf-fact-sheet","to_ping":"","pinged":"","post_modified":"2023-08-30 15:52:01","post_modified_gmt":"2023-08-30 05:52:01","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=180","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":10016,"post_author":"85","post_date":"2020-08-21 15:50:59","post_date_gmt":"2020-08-21 05:50:59","post_content":"<!-- wp:paragraph -->\n<p>Join Lung Foundation Australia and Amanda McAnulty (Senior Physiotherapist) for our Managing Cough and Breathlessness webinar. In this webinar Amanda shares her tips and advice on the management of cough and breathlessness. She also demonstrates some airway clearance techniques. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>For further information you can access the Life with Pulmonary Fibrosis booklet <a href=\"https:\/\/lungfoundation.com.au\/resources\/?user_category=31&search=life%20with%20pulmonary%20fibrosis\">here <\/a>or contact our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information and Support Centre<\/a> on <a href=\"tel:1800 654 301\">1800 654 301<\/a>.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Managing Cough and Breathlessness","post_excerpt":"In this webinar, Amanda McAnulty (Senior Physiotherapist) shares advice on managing cough and breathlessness in Pulmonary Fibrosis.","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"live-well-breathe-better-managing-cough-and-breathlessness","to_ping":"","pinged":"","post_modified":"2022-06-07 12:07:15","post_modified_gmt":"2022-06-07 02:07:15","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=10016","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"Our understanding PF\/IPF resources","view_more_link":"https:\/\/lungfoundation.com.au\/resources\/?user_category=31&condition=23&search=Understanding","posts":[{"ID":91024,"post_author":"482","post_date":"2023-05-12 09:47:42","post_date_gmt":"2023-05-11 23:47:42","post_content":"<!-- wp:paragraph -->\n<p>The Connective Tissue Disease-associated Interstitial Lung Disease (CTD-ILD) fact sheet has been designed to provide an understanding of the causes, symptoms and diagnosis of CTD-ILD. The resource provides information to support with symptom management and provides an overview of the treatments available for CTD-ILD. \u00a0<\/p>\n<!-- \/wp:paragraph -->","post_title":"Connective Tissue Disease-associated Interstitial Lung Disease (CTD-ILD)","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"connective-tissue-disease-associated-interstitial-lung-disease-ctd-ild","to_ping":"","pinged":"","post_modified":"2023-05-12 09:54:57","post_modified_gmt":"2023-05-11 23:54:57","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=91024","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":180,"post_author":"3","post_date":"2018-09-04 15:11:40","post_date_gmt":"2018-09-04 05:11:40","post_content":"<!-- wp:paragraph -->\n<p>The Idiopathic Pulmonary Fibrosis (IPF) fact sheet provides an understanding of the condition and covers topics including:<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><!-- wp:list-item -->\n<li>Experiences<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Treatment<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Management<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Medications<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Oxygen therapy<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Lung transplants<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Pulmonary rehabilitation<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Vaccination<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Emotional support<\/li>\n<!-- \/wp:list-item --><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:paragraph -->\n<p>For further information you can access the Life with Pulmonary Fibrosis booklet found <a href=\"https:\/\/lungfoundation.com.au\/resources\/?user_category=31&search=life%20with%20pulmonary%20fibrosis\">here <\/a>or contact our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information and Support Centre<\/a> on <a href=\"tel:1800 654 301\">1800 654 301<\/a>.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Idiopathic Pulmonary Fibrosis (IPF)","post_excerpt":"The Idiopathic Pulmonary Fibrosis (IPF) fact sheet provides a brief overview of IPF, symptoms, causes, diagnosis, treatment and management.","post_status":"publish","comment_status":"open","ping_status":"closed","post_password":"","post_name":"ipf-fact-sheet","to_ping":"","pinged":"","post_modified":"2023-08-30 15:52:01","post_modified_gmt":"2023-08-30 05:52:01","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=180","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":284,"post_author":"3","post_date":"2018-09-05 12:18:53","post_date_gmt":"2018-09-05 02:18:53","post_content":"<!-- wp:paragraph -->\n<p>Sarcoidosis is the name given to a condition in which small nodules or \u201csarcoid granulomas\u201d appear in the body\u2019s tissues. To find out more about Sarcoidosis read our resource which discusses:<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><li>What Sarcoidosis is<\/li><li>Common symptoms<\/li><li>Causes of sarcoidosis<\/li><li>Diagnosis<\/li><li>Treatment<br><\/li><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:paragraph -->\n<p>For further information you can contact our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information and Support Centre<\/a> on <a href=\"tel:1800654301\">1800 654 301<\/a>.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Sarcoidosis","post_excerpt":"The Sarcoidosis fact sheet provides a brief overview of sarcoidosis its causes, symptoms, diagnosis, treatment, and management as well how to live well with the condition. ","post_status":"publish","comment_status":"open","ping_status":"closed","post_password":"","post_name":"sarcoidosis-fact-sheet","to_ping":"","pinged":"","post_modified":"2021-03-17 10:22:14","post_modified_gmt":"2021-03-17 00:22:14","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=284","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"","view_more_link":"https:\/\/lungfoundation.com.au\/external-resource-hub\/?link_condition=228&search=Understanding","posts":[{"ID":6114,"post_author":"85","post_date":"2019-08-20 14:08:17","post_date_gmt":"2019-08-20 04:08:17","post_content":"<!-- wp:paragraph -->\n<p>The Life with Pulmonary Fibrosis (PF) booklet provides detailed information to help you gain a deeper understanding about PF and covers the following topics:<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul class=\"wp-block-list\"><!-- wp:list-item -->\n<li>Diagnosis<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Ongoing monitoring<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Treatment<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Managing symptoms<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Exacerbations<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Other conditions<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Living well<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Getting around<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Preparing for life with PF.<\/li>\n<!-- \/wp:list-item --><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:paragraph -->\n<p>For further detailed information you can watch our webinar series with specific topics <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/webinars\/\">here <\/a>or contact our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information and Support Centre<\/a> on <a href=\"tel:1800 654 301\">1800 654 301.<\/a><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":4} -->\n<h4 class=\"wp-block-heading\">Additional Languages:<\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p><a href=\"https:\/\/lungfoundation.com.au\/resources\/the-life-with-pulmonary-fibrosis-simplified-chinese\/\">Simplified Chinese \u2013 \u4e0e\u80ba\u7ea4\u7ef4\u5316 \u5171\u5b58\u7684\u751f\u6d3b<\/a><br><a href=\"https:\/\/lungfoundation.com.au\/resources\/the-life-with-pulmonary-fibrosis-vietnamese\/\">Vietnamese \u2013 Cu\u1ed9c s\u1ed1ng v\u1edbi b\u1ec7nh x\u01a1 ph\u1ed5i<\/a><br><a href=\"https:\/\/lungfoundation.com.au\/resources\/the-life-with-pulmonary-fibrosis-arabic\/\">Arabic \u2013 \u0627\u0644\u062d\u064a\u0627\u0629 \u0645\u0639 \u0627\u0644\u062a\u0644\u064a\u0641 \u0627\u0644\u0631\u0626\u0648\u064a<\/a><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><a href=\"https:\/\/lungfoundation.com.au\/resources\/the-life-with-pulmonary-fibrosis-arabic\/\"><br><\/a><\/p>\n<!-- \/wp:paragraph -->","post_title":"Life with Pulmonary Fibrosis","post_excerpt":"This booklet contains information for people living with Pulmonary Fibrosis (PF) and their carers including an overview of diagnosis, management and living well.","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"life-with-pulmonary-fibrosis","to_ping":"","pinged":"","post_modified":"2024-11-08 10:51:16","post_modified_gmt":"2024-11-08 00:51:16","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=6114","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":90186,"post_author":"482","post_date":"2023-01-19 10:38:55","post_date_gmt":"2023-01-19 00:38:55","post_content":"<!-- wp:paragraph -->\n<p>The Hypersensitivity Pneumonitis (HP) fact sheet has been designed to provide an understanding of the causes, symptoms and diagnosis of HP. The resource provides information to help people living with HP on symptom management and an overview of the treatments available for HP.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><\/p>\n<!-- \/wp:paragraph -->","post_title":"Hypersensitivity Pneumonitis (HP)","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"hypersensitivity-pneumonitis","to_ping":"","pinged":"","post_modified":"2023-01-20 14:47:32","post_modified_gmt":"2023-01-20 04:47:32","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=90186","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":91041,"post_author":"482","post_date":"2023-05-12 12:24:13","post_date_gmt":"2023-05-12 02:24:13","post_content":"<!-- wp:paragraph -->\n<p>The Scleroderma with ILD fact sheet has been designed to provide an understanding of the causes, symptoms and diagnosis of Systemic Sclerosis-related ILD (SSc-ILD). The resource provides information to support with symptom management and provides an overview of the treatments available for SSc-ILD.  <br> <\/p>\n<!-- \/wp:paragraph -->","post_title":"Scleroderma with Interstitial Lung Disease (ILD)","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"scleroderma-with-interstitial-lung-disease-ild","to_ping":"","pinged":"","post_modified":"2023-05-16 08:49:40","post_modified_gmt":"2023-05-15 22:49:40","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=91041","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"External understanding PF\/IPF resources","view_more_link":"https:\/\/lungfoundation.com.au\/external-resource-hub\/?link_condition=228&search=Understanding","posts":[{"ID":12328,"post_author":"85","post_date":"2021-02-08 08:36:18","post_date_gmt":"2021-02-07 22:36:18","post_content":"<!-- wp:paragraph -->\n<p>This resource provides an understanding of pulmonary fibrosis, associated conditions and symptoms. Please note some information is UK specific.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Pulmonary fibrosis and how it affects your breathing","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"pulmonary-fibrosis-and-how-it-affects-your-breathing","to_ping":"","pinged":"","post_modified":"2022-09-28 15:22:45","post_modified_gmt":"2022-09-28 05:22:45","post_content_filtered":"","post_parent":0,"guid":"http:\/\/lungfoundation.com.au\/?post_type=link&p=12328","menu_order":0,"post_type":"link","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":89041,"post_author":"482","post_date":"2022-09-28 15:58:51","post_date_gmt":"2022-09-28 05:58:51","post_content":"<!-- wp:paragraph -->\n<p>This resource provides an in-depth overview and understanding of Idiopathic Pulmonary Fibrosis including treatment and management options.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Living with IPF ebook","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"living-with-ipf-ebook","to_ping":"","pinged":"","post_modified":"2022-09-28 15:58:54","post_modified_gmt":"2022-09-28 05:58:54","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=link&p=89041","menu_order":0,"post_type":"link","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":12327,"post_author":"85","post_date":"2021-02-08 08:34:52","post_date_gmt":"2021-02-07 22:34:52","post_content":"<!-- wp:paragraph -->\n<p>This resource provides an understanding of testing used in the diagnosis of Pulmonary Fibrosis. Please note some information is UK specific.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Pulmonary Fibrosis diagnosis and tests","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"pulmonary-fibrosis-diagnosis-and-tests","to_ping":"","pinged":"","post_modified":"2022-06-07 13:45:21","post_modified_gmt":"2022-06-07 03:45:21","post_content_filtered":"","post_parent":0,"guid":"http:\/\/lungfoundation.com.au\/?post_type=link&p=12327","menu_order":0,"post_type":"link","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"Our PF\/IPF management resources","view_more_link":"https:\/\/lungfoundation.com.au\/resources\/?user_category=31&search=Management&condition=23","posts":[{"ID":89091,"post_author":"112","post_date":"2022-09-30 10:05:08","post_date_gmt":"2022-09-30 00:05:08","post_content":"<!-- wp:paragraph -->\n<p>The Cough and breathlessness booklet has been designed to help people living with Pulmonary Fibrosis (PF) understand the causes of cough and breathlessness. The resource provides information on symptom management and an overview of the treatments available.\u00a0\u00a0<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>The information has been written mainly for people diagnosed with PF, however many of the suggestions for symptom management can be used in other types of chronic lung disease.\u202f<\/p>\n<!-- \/wp:paragraph -->","post_title":"Cough and breathlessness: Living with Pulmonary Fibrosis","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"cough-and-breathlessness-book-living-with-pulmonary-fibrosis","to_ping":"","pinged":"","post_modified":"2022-09-30 10:06:43","post_modified_gmt":"2022-09-30 00:06:43","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=89091","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":89046,"post_author":"482","post_date":"2022-09-29 15:41:04","post_date_gmt":"2022-09-29 05:41:04","post_content":"<!-- wp:paragraph -->\n<p>The Palliative Care factsheet has been designed to provide information on palliative care and the benefits of engaging early with this service to help you live as well as possible with PF. This resource contains information, which along with advice from your treating healthcare team, will help you make choices which are the best for you and your situation. <\/p>\n<!-- \/wp:paragraph -->","post_title":"How can palliative care help you?\u00a0","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"how-can-palliative-care-help-you","to_ping":"","pinged":"","post_modified":"2022-10-04 10:38:06","post_modified_gmt":"2022-10-04 00:38:06","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=89046","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":91316,"post_author":"482","post_date":"2023-06-07 14:17:47","post_date_gmt":"2023-06-07 04:17:47","post_content":"<!-- wp:paragraph -->\n<p>The lung transplant and ILD fact sheet has been designed to provide you with an understanding of lung transplantation and information to support you through the different stages of the journey. Topic areas include:  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><!-- wp:list-item -->\n<li>What is a lung transplant? <\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Why might I need a lung transplant?<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>Who can receive a lung transplant? <\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>eligibility assessment and work up  <\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>what to expect from your healthcare team  <\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>waiting list registration and maintaining your health <\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li>An understanding of the surgery process including post-transplant care and management  <\/li>\n<!-- \/wp:list-item --><\/ul>\n<!-- \/wp:list -->","post_title":"Lung transplant and Interstitial Lung Disease (ILD)","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"lung-transplant-and-interstitial-lung-disease-ild","to_ping":"","pinged":"","post_modified":"2023-06-07 14:17:50","post_modified_gmt":"2023-06-07 04:17:50","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=91316","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"","view_more_link":"https:\/\/lungfoundation.com.au\/external-resource-hub\/?link_condition=228&search=Management","posts":[{"ID":83212,"post_author":"85","post_date":"2021-08-04 15:38:47","post_date_gmt":"2021-08-04 05:38:47","post_content":"<!-- wp:paragraph -->\n<p>The Living with Pulmonary Fibrosis: How can Oxygen Therapy Help? booklet has been designed to help people living with Pulmonary Fibrosis (PF) understand more about the use of oxygen therapy for the management of the condition. This resource covers topics including:<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><li>How oxygen therapy may help you<\/li><li>How often oxygen therapy may be required<\/li><li>The different types of oxygen equipment available<\/li><li>Tips on incorporating oxygen therapy into your life<\/li><li>Tips on travelling with oxygen and using oxygen outside of the home<\/li><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:paragraph -->\n<p>To learn more about these topics and other PF resources and support options, contact Lung Foundation Australia\u2019s <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information and Support Centre<\/a> on <a href=\"tel:1800654301\">1800 654 301<\/a>.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Living with Pulmonary Fibrosis: How can oxygen therapy help?","post_excerpt":"This booklet has been designed to help people living with Pulmonary Fibrosis understand more about the use of oxygen therapy and the different types of oxygen equipment available.","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"living-with-pulmonary-fibrosis-how-can-oxygen-therapy-help","to_ping":"","pinged":"","post_modified":"2022-07-05 09:41:44","post_modified_gmt":"2022-07-04 23:41:44","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=83212","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":85101,"post_author":"112","post_date":"2021-11-29 15:25:13","post_date_gmt":"2021-11-29 05:25:13","post_content":"<!-- wp:paragraph -->\n<p>This booklet has been designed to help people live well with Pulmonary Fibrosis (PF) and understand more about non-pharmacological treatments (therapies that are not medicine) for the management of the condition. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>The resource includes tips on managing your lifestyle and maintaining your mental health and wellbeing while living with PF, as well as information on the use of oxygen therapy, pulmonary rehabilitation, lung transplant, palliative care and alternative therapies.  <\/p>\n<!-- \/wp:paragraph -->","post_title":"Living with Pulmonary Fibrosis: Non-pharmacological treatments","post_excerpt":"This booklet has been designed to help people live well with PF and understand more about managing their condition through non-pharmacological treatments (therapies that are not medicine).","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"living-with-pulmonary-fibrosis-non-pharmacological-treatments","to_ping":"","pinged":"","post_modified":"2022-06-07 12:05:26","post_modified_gmt":"2022-06-07 02:05:26","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=85101","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":8133,"post_author":"85","post_date":"2020-04-05 17:46:28","post_date_gmt":"2020-04-05 07:46:28","post_content":"<!-- wp:paragraph -->\n<p>This Clinical Trials in Pulmonary Fibrosis fact sheet provides a brief overview of clinical trials and their place in current treatment and management. The fact sheet covers topics including: <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><!-- wp:list-item -->\n<li>Why should you consider taking part in a clinical trial?\u00a0<\/li>\n<!-- \/wp:list-item --><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:list -->\n<ul><!-- wp:list-item -->\n<li>What do clinical trials involve?\u00a0<\/li>\n<!-- \/wp:list-item --><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:list -->\n<ul><!-- wp:list-item -->\n<li>Questions to ask.\u00a0<\/li>\n<!-- \/wp:list-item --><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:paragraph -->\n<p>If you are interested in participating in a clinical trial, or just want to see what is available, you should visit the Pulmonary Fibrosis Australasian Clinical Trials (PACT) Network for a list of clinical trials currently recruiting people with Pulmonary Fibrosis. You can also ask your healthcare team about clinical trials that you might be a candidate for.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>You can access the PACT website <a href=\"https:\/\/pact.lungfoundation.com.au\/\" target=\"_blank\" rel=\"noreferrer noopener\">here<\/a><strong>.<\/strong> <\/p>\n<!-- \/wp:paragraph -->","post_title":"Clinical trials in pulmonary fibrosis","post_excerpt":"The Clinical Trials in Lung Fibrosis fact sheet outlines what to consider before taking part in a clinical trial questions to ask and what to expect during a trial. ","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"clinical-trials-in-lung-diseases","to_ping":"","pinged":"","post_modified":"2024-07-12 13:43:51","post_modified_gmt":"2024-07-12 03:43:51","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=8133","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"External PF\/IPF management resources","view_more_link":"https:\/\/lungfoundation.com.au\/external-resource-hub\/?link_condition=228&search=Management","posts":[{"ID":89040,"post_author":"482","post_date":"2022-09-28 15:57:45","post_date_gmt":"2022-09-28 05:57:45","post_content":"<!-- wp:paragraph -->\n<p>This webpage provides information to help understand cough in Pulmonary Fibrosis, including management strategies. Please note some information is UK specific.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Managing a pulmonary fibrosis cough","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"managing-a-pulmonary-fibrosis-cough","to_ping":"","pinged":"","post_modified":"2022-10-07 11:42:53","post_modified_gmt":"2022-10-07 01:42:53","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=link&p=89040","menu_order":0,"post_type":"link","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":12339,"post_author":"85","post_date":"2021-02-08 08:51:38","post_date_gmt":"2021-02-07 22:51:38","post_content":"<!-- wp:paragraph -->\n<p>This printable booklet provides support for integrating long-term oxygen therapy into your life for pulmonary fibrosis management. Please note some information is USA specific.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Integrating long-term oxygen therapy into your life","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"integrating-long-term-oxygen-therapy-into-your-life","to_ping":"","pinged":"","post_modified":"2022-06-08 11:19:06","post_modified_gmt":"2022-06-08 01:19:06","post_content_filtered":"","post_parent":0,"guid":"http:\/\/lungfoundation.com.au\/?post_type=link&p=12339","menu_order":0,"post_type":"link","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":12336,"post_author":"85","post_date":"2021-02-08 08:49:17","post_date_gmt":"2021-02-07 22:49:17","post_content":"<!-- wp:paragraph -->\n<p>This webpage provides information about lung transplantation in Pulmonary Fibrosis management. Please note some information is UK specific.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Lung Transplants","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"lung-transplants","to_ping":"","pinged":"","post_modified":"2022-06-07 13:49:19","post_modified_gmt":"2022-06-07 03:49:19","post_content_filtered":"","post_parent":0,"guid":"http:\/\/lungfoundation.com.au\/?post_type=link&p=12336","menu_order":0,"post_type":"link","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"Our PF\/IPF exercise resources","view_more_link":"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/lung-disease-and-exercise\/resources\/","posts":[{"ID":91671,"post_author":"482","post_date":"2023-07-25 15:45:34","post_date_gmt":"2023-07-25 05:45:34","post_content":"<!-- wp:paragraph -->\n<p>The Exercise and Pulmonary Fibrosis fact sheet has been designed to provide practical knowledge and information on how to incorporate regular exercise into your everyday life. The resource covers topics such as how to get started with exercise, pulmonary rehabilitation, exercising safely and tips for exercising with a lung condition. <\/p>\n<!-- \/wp:paragraph -->","post_title":"Exercise and Pulmonary Fibrosis","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"exercise-and-pulmonary-fibrosis","to_ping":"","pinged":"","post_modified":"2023-08-02 16:00:17","post_modified_gmt":"2023-08-02 06:00:17","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=91671","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":3749,"post_author":"85","post_date":"2018-10-03 13:06:58","post_date_gmt":"2018-10-03 03:06:58","post_content":"<!-- wp:paragraph -->\n<p>Join Lung Foundation Australia and James Walsh (Physiotherapist - Clinical Consultant) for our Exercise and Pulmonary Fibrosis webinar. This webinar goes into detail about what Pulmonary Rehabilitation is, the benefits of exercise, exercise tips, what to expect when exercising and exercise level or intensity. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>For further information you can access the Life with Pulmonary Fibrosis booklet <a href=\"https:\/\/lungfoundation.com.au\/resources\/?user_category=31&search=life%20with%20pulmonary%20fibrosis\">here <\/a>or contact our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information and Support Centre<\/a> on <a href=\"tel:1800 654 301\">1800 654 301<\/a>.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Exercise and Pulmonary Fibrosis","post_excerpt":"In this webinar, James Walsh (Physiotherapist- Clinical Consultant) discusses the importance of exercise for people living with Idiopathic Pulmonary Fibrosis (IPF).","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"webinar-exercise-and-pulmonary-fibrosis","to_ping":"","pinged":"","post_modified":"2021-03-17 15:14:38","post_modified_gmt":"2021-03-17 05:14:38","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=resource&p=3749","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":12544,"post_author":"278","post_date":"2021-03-08 13:59:11","post_date_gmt":"2021-03-08 03:59:11","post_content":"<!-- wp:paragraph -->\n<p>Join Lung Foundation Australia and Curtis Forbes (Clinical\u202fExercise Physiologist) for our exercising with a lung condition webinar. <br>In the webinar Curtis covers the following topics:<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul><li>The mechanics of safe exercise and how it can help<\/li><li>Mechanics of exercise<\/li><li>Education for self management<\/li><li>Understanding the cycle of inactivity<\/li><li>Teaching and coordinating movement<\/li><li>Mechanics of breathing <\/li><li>Physical activity guidelines <\/li><li>Pulmonary rehabilitation <\/li><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:paragraph -->\n<p>For further detailed information you can access the exercise page on our website found <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/lung-disease-and-exercise\/\">here<\/a>. You can also contact our <a href=\"https:\/\/lungfoundation.com.au\/patients-carers\/support-services\/support\/\">Information and Support Centre <\/a>on 1800 654 301.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Exercising safely with a lung condition","post_excerpt":"This webinar, presented by Clinical\u202fExercise Physiologist, Curtis Forbes, provides information for exercising safely with a lung condition. ","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"webinar-exercising-safely-with-a-lung-condition","to_ping":"","pinged":"","post_modified":"2021-04-13 10:57:11","post_modified_gmt":"2021-04-13 00:57:11","post_content_filtered":"","post_parent":0,"guid":"http:\/\/lungfoundation.com.au\/?post_type=resource&p=12544","menu_order":0,"post_type":"resource","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"External PF\/IPF exercise resources","view_more_link":"https:\/\/lungfoundation.com.au\/external-resource-hub\/?link_condition=228&search=Exercise","posts":[{"ID":12335,"post_author":"85","post_date":"2021-02-08 08:47:58","post_date_gmt":"2021-02-07 22:47:58","post_content":"<!-- wp:paragraph -->\n<p>This webpage outlines the importance of exercise and pulmonary rehabilitation in the management of pulmonary fibrosis. Please note some information is UK specific.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Keep Active","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"keep-active","to_ping":"","pinged":"","post_modified":"2023-09-15 09:33:47","post_modified_gmt":"2023-09-14 23:33:47","post_content_filtered":"","post_parent":0,"guid":"http:\/\/lungfoundation.com.au\/?post_type=link&p=12335","menu_order":0,"post_type":"link","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":12334,"post_author":"85","post_date":"2021-02-08 08:44:47","post_date_gmt":"2021-02-07 22:44:47","post_content":"<!-- wp:paragraph -->\n<p>This printable booklet has been designed to help you manage your Pulmonary Fibrosis with exercise at home. Please note some information is USA specific.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Get moving\u2026 breathe easy with pulmonary fibrosis","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"get-moving-breathe-easy-with-pulmonary-fibrosis","to_ping":"","pinged":"","post_modified":"2022-06-08 16:29:57","post_modified_gmt":"2022-06-08 06:29:57","post_content_filtered":"","post_parent":0,"guid":"http:\/\/lungfoundation.com.au\/?post_type=link&p=12334","menu_order":0,"post_type":"link","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":12333,"post_author":"85","post_date":"2021-02-08 08:42:38","post_date_gmt":"2021-02-07 22:42:38","post_content":"<!-- wp:paragraph -->\n<p>This fact sheet includes information about exercise in pulmonary fibrosis, before and after lung transplantation. Please note some information is USA specific.<\/p>\n<!-- \/wp:paragraph -->","post_title":"Pulmonary Exercise Training before and after Lung Transplantation","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"pulmonary-exercise-training-before-and-after-lung-transplantation","to_ping":"","pinged":"","post_modified":"2021-02-08 08:43:16","post_modified_gmt":"2021-02-07 22:43:16","post_content_filtered":"","post_parent":0,"guid":"http:\/\/lungfoundation.com.au\/?post_type=link&p=12333","menu_order":0,"post_type":"link","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"featured_posts_static","heading":"Community stories","view_more_link":"https:\/\/lungfoundation.com.au\/stories\/?condition=23","posts":[{"ID":421,"post_author":"3","post_date":"2018-09-06 13:02:57","post_date_gmt":"2018-09-06 03:02:57","post_content":"It all started between 1962 and 1978. \u00a0My husband was a machinist but did many different tasks in his job in the mineralogy department. \u00a0It was never mentioned to me, but my husband machined asbestos sheets one third of an inch thick. \u00a0He would bring his dirty clothes home, shake them out and add them to the laundry basket with the rest of our clothes.\r\n<blockquote>I often visited him for lunch as anyone was allowed into the workshop. \u00a0With no mask on, I would wait in a brick room whilst he finished his job.<\/blockquote>\r\nIn 2003, we moved house as the other place was becoming too much for my husband to look after. \u00a0In 2004, my husband went for a CT scan which diagnosed him with asbestosis. \u00a0He unfortunately passed away in 2006, not from asbestosis but from other complications.\r\n\r\nIn 2005, whilst my husband was alive but not well, I was diagnosed with Idiopathic Pulmonary Fibrosis (IPF).\u00a0 Of course I didn\u2019t know what this was and I was too preoccupied caring for my husband to worry at the time. \u00a0I was also diagnosed with Interstitial Lung Disease (ILD).\r\n\r\nFor many years I was seeing a lung specialist and having many different tests. \u00a0At the end of 2010, I was diagnosed with asbestosis, which was a big shock to me.\r\n\r\nIn 2011, my son took me to America to see my eldest son and grandchildren whom I had not seen for about eight or nine years. \u00a0A few weeks after this trip, I was rushed to hospital where they found I had four clots in my lungs. \u00a0This hit me very hard, especially when in November that same year I was rushed to hospital again and was diagnosed with Pulmonary Hypertension in my lungs.\u00a0 I thought I was going to die.\r\n\r\nAfter this incident, the doctors recommended joining an exercise program. \u00a0Of course I said yes, anything to try and help me carry on. \u00a0It\u2019s good to know you are not the only one with lung problems. \u00a0I was able to learn from others on how they cope with their problems and we tried to help each other. \u00a0I attended Easy Breathers twice a week for six weeks, but because of my many lung problems they wanted me to do a further six weeks. \u00a0I was then relocated to an exercise class closer to home.\r\n\r\nI now attend these exercise classes once a week. \u00a0Sometimes I really don\u2019t want to go, but after I have been, I feel better mentally and know that I have achieved something and certainly believe it has helped to keep me out of hospital. \u00a0Exercise, so I believe, is the best thing to keep you going.\u00a0 Even just walking a little every day, otherwise the muscles get very weak.\r\n\r\nI now have Pulmonary Fibrosis, ILD, bronchiectasis, Asbestosis, Pulmonary Hypertension and remnants of the old clots left. \u00a0I also had pneumonia in 2015.\u00a0 My Pulmonary Fibrosis is no longer idiopathic because they know the cause as to why I have it \u2013 the asbestosis caused the fibrosis.\r\n<h4>Sharing your personal experience with lung disease is a compelling and inspiring way for others to learn about and cope with their diagnosis. Your story may also encourage people to identify and act on symptoms they are experiencing, which may otherwise have been ignored.<\/h4>\r\n<h4><a href=\"https:\/\/lungfoundation.com.au\/get-involved\/how-you-can-help\/share-your-story\/\">Share your story, here<\/a>.<\/h4>","post_title":"Maree's story","post_excerpt":"","post_status":"publish","comment_status":"open","ping_status":"closed","post_password":"","post_name":"marees-story","to_ping":"","pinged":"","post_modified":"2020-08-25 21:25:41","post_modified_gmt":"2020-08-25 11:25:41","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=story&p=421","menu_order":0,"post_type":"story","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":10557,"post_author":"85","post_date":"2020-09-08 13:43:39","post_date_gmt":"2020-09-08 03:43:39","post_content":"<!-- wp:heading {\"align\":\"center\",\"level\":4} -->\n<h4 class=\"has-text-align-center\">\u201cResearch means everything! I can\u2019t believe that in this age of genetically-specific therapies and 3D joint printing, we still have diseases that no one knows the cause of, that have such poor prognosis and so few people have heard of it unless it actually affects someone they love.\u201d - Philippa. <\/h4>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>For thousands of Australians\u00a0like\u00a0Richard,\u00a0who lives with Idiopathic\u00a0Pulmonary\u00a0Fibrosis\u00a0(IPF),\u00a0research is hope.\u00a0As his wife,\u00a0Philippa,\u00a0supports Richard through\u00a0the\u00a0good and bad days, she\u2019s determined to help raise awareness\u00a0of the devastating disease\u00a0and help provide hope for a brighter future.\u00a0This October,\u00a0Philippa will be pounding the pavement as she takes part in the virtual City 2 Surf event to raise vital funds to support life-changing research.\u00a0\u00a0<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cAfter experiencing a persistent cough for over a year and constantly having to clear his throat, Richard was diagnosed with IPF in mid-2017. He was pretty fit and regularly cycled the 20km circuit around lake Burley-Griffin here in Canberra. He noticed some breathlessness helping a friend move to a new house, and his breathing pitch changed \u2013 we joked that it sounded like he was \u201cgrowling\u201d at times.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>After some persuasion (he\u2019d say nagging) Richard went to the GP who sent him for a chest x-ray and suggested an inhaler. After a few months nothing really changed, and Richard was referred to a respiratory specialist who sent him for a CT scan. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>The shock of his IPF diagnosis was brutal<strong>.<\/strong> Not long after we got that I was scheduled to go back to the UK for a couple of weeks of work, and I often used those work trips to grab a couple of days leave at the start and end of the trips to catch up with family who live over there. I can vividly remember managing to hold it together all through that long flight, and the drive from Heathrow to my parent\u2019s house and getting in through the front door and bursting into tears again.\u201d <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>While research has discovered treatments that can help to slow the progression of IPF, a lung transplant is the only intervention shown to increase life expectancy. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cThere\u2019s a complacency about much needed organs for donation, but we were determined to get on to the St Vincent\u2019s Transplant Unit\u2019s radar as soon as possible and they have been so supportive. We also connected with advocates like Donate Life.  <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>After a decline in 2019, we were so grateful that Richard was already having regular check-ups & monitoring at St Vincent\u2019s Heart & Lung Transplant Unit, so they started him on the process for transplant listing. He was activated on the list in January 2020.\u201d <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Along the way we also found Lung Foundation Australia and through the organisation, heard the stories of inspiring people like <a href=\"https:\/\/lungfoundation.com.au\/stories\/bills-story\/\" target=\"_blank\" rel=\"noreferrer noopener\">Bill Van Nierop<\/a>. Knowing there is support available, and importantly, peer-support, is vital for any life-changing illness.\u201d <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>As IPF progresses, breathing becomes increasingly more difficult and even the simplest of day-to-day tasks can become challenging. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cBecause of Richard\u2019s decline, we have had to move as he was finding it increasingly difficult to manage the stairs. He loves cooking and now has to use his oxygen concentrator to do it. He also has a mobility scooter for anything further than a couple of hundred metres from the apartment. This winter has been particularly difficult to navigate with the COVID-19 restrictions severely limiting contact with our family, as well as the cold of a Canberra winter keeping him inside. He tires so easily now which is hard to watch, and it can be<strong> <\/strong>difficult to navigate the fine line between offering to help and over asking!\u201d <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Australian-based research into this complex disease has provided significant advances in treatments which are giving hope that never existed before. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cWhat shocked me was that there were only two medicines available on the Pharmaceutical Benefits Scheme and they only \u201cslowed\u201d the disease \u2013 not curing or even halting the progress. Even with treatment, there still wasn\u2019t a definite prognosis, it was all \u201cmaybe\u201d and \u201cit might\u201d. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Research means everything!\u00a0I can\u2019t believe that in this age\u00a0of\u00a0genetically-specific therapies and 3D joint printing,\u00a0we still have diseases that no one knows\u00a0the\u00a0cause\u00a0of, that\u00a0have\u00a0such poor\u00a0prognosis\u00a0and\u00a0so few\u00a0people have heard of it unless it actually affects someone\u00a0they love.\u201d\u00a0<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\"\/>\n<!-- \/wp:separator -->\n\n<!-- wp:buttons {\"align\":\"center\"} -->\n<div class=\"wp-block-buttons aligncenter\"><!-- wp:button {\"style\":{\"color\":{\"background\":\"#491b62\"}}} -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-background\" href=\"https:\/\/lungfoundation.com.au\/donate\/\" style=\"background-color:#491b62\" target=\"_blank\" rel=\"noreferrer noopener\">Donate today<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->","post_title":"Philippa\u2019s story","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"philippas-story","to_ping":"","pinged":"","post_modified":"2020-09-08 13:43:40","post_modified_gmt":"2020-09-08 03:43:40","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=story&p=10557","menu_order":0,"post_type":"story","post_mime_type":"","comment_count":"0","filter":"raw"},{"ID":10136,"post_author":"12","post_date":"2020-08-27 17:09:43","post_date_gmt":"2020-08-27 07:09:43","post_content":"<!-- wp:heading {\"align\":\"center\",\"level\":3} -->\n<h3 class=\"has-text-align-center\">\u201cAlthough a lot has been accomplished so far, there is much more that needs to be done. The essential ingredients\u202ffor Idiopathic Pulmonary Fibrosis (IPF) to be resolved\u202fin the future\u202fare;\u202ftime, energy and money.\u201d - John<\/h3>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>IPF\u202fis a debilitating and complex disease and very little is understood about what causes the condition and how it behaves. Currently, the survival rates can be as low as some of the most devastating cancers. Unlike many people who are\u202fdiagnosed\u202fwith\u202fthe rare condition, John learnt first-hand the devastating toll this disease could take on his life. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cI\u202fhad\u202fbeen diagnosed with IPF and possible Post-inflammatory Pulmonary Fibrosis (PF) in 2011 after a\u202fbushfire.\u202fAt the time, my\u202fGP had little knowledge of the\u202fdisease,\u202fso I wasn\u2019t treated\u202fproperly\u202ffor three years.\u201d\u202f\u202f <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>When his brother became seriously ill\u202fwith IPF and passed away, John\u202fsought a second opinion\u202fand\u202fwas finally\u202fconnected with a respiratory specialist who\u202fhas helped\u202fmanage and treat his condition. With so many questions about the condition and few answers, dealing with a rare and progressive disease like IPF can have\u202fan\u202fenormous impact. <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>\u201cI became very angry, as I felt I had lost time from not receiving treatment for three years. Eventually the anger\u202fsubsided,\u202fand I went through a period of anxiety and depression. The uncertainty of prognosis and life expectancy weighed quite heavily for some time. Eventually I realised; I was alive today, would be tomorrow and next month and the anxiety and depression subsided\u201d\u202f\u202f <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Through our multi-million-dollar research program, Lung Foundation Australia provides seed funds to the best and brightest researchers to discover life-changing diagnosis and treatments   <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>While living with IPF has its challenges, John is determined to help create positive change for others living with a rare lung condition.\u202f <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p> \u201cThe researchers that give their time and energy to PF investigations are to be lauded. So far\u202fno cause has been identified, therefore there is no cure on the horizon. Any amount of money that can be pushed into research will, in time, bear significant fruit and provide hope for the many patients out there.\u201d <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p> \u201cAlthough a lot has been accomplished so far, there is much more that needs to be done. The essential ingredients\u202ffor IPF to be resolved\u202fin the future\u202fare;\u202ftime, energy and money.\u201d\u202f <\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>To anyone who has or can give to help support dedicated PF research, John says \u201cthe biggest, loudest heartfelt \"THANK YOU\" I could muster.\u201d\u202f<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:separator -->\n<hr class=\"wp-block-separator\" \/>\n<!-- \/wp:separator -->\n\n<!-- wp:heading -->\n<h2>Give hope to Australian families affected by PF. Every dollar makes a difference and fuels life-changing research.<\/h2>\n<!-- \/wp:heading -->\n\n<!-- wp:buttons -->\n<div class=\"wp-block-buttons\"><!-- wp:button {\"customBackgroundColor\":\"#4f9837\"} -->\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-background\" href=\"lungfoundation.com.au\/donate\" style=\"background-color:#4f9837\" target=\"_blank\" rel=\"noreferrer noopener\">Donate today<\/a><\/div>\n<!-- \/wp:button --><\/div>\n<!-- \/wp:buttons -->","post_title":"John's story","post_excerpt":"","post_status":"publish","comment_status":"closed","ping_status":"closed","post_password":"","post_name":"johns-story","to_ping":"","pinged":"","post_modified":"2020-08-28 10:14:07","post_modified_gmt":"2020-08-28 00:14:07","post_content_filtered":"","post_parent":0,"guid":"https:\/\/lungfoundation.com.au\/?post_type=story&p=10136","menu_order":0,"post_type":"story","post_mime_type":"","comment_count":"0","filter":"raw"}]},{"acf_fc_layout":"helpful_links","heading":"Helpful Links","image_display_setting":false,"links_list":[{"image":false,"title":"Journeys Through Pulmonary Fibrosis - Podcast Series ","description":"<p>In an effort to build and give a voice to this courageous community, Boehringer Ingelheim have developed this podcast series to bring together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them.<\/p>\n","link_url":"https:\/\/www.boehringer-ingelheim.com\/podcasts\/progressive-fibrosing-ild\/journeys-through-pf"}]}],"subtitle":"Pulmonary Fibrosis","disable_header_overlay":false},"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/10618","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/users\/85"}],"replies":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/comments?post=10618"}],"version-history":[{"count":10,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/10618\/revisions"}],"predecessor-version":[{"id":91909,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/10618\/revisions\/91909"}],"up":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/pages\/1262"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/media\/91879"}],"wp:attachment":[{"href":"https:\/\/lungfoundation.com.au\/wp-json\/wp\/v2\/media?parent=10618"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}